Endostim is a go- Rebecca, are you still out there?

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GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 3/14/2014 11:05 AM (GMT -6)   
Hello all,

So, my esophageal doc said that based on my dysphasia symptoms and 40% normal manometry in the fall off PPis (not severe, but slowish swallowing when reflux is bad, which it often is lately as my drugs seem less and less effective), I should hold off on the Linx unless I can get it stabilized. He also said Endostim might well be the way to go for me and said he'd been involved in the initial research of that technology. Then, this morning, the German surgeon gave me the thumbs up, so I think I'm going to do it in August!

Rebecca, if you're still out there, let me know! I have a few more questions for you and would love to hear how you're doing.

More soon...

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 3/14/2014 11:18 AM (GMT -6)   
Grover Cat,

That's brilliant news - could you advise me what sort of dysphagia you have? Have you checked Rebecca's profile for her email address? If not I have it if that's of any help.
LPR, Hypothyroidism, Glaucoma, Dry Eye Syndrome, Positional Vertigo

"We have invented our own valve now - so wish us luck!"

GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 3/14/2014 1:53 PM (GMT -6)   
Thanks! Basically when I eat things like sandwiches this week, I can feel the bites if food moving down more slowly than they should. I'm on the road and don't have my report in front of me, but I think the manometry showed that the lower-mid section of my esophagus wasn't pushing as strongly as it should have been. The thinking is that it's reflux-related as I notice this slow swallowing more when I notice my other reflux symptoms. If reflux is super bad (very rare), then it hurts a bit as well as goes slowly. Nothing's ever gotten stuck, though. My barium solid/liquid swallow looked normal.

I'd love her email if you have it. It's hard to search thing from my phone.

Thanks!

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 3/14/2014 3:36 PM (GMT -6)   
I'm really glad that you're going to get sorted! If you look on my profile you'll find my email address, just send me a message and I'll give you her address as I'm not allowed to post email addresses on the site.

All the best
LPR, Hypothyroidism, Glaucoma, Dry Eye Syndrome, Positional Vertigo

"We have invented our own valve now - so wish us luck!"

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 3/15/2014 7:31 AM (GMT -6)   
Hi GC,

Could you give me the information from your manometry please? Including your relaxation percentage?

I'm just curious because of my own dysphagia - hope you got the email that I sent
LPR, Hypothyroidism, Glaucoma, Dry Eye Syndrome, Positional Vertigo

"We have invented our own valve now - so wish us luck!"

GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 3/15/2014 9:36 AM (GMT -6)   
I got it- thanks! I'll send you a reply once I'm back in town in a week from Sunday.

Gondore
Regular Member


Date Joined Jan 2014
Total Posts : 119
   Posted 3/15/2014 10:51 PM (GMT -6)   
GroverCat, what great news! Please keep us all updated on the Linx Facebook group. I wish you all the very best!

GroverCat
Regular Member


Date Joined Mar 2013
Total Posts : 174
   Posted 3/17/2014 7:52 AM (GMT -6)   
Will do! I'm flying out there mid-August, so more updates after that...
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