Can GERD be extremely painful?

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Xianghua17
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Date Joined Jun 2003
Total Posts : 79
   Posted 3/21/2014 5:35 PM (GMT -6)   
I am having some issues. I have Crohn's disease and an ostomy. I have been in remission for 10 years, since my surgery. I have never had a problem with heartburn, in fact I can only remember a handful of times I've had it. about 6 weeks ago I developed some upper abdomen pain and extreme nausea. It got progressively worse. I've also had headaches, migraines, sometimes I get disoriented, back pains b/t the shoulder blades, painful burping, fatigue, and sometimes shortness of breath.

I've had lots of fun tests...CT scans, EGD, ultrasound of the gallbladder, blood tests...all with no results. I have been taking a PPI twice a day for about 2 weeks. It has helped with the burping and nausea but that's it. Does this sound like anything any of you go through or maybe heard of? All this came on all of a sudden...I don't know what to do.

Thank you in advance for anything you can offer.

aandy8
New Member


Date Joined Mar 2014
Total Posts : 6
   Posted 3/28/2014 3:26 AM (GMT -6)   
i hope you are feeling a bit better now, i have also had tests no answers as yet to my acid refux gerd

Wendy Workout
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Date Joined Mar 2014
Total Posts : 173
   Posted 3/28/2014 10:37 AM (GMT -6)   
Your symptoms sound GERD related but I'm not a doctor. I have had all your symptoms and more. Have they ruled out a return of your Crohns? Crohns can also tie in with reflux. You can also have silent reflux and not even know. Might just be that 6 weeks ago, your symptoms became more noticeable. I would suggest seeing your doctor and discussing your concerns. They can run some tests and/or give you a referral to a GI specialist.

Hope you feel better soon.
Debra

Alcie
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Date Joined Oct 2009
Total Posts : 4978
   Posted 3/28/2014 3:21 PM (GMT -6)   
Wendy has some good ideas. I agree with calling your doctor.

My experience was that I needed a better PPI. The OTC ones did nothing for me.

Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 3/29/2014 1:50 PM (GMT -6)   
I have an appt. with a GI specialist now and my regular GI has me scheduled to do a pillcam. I'm hoping for the best. I was taking 2 ppis a day but had to reduce to one because of my ostomy(the second pill wasn't digesting.) I now have 2 canker sores that feel just wonderful(sarcasm intended.) Thank you for your responses and help and I wish you the best also aandy8.

WJF
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Date Joined Sep 2011
Total Posts : 273
   Posted 3/30/2014 12:31 AM (GMT -6)   
Xianghua17 said...
about 6 weeks ago I developed some upper abdomen pain and extreme nausea. It got progressively worse. I've also had headaches, migraines, sometimes I get disoriented, back pains b/t the shoulder blades, painful burping, fatigue, and sometimes shortness of breath.


Your symptoms do not match GERD. Typical GERD symptoms are heartburn (pain in the chest area), sore throat, coughing, asthma, swallowing difficulty, bloating, indigestion, wet blurping, etc. Given all tests were non-revealing, it is strange to me that your doc prescribed a high dosage of PPI. You certainly should seek a second opinion.

ericapeace2000
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Date Joined Mar 2012
Total Posts : 1110
   Posted 3/31/2014 4:35 PM (GMT -6)   
You could have IBS. I have the back pains and the nausea in addition to heartburn. GERD and IBS seem to be intertwined. Try a low FODMAPS diet
GERD Moderator; Diagnosed GERD, possible IBS; Gluten free since 2012; low lactose since 2012

iplaycarvin
Regular Member


Date Joined Mar 2014
Total Posts : 102
   Posted 4/1/2014 4:28 AM (GMT -6)   
Research "Hiatal Hernia" on the internet.
You have described every symptom I had when I was having problems with my hiatal hernia.
As long as you are continuing to belch is a good sign you have a sliding hernia and not a fixed one. The latter can cut off blood supply to the stomach and will have to be removed surgically. The sliding hernias can be "dilated" during your endoscopy. I had to completely change my diet and lifestyle. I also have a shatzki ring over my hiatal hernia which is double the fun. Not.
GOOD LUCK!!
I Play Carvin Guitars! (Dave 53M)
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Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 4/3/2014 12:29 PM (GMT -6)   
I have an appointment with a GI specialist at MUSC in Charleston. I will definitely write down and ask them about all of your suggestions when I go. Thank you for all your help. It is so wonderful to have someone to ask and get helpful advice from because sometimes the doctors are clueless and need help getting the answers. :)

Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 4/15/2014 2:55 PM (GMT -6)   
Just got back from my GI...he says to go to the specialist but sounds like my Crohn's is flaring again... :(
Heather

I was diagnosed with Crohn's Disease in 2000.

I was hospitalized about 10 times between 2000 and 2004. I had about 9(or more) blood transfusions total.

Finally, in January of 2004 I was told the damage was too bad and I needed a permanent ileostomy.

I went through a healthy pregnancy in 2006-2007. I had a handsome 8lb 6oz baby boy.
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