Hi Andy thanks for your reply,
I am still waiting to be put on Domperidone, the consultant still hasn't sent letter to gp and its now three weeks since mt appointment.
I will try what you suggested ,I'm open to all suggestions , anything for relief.
How long have you suffered? And what set yours off ?
I feel at the moment it has taken over my life, I can't think of anything else, have no interest in "normal" life or should I say what used to be my "normal" life! Ours was a very social life always going out to eat which I can't do now. Feeling very depressed .
Thanks again for your reply, Jen
Just go to your GP and ask for domperidone saying you have reflux, mine was prescribed by a GP without the specialist saying anything, so they should be ok to just prescribe it. I only really noticed the difference once I went onto 20g 3x a day, was started on half that though - food no longer got stuck on the way down and reflux decreased as long as portion sizes where modest.
Mine all started 2 years ago, it actually started with stomach problems and the reflux came later, but my life pretty much ground to a halt. Drs took so long to even listen to me, they first diagnosed me with anxiety, which I was suffering with as well because I didn't know what was wrong with me! Not knowing and suffering for months sent me into clinical depression, until finally I had a diagnosis, was given the proper guidance and treatment and managed to get my life back on track, that was about
6 months after it started because Drs were just so slow to tell me what was wrong.
I also went through the stage of being able to think of nothing else but the pain, even when I didn't actually have reflux I would just think about
it all the time. I put it down to my anxiety and depression, it is a huge struggle to get out of the mindset but the thing that helped me most was going back to work and just focussing on something else. Slowly but surely my life stopped revolving around being ill, and instead I had other things filling my mind without even trying. Its like resetting your minds 'default' thoughts from reflux to something else. Of course that's only really possible once the symptoms have gotten more under control so that should be the first priority.
Eventually, even though I had symptoms (but milder), I found ignoring them relatively easy because I had other things to focus on - interests I could pursue even if I was feeling off (like stuff I can do on my laptop).
If you are ok with runny foods like soup I would stick to that for now, just to get you feeling physically and mentally better. I found that I started super strict at the beginning of my recovery then when I felt better I could be more and more relaxed with what I ate without much problems. But I always ended up overconfident and pushing it too far as well so Id take care!