Please help me with stubborn acid reflux and LPR

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New Member

Date Joined Mar 2014
Total Posts : 3
   Posted 3/2/2014 7:51 PM (GMT -6)   
Hi there, I am 32 year old female. I have been suffering from acid reflux for the past 3 years. I can't be on PPIs or H2Blockers, they cause so much problems, like extreme joint inflammation and pain, getting out of bed is like climbing Mount Everest when I am on the medicine. They cause balance problems, cloudy brain functions, memory loss, anemia, low white blood cell count and sores in my mouth like 3 at a time for 3 weeks at a time. they don't go away!
I am a healthy eater, don't drink coffee, don't eat chocolate, don't drink alcohol, don't smoke, eat whole foods without any packaged food. I am on a low carb diet and gluten free diet. Don't really eat dairy anymore. I am not overweight actually underweight and I've never been overweight in my life. I've lost about 10 lbs since my trouble started and have never really been able to gain it back

It all started three years ago with a Adderall pill. I took one 35mg capsule over the course of one week. When I was on it , I really didn't eat because it is an appetite suppressant. and I had drank coffee on top of that, I was always really sensitive to coffee, never really have a full cup at one time in my life and when I was on the adderall pill I would have two in a day, and that's when my stomach started really hurting. It was rumbling and gave me this empty gnawing feeling. I never thought anything of it at first until I couldn't ignore it anymore. I've never experienced acid reflux like this before and eventually I realized that I got an ulcer.

I've had 2 endoscopy, CT scan, and stomach ultrasound, and the results are inconclusive. They said I was not sensitive to gluten, nor did I have H Pylori. I was on PPIs for about 10 month to 12 month and I started getting all these symptoms above, at first I didn't know why but then I realized that it was from all the PPIs, so I stopped taking it. I was able to function just on tums for about 6 month until the past Christmas time when everything went downhill. The tums stopped working and my life has been so miserable.

I feel like every moment of every second of my life is consumed by my bad stomach. I would like to have children in the near future but I physically wouldn't be able to do it! It's not like my acid reflux is affected by foods or at least it doesn't seem like it. I wake up in the morning with my tummy rumbling and hurting like there's too much acid. Actually food makes me feel better. It's the only thing that relieves pain. I am really at my wits end. I do not know what to do anymore. I've tried much natural remedies, including glutamine, zinc-carnosine, probiotics, prebiotics, DGL licorice, ginger etc but they don't really to provide much relief. I really just want to end it all because I've lost all hope and I'm tired of battling it! I just can't do it anymore, I am so tired of it. I can't focus on work and I am also in school doing my thesis and I am in danger of failing because I have no motivation of finishing it.

I have no idea why I am suffering and I am not sure why the one pill of adderall made such a difference! Does anyone out there have any answers? I really don't see the point of living if I am in constant pain or if I am just waiting to get cancer (both of my maternal grandparents died from esophageal cancer) please help!

New Member

Date Joined Mar 2014
Total Posts : 4
   Posted 3/2/2014 8:49 PM (GMT -6)   
Sounds like youre doing everything right and just cant get relief. It`s unusual for both grandparents to die of the same cancer. They werent from the Pennsylvania area were they? I read once that in one location in PA there is tainted drinking water and everyone in that particular area has stomach and/or colon problems.

Regular Member

Date Joined Jul 2013
Total Posts : 332
   Posted 3/2/2014 9:23 PM (GMT -6)   
Digestive problems cause so much suffering and nobody seems to understand. Have you been to a gastrologist?? How do you know you have an ulcer? What probiotics have you tried?

Regular Member

Date Joined Feb 2014
Total Posts : 76
   Posted 3/4/2014 3:40 PM (GMT -6)   
Hi dididudu, you have described exactly the same symptoms as me and the way I am feeling. I had gastritis in September last year and ever since have had horrendous acid reflux and pain, it doesn't seem to matter what I eat the heartburn just gets progressively worse throughout the day. I am on omeprazole although that doesn't seem to be helping much at all. After 6 months of waiting I finally got to see a gastroenterologist yesterday and he is referring me to have an endoscopy to view my oesophagus and stomach, and also for oesophageal manometry and pH testing which will analyse the function of my oesophagus and the valve between my stomach and oesophagus.I am hoping that as a result of these tests I will find out what is going on. The gastroenterologist did say that the oesophageal physiology test are more detailed and accurate at identifying what is going on in relation to acid reflux - have you been offered this type of testing? I really do feel for you as I too am 32 and my husband and I had planned to start a family this year but now I am in no fit state just want this to be sorted now.

New Member

Date Joined Mar 2014
Total Posts : 3
   Posted 3/5/2014 3:47 PM (GMT -6)   
HI loulou82,
Thanks for your post! It's so frustrating having this condition. It literally takes over your life. It is really comforting to know that I am not the only person (though I would not wish this upon anyone) Thanks for reaching out to me. I have not had those tests but I am supposed to see an ENT doctor in about a week and I will ask for those tests. I recently found out that I have LPR where the acid floats past your esophagus to your voice box. It's making my ear hurt, have a sore throat, and pain swallowing. I've been having heartburns less...I guess the acid now bypasses the esophagus and goes all the way up to the voice box!
Have you tried zinc-carnosine and glutamine? I think they are supposed to help the stomach and esophagus heal (by rebuilding the tissues although in my case the acid just travels further up) but they might provide some kind of relief for you if the PPI is not working. Also this sounds too simple but one of the only things that to me made an actual difference is chewing gum because then you release lots of saliva which is an antiacid naturally. Also I think sucking on a piece of raw ginger also had some positive effects.
Let me know how your tests go. I really hope that you find some answers and I hope that you will quickly heal and start a family!
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