Burning that NEVER goes away now?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/9/2014 1:48 AM (GMT -6)   
Hi, I'm around on many different forums here (I have a host of health problems and conditions-- some of which seem autoimmune-related, which have not been diagnosed yet because I have no insurance).

Anyway... I am diagnosed with Fibromyalgia, I am thought to have IBD (Ulcerative Colitis or Crohn's), Sjogren's Syndrome, possibly some others.. or maybe NONE of those! Who knows!! BUT one thing is for sure... I have very serious gastrointestinal and bowel issues, and I've also had GERD for years.

My question to anyone here is: Does anyone know anything about burning that NEVER goes away? It used to come and go, of course, as the burning from GERD usually does. But now it stays. It's stayed constant for about 5 months now, maybe longer. (I have no insurance right now)!!!!! It seems to lie right in-between the bottom of the ribs-- right underneath my breasts and right around where the esophagus meets the stomach. And it seems to spread upward sometimes. It burns more when I breathe in. It also burns more when I haven't eaten for a while. Sometimes it prohibits me from sleeping, or wakes me up out of sleep.

Nothing OTC has ever helped, although zantac can help a real teeny tiny bit.

I stay away from all of the no-no foods, don't take any medications or drink coffee, etc.

Why does the heartburn never go away now? Has anyone ever had experiences with this?

Thank you in advance.

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/9/2014 2:06 AM (GMT -6)   
Perhaps I also should have mentioned that I have persistent nausea, too, that goes along with this...

Eden :-)

speden
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 3/9/2014 9:16 AM (GMT -6)   
Sounds like erosion of the lining at the junction between the esophagus and the stomach. Once the acid burns through the protective lining of the esophagus, it starts to work on the unprotected tissue underneath, which has pain sensors telling you it's being damaged. So it's kind of like having a raw wound that is never allowed to heal because the acid keeps damaging it faster than the body can heal the damage. This happens when your LES valve stops working and stays open all the time. One sign of this is if the pain increases when you take a deep breath, since as the lungs expand, it presses on the wound just like poking your finger on a cut makes it hurt more.

A stong PPI medication to reduce the acidity of the stomach acid is usually the first line of attack against this. It won't fix the LES valve, but will weaken the stomach acid to reduce the pain over time.

The dosage is usually something you have to experiment with. I tend to put the dosage into three categories. First is the dosage you need to allow the wound to heal, which reduces the strength of the stomach acid enough that the body can repair damage faster than the acid causes new damage. At this high dose, the wound can slowly heal over a several months and the constant pain will slowly subside.

Once it has healed, you can reduce to a maintenance dosage, where the body will heal damage at about the same rate as new damage occurs.

Then there is the losing battle dosage, where you aren't taking enough PPI, and the wound slowly gets worse over time.

For me I take generic timed release Lansoprazole in 15 mg capsules. A healing dose for me is three capsules a day. The losing battle dosage is two capsules a day. The maintenance dosage is somewhere in between, so I usually take three on one day, then two the next day, and alternate. When I get a flare up of pain, I take three a day until the pain starts to reduce. I don't like to take three a day since I get some side effects, like dry mouth, etc., but you have to make tradeoffs sometimes.

You also need to do all the usual GERD lifestyle changes too or all the PPI medication in the world won't help.

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/9/2014 3:07 PM (GMT -6)   
Well, I stay away from foods and beverages that exasperate it (I mostly only ever drink water anyway). I take a little bit of Zantac, but doesn't always help.

I will try the Lanso / Prevacid then. I'll give it a go. Thank you!

i just hope it won't make any other issues worse.. seeing as how I have problems with various systems of my body..

Did you start to have the same problem at one point then? Constant burning/ nausea/ a gnawing pain?

I appreciate your insight! This is just terrible! Too many problems going on at once!

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 3/10/2014 1:56 PM (GMT -6)   
I don't know about some of the other comments. People with Non-Erosive Reflux Disease generally have more symptoms, and symptoms that do not respond as well to PPI's. The non-erosion part means that nothing is being eroded. There can be a number of causes, from true acid reflux to functional heartburn to hypersensitivity. I am in the same boat my friend.

speden
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 3/10/2014 6:47 PM (GMT -6)   
Yes, I started to have a similar problem out of the blue one day. Strange dull pain near the bottom of the ribcage that didn't go away. I had no idea I had GERD and thought there was something wrong with my lungs since it hurt more when I took a deep breath.

I ignored it and it would come and go. A few years later the reflux got much worse and I started having a lot of problems with a sore throat, sinus congestion, and finally bad coughing. The coughing finally got me to the doctors, and even though I had all the classic symptoms of GERD, they had no clue what was wrong with me! One night I went to the ER with a burning sore throat and the ER doctor said if it's been sore for weeks, it's probably not an infection, but is probably GERD. For some reason I didn't believe him, but I tried Prilosec on his recommendation and it seemed to do nothing (it was too weak and I didn't use it long enough to do any good).

Finally I got to see a gastroenterologist and after he did a scope, he showed me the picture of the erosion at the bottom of my esophagus. Until I saw that awful picture, I honestly didn't believe I had GERD. Once I started doing some research on the symptoms, I realized I'd been suffering from it my whole life. I always wonder if I had known earlier and treated it, if I'd be in better shape today. All those bad habits and hamburgers over the years were making a ticking time bomb...

theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 3/11/2014 3:47 AM (GMT -6)   
@ Speden...I hear you, but we do what we can with what we know.

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/15/2014 9:25 PM (GMT -6)   
Thank you for the comments!

Well, seeing as how I've always struggled with not having health insurance (ever since my ex-husband and I split up nearly 5 yrs ago), all of my problems have only worsened, of course, due to the lack of help. I have had frequent heartburn for quite some time (along with other severe gastro symptoms that appear as bad as IBD), and nothing OTC has ever helped the issues. Cutting out a lot of foods made little difference in regards to the pain and symptoms.

I just make due with what I can for now, but a woman from the welfare office has been trying to get a hold of me... we keep missing each other... but she was calling about my case (I signed up for Obamacare but cannot even afford it monthly because with all of my health problems, have trouble holding down a job and not getting fired)... hopefully I will finally be able to explain my health needs to her and the fact that I am dirt poor, and perhaps i will finally be getting some help soon...

Wish me luck! I have suffered with way too much for way too long.

Hope everyone's well...

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, April 24, 2018 2:54 AM (GMT -6)
There are a total of 2,954,911 posts in 324,163 threads.
View Active Threads


Who's Online
This forum has 162197 registered members. Please welcome our newest member, immolation24.
188 Guest(s), 3 Registered Member(s) are currently online.  Details
Solaris719, Hibee, SueCAll