wanted: uk (preferably London or SE) surgeon specialising in post-surgery repair.

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ldrunner
Regular Member


Date Joined Dec 2013
Total Posts : 103
   Posted 3/5/2014 5:20 PM (GMT -6)   
I had my wrap three months ago on the NHS and it appears like it was a disaster. My symptoms are far worse than before and my stomach is a mess. My whole ab muscules, down to the pelvis are weak and in pain most days and this sets off my reflux. My stomach capacity is still tiny and anything more than a miniscule meal again sets off the reflux. Exercise, no matter how light, affects the abs muscles which then triggers reflux.

The surgeon is delaying further tests and saying "everything is fine".

I've resigned myself to having to pay to go private as this is affecting my career and family life. Can anyone recommend a good surgeon / consultant who has successfully treated post-op problems like this?

Any help appreciated, LD.

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 3/5/2014 6:12 PM (GMT -6)   
Hi LD I had my wrap done in 2001 on the nhs and the symptoms you are describing are typical of this operation, it has a long recovery time that does not seem to be told to patients before hand by the surgeon. It as you can see has been a long while since I had mine but I remember so well all you are stating. My husband said I went anorexic and took me to A & E. The best solution for me was a dilation done just over 3 months after the op. It transformed my life, my appetite returned and I could eat without pain. Hope you get help soon. Best wishes Rita

Baza
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Date Joined Jan 2011
Total Posts : 513
   Posted 3/6/2014 7:02 AM (GMT -6)   
Hi LD.sorry to hear your having so much trouble after your op.It can be rough recovering from a fundoplication but if your at three months it should have improved.
At three months your surgeon should investigate your symtoms. I had to go else where myself after my op as it was done too tightly for my swallowing problem so I know how you feel.
I went to a group of surgeons called NUGITS in Newcastle who sorted me out.Maybe Newcastle is too far to travel? It can be difficult to get a surgeon to redo someone elses work though! Barry

ldrunner
Regular Member


Date Joined Dec 2013
Total Posts : 103
   Posted 3/6/2014 4:10 PM (GMT -6)   
Baza said...
Hi LD.sorry to hear your having so much trouble after your op.It can be rough recovering from a fundoplication but if your at three months it should have improved.
At three months your surgeon should investigate your symtoms. I had to go else where myself after my op as it was done too tightly for my swallowing problem so I know how you feel.
I went to a group of surgeons called NUGITS in Newcastle who sorted me out.Maybe Newcastle is too far to travel? It can be difficult to get a surgeon to redo someone elses work though! Barry


Hi, thanks very much. Newcastle isn't close, but I've been there a lot and I'll definitely travel to get this sorted out.

Cheers,

LD.

ldrunner
Regular Member


Date Joined Dec 2013
Total Posts : 103
   Posted 3/6/2014 4:11 PM (GMT -6)   
reet22 said...
Hi LD I had my wrap done in 2001 on the nhs and the symptoms you are describing are typical of this operation, it has a long recovery time that does not seem to be told to patients before hand by the surgeon. It as you can see has been a long while since I had mine but I remember so well all you are stating. My husband said I went anorexic and took me to A & E. The best solution for me was a dilation done just over 3 months after the op. It transformed my life, my appetite returned and I could eat without pain. Hope you get help soon. Best wishes Rita


Hi Rita, thanks very much. I'm sorry to hear other people went through this as well.

What exactly did the dilation involve please? Is it another surgery? Also, what was the recovery like, is it as bad as the initial operation?

Thanks,

LD.

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 3/6/2014 6:17 PM (GMT -6)   
Hi LD dilation is done by inflating gently a balloon during an endoscopy. I had a full wrap that must have been too tight so the dilation kind of stretched everything. It was a long time ago, when I had no information as to why I could not eat properly and I at the time wished I had never had the operation. After the dilation I was told to eat soft foods for a couple of days that was all. I remember suddenly getting an appetite (I had had a lot of nausea) food was not sticking but I think this op is life changing in the way we have to eat and how much we can eat. It then took me the rest of the year to recover my health. Unfortunately 4 years ago my problems starting again, I was sure the wrap had failed, but after a high resolution camera manometry I was diagnosed with moderately severe oesophageal dismotility so another dilation is due 27th March(hope it helps again) thats my problem though not yours. My wrap is still functioning after 13 years but it has slipped slightly. Hope this helps a bit. Best wishes dont give up hope you find someone to help you. Rita

ldrunner
Regular Member


Date Joined Dec 2013
Total Posts : 103
   Posted 3/6/2014 6:49 PM (GMT -6)   
reet22 said...
Hi LD dilation is done by inflating gently a balloon during an endoscopy. I had a full wrap that must have been too tight so the dilation kind of stretched everything. It was a long time ago, when I had no information as to why I could not eat properly and I at the time wished I had never had the operation. After the dilation I was told to eat soft foods for a couple of days that was all. I remember suddenly getting an appetite (I had had a lot of nausea) food was not sticking but I think this op is life changing in the way we have to eat and how much we can eat. It then took me the rest of the year to recover my health. Unfortunately 4 years ago my problems starting again, I was sure the wrap had failed, but after a high resolution camera manometry I was diagnosed with moderately severe oesophageal dismotility so another dilation is due 27th March(hope it helps again) thats my problem though not yours. My wrap is still functioning after 13 years but it has slipped slightly. Hope this helps a bit. Best wishes dont give up hope you find someone to help you. Rita


Hi, thanks for the info, I hope everything goes well.

Did you get reflux after the operation but before you had the dilation? I get terrible reflux now and two doctors I'm friends with have told me my wrap is probably too tight.

I can't understand how a tight wrap causes reflux, I'd have thought it stopped it more?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 3/7/2014 12:55 AM (GMT -6)   
ldrunner

I am thinking food and drink is sitting at the wrap. This causes a reflux feeling from the food fermenting. If it's to tight or irritated this will happen.

A barium swallow will show if it's to tight and what is going on in there. A lot of people have this issue around the 2 to 4 month and sometimes a little past the 6 month mark. It's rally to early to say it hasn't worked because the wrap will still settle in some and there can still be some welling.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 3/7/2014 12:57 PM (GMT -6)   
Hi LD thank you for your good wishes. Bills message has said it all. Our oestophagus shows all problems as burning that we think is reflux. Ask for a barium scan, I had one which proved positive, cant see why your GP should refuse. Good luck
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