I've never been worse

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Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 3/30/2014 1:38 AM (GMT -6)   
This is to certify that I've honestly never suffered in my whole life as much as the last few days. In the run up to my Restech probe, I've been asked to stop all meds - Gaviscon Advance and Mirtazapine basically - and resume as normal a diet as possible. Ever since doing so I've become the worst I've ever been. What concerns me though is that if the Restech probe comes back clear, who's going to believe me? I've even developed symptoms I've never had before now, all of which are related to GERD and LPR:

- A foul taste every time I burp, or simply by lying on my right side. It gets up my nose, I can feel it trickling through my throat, and it tastes like honeydew melon - not sure if that's bitter - and smells like vomit.
- A lump in the throat every time I burp.
- Liquid every time I burp. Also tastes foul.
- Heartburn and nausea. Immediately strikes when lying on right side, which never used to happen.
- More post nasal drip than ever. Worse after burping.
- Trouble swallowing my own spit.
- Constant ear "infections" and a brief burning in the nose after burping.
- Feeling full quickly
- Foul smelling flatuence
- Sheer depression.

Surely with all these grotesque symptoms alone, I qualify for surgery, even if the probe comes back clear? That foul taste reminds me of baked beans almost, but I could only get it to vanish after washing my mouth out, after that it came back the next time I burped. Burping is the reflux as far as I'm concerned, but I thought there wasn't surgery that can stop it? Does that mean I can never be cured?! I've considered IBS as a possibility because of my loose, foul bowels and because of the effects of Mirtazapine, but that doesn't worsen from sleeping on the RIGHT side does it? Honestly, that would be much better for me than GERD or LPR right now.

Even as I type this, I just burped up more foul tasting liquid. Why? Just why?! I'm sorry to sound so desperate, but this test next week could make or break me. Whether it comes back positive or negative, I'm pushing for the right to end my suffering by any means necessary. I refuse to suffer an entire lifetime with this, taking drugs that don't actually prevent damage being caused; I wouldn't wish this on the worst person in the world.

Post Edited (Daxter) : 3/30/2014 12:56:25 AM (GMT-6)


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/30/2014 5:38 PM (GMT 0)   
Good Morning Daxter,
 

I have been following your journey with GERD for some time and I do not recall if endoscopic visualization dx your GERD.  I am also following you in the A & P Forum.

The current gold-standard objective test to diagnose gastroesophageal reflux is the 24-hour ambulatory esophageal pH-metry. The variables with the peak sensitivity and specificity which are obtained from this test are: the total time with pH < 4 as recorded by a probe placed 5 cm above the LES, and a composite score.
 
A composite score is comprised of the following six variables:

1. total esophageal acid exposure time

2. upright acid exposure time

3. recumbent acid exposure time

4. number of episodes of reflux

5. number of reflux episodes lasting more than 5 minutes

6. the duration of the longest reflux

 

When the diagnosis of reflux is objectively confirmed, surgical therapy should be considered in individuals who:

1. have failed medical management (inadequate symptom control, severe regurgitation not controlled with acid suppression, or medication side effects)

OR

2. opt for surgery despite successful medical management (due to quality of life considerations, lifelong need for medication intake, expense of medications, etc.)

OR

3. have complications of GERD (e.g., Barrett’s esophagus, peptic stricture)

OR

4.  have extra-esophageal manifestations (asthma, hoarseness, cough, chest pain, aspiration)

 

I know you are having difficulties with your pre-test instructions so I am going to post a link for you From Cleveland Clinic.

According to this article,

How do I prepare for the 24-hour esophageal pH test?

  • Seven days before the monitoring period, do not take proton pump inhibitors: Prilosec (omeprazole), Prevacid (lansoprazole), Aciphex (rabeprazole), Protonix (pantoprazole), Nexium (esomeprazole), Dexilant (dexlansoprazole).
  • Two days (48 hours) before the monitoring period, do not take the H2 blockers: Zantac (ranitidine), Tagamet (cimetidine), Pepcid (famotidine), Axid (nizatidine); or the promotility drug, Reglan (metoclopramide).
  • Six hours before the monitoring period, do not take antacids (such as Alka-Seltzer, Gaviscon, Maalox, Milk of Magnesia, Mylanta, Phillips, Riopan, Tums or any other brands)
  • Four to 6 hours before your appointment do not eat or drink

http://my.clevelandclinic.org/services/esophageal_ph_test/hic_24-hour_esophageal_ph_test.aspx

I am not sure what your Dr. instructed you to do but you may want to check re your understanding of what you must give up and on what time line.

I hope this helps you in some small way.

Kindly,

Kitt

 


~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

Post Edited (stkitt) : 3/30/2014 10:41:06 AM (GMT-6)


rjdriver
Regular Member


Date Joined Dec 2013
Total Posts : 63
   Posted 3/31/2014 12:10 PM (GMT -6)   
Daxter,

You have been through a lot of struggle and pain, and I know how frustrating it is to have test after test and not have the doctors come to a firm conclusion and treatment plan that will get you back to normal. And we get so used to going to the doctor and getting a cure or treatment and the problem goes away, that it can be a shock the first time you are told that there may be no cure, you'll have to live with it, and here are the changes in diet and lifestyle you'll need to make or the physical therapy exercises you'll need to do for the rest of your life. I feel fortunate I got in to my 60s before that shock hit me.

So much of what you describe above seems to be brought to the forefront by gas and burping, I can't help but think that if you got that under control it would certainly make life more bearable while you continue testing to find out exactly what else to do. And so many of us with heartburn/GERD/reflux, etc. end up messing up our digestive systems just because of the drugs used to treat it, that if we didn't have IBS before, we are probably suffering from it now. So for what it's worth, here's what has got my gas and burping under control.

Every Morning:
2 capsules saccharomyces boulardii probiotic (other dairy based probiotics are fine, if you can tolerate the lactose)

With breakfast and dinner::
1 capsule Yerba Prima fiber

With every meal:
1-2 capsules Digest Gold digestive enzymes.

While I doubt this will work for everyone, it has definitely made the difference for me. I have a regimen of nutritional supplements that I take every day as well, any of which I can skip a day or two with and suffer no real consequences. But if I skip any of the above three, I notice the difference right away, the same day.

I have also started following the principles described in Fast Track Digestion (yes- another diet!) by Normal Robillard, who's theory is that excess bacteria feeding on excess carbohydrates causes gas and bloating in the stomach, which in turn causes heartburn and reflux. For those without actual physical causes(hernia, weak LES, etc.), he may be onto something. At the very least, it's way to handle excess bacteria without resorting to the over use of antibiotics.

He has analyzed all carbohydrates and classified them based on a "fermentation factor", or how likely they are to cause gas. So not all carbs are forbidden. For example, Russet potatoes are allowed. All other varieties are not. Jasmine rice is allowed, but most other rices are not. His book is an interesting read. First half is devoted to explaining the science behind his method, and the second to actual recipes and meal plans.

I wish you well.

Post Edited (rjdriver) : 3/31/2014 11:13:12 AM (GMT-6)

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