Paraespohageal Gas-bloat success stories - anyone!?

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Regular Member

Date Joined Nov 2013
Total Posts : 31
   Posted 4/6/2014 8:15 PM (GMT -6)   
Hi all,

I haven't written for a while but I am really struggling with my decision re: surgery. Paralysis of analysis.

I have a large paraesophageal hernia but only developed symptoms about a year ago. No miserable lifelong heartburn. No history of medications.

Many symptoms are gone or intermittent now due to lifestyle changes. I have upper chest pressure off and on, some epigastric fullness. Some of that has reduced with losing just a few pounds. I've consulted with several good surgeons (one with a nightmare personality!)

My situation is definitely not considered emergent. Two surgeons recommended the Toupet in the next year or so based on my tests (one suggests the hybrid Nissen-Hill). I'm 60 and otherwise in decent health, though under lots of other stress. I've had pretty well-controlled ulcerative colitis for over 30 years.

I can't find anyone who will just do gastroplexy (like circui had).

There are other considerations that I won't go in to, but since I have minimal symptoms and those are primarily atypical, I know it is likely that while the structural defect will be repaired, there is a good chance I will have new symptoms I have never had before.

My main concern is permanent (or late developing) gas-bloat syndrome.

I've read a lot here and on Pubmed.

But I need a shot in the arm of hope. The docs make no guarantees, but I know they are all solid surgeons who have done many of these procedures.

Is there anyone out there in my demographic with a type 3 hernia and minimal symptoms prior to surgery who has NOT had the gas-bloat syndrome long term?

I am terrified of the surgery, but I am more concerned about living a normal life after the first 6 months or year.
Also, being able to eat normally after the healing has taken place. I love fresh vegetables and other gas-producing foods!!

I really would be grateful for any responses or feedback.


Veteran Member

Date Joined Oct 2009
Total Posts : 5028
   Posted 4/7/2014 6:06 PM (GMT -6)   
Welcome to the forum, YinYanger.

From my experience with my own GPEH, I would recommend getting the surgery. Having the stomach in the chest is dangerous. It can twist, and then that's it. I could feel my stomach trying to roll when I turned over in bed. You've done the right thing in getting more opinions. Since they seem to agree, I, personally, would have to trust them.

I was a bit over 60 with my Toupet. I was not in great shape because my stomach was shoved into my chest by a wreck and I had other injuries. The operation is more involved than the ordinary Nissen because of having to pull down the stomach, but it's done regularly and generally successful.

I'm not sure WHY they won't just pull down your stomach. Maybe because it will be hanging around loose after freeing up the esophagus to make it long enough to stay below the diaphragm.

As for gas bloat - I had it for a few months, but it went away. I regained my ability to burp because of having the partial wrap (Toupet). I can't vomit though. I felt all along that the surgeon got the wrap just right, even though one young resident wanted to do a dilation. (Don't allow that unless it's absolutely.) I still eat gassy veggies with caution, but am eating more all the time. Mostly, I can eat anything now that I could eat before the surgery.

You are right that this serious a surgery will take time to heal. At least in my case it was a good thing to have done.

Regular Member

Date Joined Nov 2013
Total Posts : 31
   Posted 4/7/2014 6:32 PM (GMT -6)   
Thanks so much Alcie.

I truly appreciate your reassurance and have read many of your posts. I was warned about the gas-bloat by two of the surgeons; another noted the minimal chance of being able to burp again. In my case, they consider the risk of incarceration/strangulation low - but still think it should be done while I'm young and healthy (LOL!)

I was little surprised by the manometry results (and Toupet recommendation.) My esophagus is a bit on the short side, but should not require the additional procedure.

It's so hard because my GI is highly regarded, but brand new to me and we have no relationship. I had just switched when this surprise diagnosis occurred.

As to the wrap, haven't you noticed that most of these surgeons recommend a wrap of one type or another?

Anyway, thanks again. I really appreciate the reassurance re: the after effects and ending up forever changed.
You do a lot of good here.

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