48 hour diary, Restech probe

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Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/2/2014 5:05 AM (GMT -6)   
Yesterday I had my Restech dx-pH probe fitted for 48 hours. For the benefit of anyone wondering how it all works, I will share my experiences here in varioys replies. Currently I am typing on a phone, so I won't put anything big yet, but I have plenty of notes and observations to share with you, and any feedback or logic behind my results would be excellent in helping others grasp their results too :)

I may also post a photo pf the device's 'user handset' if it's ok to?

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/2/2014 8:22 AM (GMT -6)   
The test is about 18 hours in. The probe leaves me with a slight "scratched" sensation inside the nostril it's been placed in, but otherwise it seems to be ok. I'm certainly not gagging anymore unless I speak - I recommend anyone who takes this test speak as little as possible. My consultant recommended the same, as it makes you gag or can simply hurt to speak. You don't want to accidentally shift the probe out of place from gagging it up again, slim a chance as there is of that happening!

The irony is, while on this test many of my symptoms are less frequent, like the nausea, burping and sickly taste. However that isn't too say they are totally absent, which means these results will be valid in the long run. I have read in research articles that the pH shouldn't go below 5.5 when you are upright, or below 5 when you're lying down, but this has to be taken with a pinch of salt. For example, one study showed healthy participants had "reflux episodes" recorded overnight although no actual reflux took place. Sometimes even swallowing may do this, although such a thing has yet to happen for me as far as I know. My readings certainly were lower while I was lying on my right side - since there's no restrictions to my activities and diet here, I've seized the chance to binge on the bad stuff! The lowest I've seen my pH fall to so far is 5.1 first thing in the morning. Keep in mind though that in a normal situation, my mouth - after hours of no food and only swallowing saliva - has a standard pH of between 6.0 and 6.7. This amount tends to suddenly jump up and down a lot, but this kind of value is apparantly normal in some people as far as I know, and it could be that my results only sank to a low number because my saliva is slightly acidic in the first place. It certainly scared me to see a number so low, but I have no idea what my values are while I was asleep yet.

Some things I have observed so far:

- Breathing through my mouth greatly affects the pH reading, even if only briefly. I assume that the water content of the air around me is to blame, and therefore the dampness of my room at night may have played a part in lowering my pH reading slightly.
- I'm pretty sure whatever I "burp up" is reaching the probe, as it pratically lands on my tongue. The pH so far has only slightly dropped by 0.1/0.2 at a time when this happens. Actually, it seems to drop more when I drink tap water or have no symptoms at all!
- I still have the "vomit" smell and a taste like baked beans from time to time. Neither has significantly affected the pH so far.
- Excercise has no true effect on my readings. Sometimes they rise, sometimes they fall.
- Saliva only raises my pH readings by 0.1 - 0.3, and even then only briefly while the swallowing is complete.
- During one incident, my pH dropped when I drank water, and raised to 7 for one of the first times during the entire test upon eating a banana.

I'm not sure if post nasal drip or suchlike would affect the results, but if it did I doubt I would've had the low numbers I observed first thing in the morning when I had plenty of throat mucus. That'll be just one of my many questions for the consultant when the follow-up appointment is organised. In the meantime, I've been worried my symptoms will return in full-force once the probe is gone! To counter this, my consultant has discussed organising a 24 hour impedence study and manometry for me within the next few months.

***

Any thoughts so far would be greatly appreciated. I'll post again tomorrow with more, and I'll also post about the end of the test.

Post Edited (Daxter) : 4/2/2014 7:27:41 AM (GMT-6)


Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/2/2014 8:30 AM (GMT -6)   
A little something I found about typical pH in the mouth. This calmed me down a little about my pH levels always being below 7 and occasionally becoming 5.9, although I'm not sure about sources/credibility:

"The pH range of the mouth is 5.6-6.9 slightly acidic, this is the environment in which amylase is most active in a human."

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/2/2014 9:01 AM (GMT -6)   
 
Great sharing - and even though you are not talking much you can still type - WTG.
 
I do hope your test proves to be definitive and you will have your answers to why you suffer so much.
 
It has been a long haul for you but keep on talking with the awesome members here in the forum.
 
 
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/2/2014 9:31 AM (GMT -6)   
stkitt said...
Daxter,
Great sharing - and even though you are not talking much you can still type - WTG.

I do hope your test proves to be definitive and you will have your answers to why you suffer so much.

It has been a long haul for you but keep on talking with the awesome members here in the forum.


Thank you very much, especially for everyone's help thus far, yourself included. This may not give me 100% of my answers, but it'll be a halfway point at long last, and at the very least.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/2/2014 9:36 AM (GMT -6)   
Daxter,
 
You are a great member of this forum - you are appreciated.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 4/2/2014 11:46 AM (GMT -6)   
Daxter-

Thank you for doing this. As you know many members ask how this test is. You are helping a lot of people by keeping this journal that can be referred to.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/2/2014 1:11 PM (GMT -6)   
Yikes, a mere 30 minutes after pizza my pH dropped to 5.6 - 6.0! Not low enough for reflux, but it also dropped early to ph 4.0 when eating yoghurt, so be mindful of acidic foods that stick to the probe.

My pH has stayed persistently in the 5.9 - 6.3 range. Out of pure curiousity I tried a swig of alkaline water, which rose the pH to 7. Seconds later - and while I still had a foul taste in my mouth - I tried a swig of plain tap water. The pH gradually lowered back down to the old range. This may tell me either my throat is this range normally, or that the water I frequent is slightly acidic.

EDIT: EEK. 5.5 briefly, but I was highly anxiois and swallowing less, any influence there?

Post Edited (Daxter) : 4/2/2014 3:25:23 PM (GMT-6)


Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/4/2014 7:43 AM (GMT -6)   
The probe is out and I am awaiting my results. All I can say is "OWWWWWWWW" that really hurt when the probe was removed.

I discovered a journal with some interesting information about results. A dry mouth/throat has a higher pH, which is why the pH is always lower at night, even when you don't have reflux - because saliva flow decreases. That said, I found myself swallowing a lot more than usual during this probe, and after burping. I'm worried my increased swallowing has affected the results somewhat, and that I'm in for a nasty surprise when I see what my results are like at night (i.e. when I swallow less). My advice to you all would be to try not to swallow as much as I have, unless you really can't help it.

I've noticed today my swallowing has decreased, and some of my symptoms are more noticable. There's still a horrid foul taste in my mouth and nose, which gets worse when I lie on my right side. It tastes like a cross between baked bean sauce and an overripe melon. When I notice its smell, it literally smells like vomit. Last week I sent off samples of the foul stuff to Peptest - once again it came back negative.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/4/2014 8:40 AM (GMT -6)   
 
I am glad the probe is out and sorry it was painful to have it removed.  Now comes the "waiting for your results" part.  Whenever I am waiting for test results I have learned to not constantly worry about when the results will come through or what if they are not conclusive - I let go of worrying as I know the worrying will not speed things along in obtaining my results.
 
Remember, my friend, one day at a time, one step at a time and do post in the A & P Forum if you are having trouble dealing with the anxiety.
 
We are always here to support you.
 
Kindly,
Kitt
 
 
 
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."
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