Worse worse worse since Esomeprazole

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Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/22/2014 10:09 AM (GMT -6)   
What hope do I have now? I've been on Esomeprazole ever since a positive Restech test, as this is apparantly the only way I'll ever be eligible for surgery, despite having been on 4 different acid reducers in the past. Just like all the other 4, I feel atrocious, practically knocking on death's door. And just like before, despite the evidence saying otherwise, I keep getting told it's all in my head. WHAT THE HELL?!

-Trouble swallowing anything.
- Virtually no saliva produced.
- Dry throat no matter how much I drink
- More mucus in throat than ever.
- God-awful taste.
- Tasting what is in my throat
- Tight throat.
- Gurgle-burping.
- Ear liquid/pain
- Nose pain
- Burning throat
- Headaches/Migraines
- Nausea/Indigestion.

And more...

The supposed "Best possible medicine for reflux" has made me 100 times worse, but I'm not allowed to stop it, because everyone is believing the GP over me and the research I've done. Gaviscon Advance is also making me worse, especially the bad taste and trouble swallowing, alkaline water is doing nothing to help, vitamin d3 still hasn't kicked in after 10 months of taking it, and my diet is as strict as I can make it. But because I already had anxiety, it is being written off as anxiety. NOTHING IS WORKING. PLEASE HELP ME. I'm on the verge of demanding someone to harm me as a form of RELIEF from this pain.

EDIT: If it isn't obvious, I'm overwrought, broken, confused and in so much pain. I can't live like this, but it could be months before anything happens for me. As it stands I can't go for the job I want, I can't eat/drink as I want, I can't even lie down to sleep properly. I NEED HELP.

Post Edited (Daxter) : 4/22/2014 10:10:25 AM (GMT-6)


toritone
Regular Member


Date Joined Apr 2014
Total Posts : 40
   Posted 4/22/2014 11:46 AM (GMT -6)   
Where ae you located? I too had doctor's that didn't listen to me either (read my post that I just posted prior to this, title Newbe Chronic Cough)
I found an amazing doctor, if you are in the NY area, although when I am in her office, I hear the receptionist making appointments for people, from as far away as Texas.
Check out her site http://www.voiceinstituteofnewyork.com/
I do not work for her, so by all means this is not a solicitation, but she had me in tears when she listened and diagnosed me, when so many others wouldn't and couldn't
Good luck to you

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 4/22/2014 11:53 AM (GMT -6)   
toritone said...
Where ae you located? I too had doctor's that didn't listen to me either (read my post that I just posted prior to this, title Newbe Chronic Cough)
I found an amazing doctor, if you are in the NY area, although when I am in her office, I hear the receptionist making appointments for people, from as far away as Texas.
Check out her site http://www.voiceinstituteofnewyork.com/
I do not work for her, so by all means this is not a solicitation, but she had me in tears when she listened and diagnosed me, when so many others wouldn't and couldn't
Good luck to you


I'm in the UK; I'd love to see Dr Kouffman but I can't afford the ticket to New York! :p

Could this be hypochloridia? Can stress cause that?!

corgislover
Regular Member


Date Joined Oct 2013
Total Posts : 22
   Posted 4/22/2014 12:08 PM (GMT -6)   
Hello Daxter,

Like you, I have LPR (diagnosed by Restech test and the usual other tests). At my worst, I had many of the same symptoms as you mention above, although not all of them. I tried to find out by looking at your posts, but could only go back 10 posts. Here's my question. What diets have you tried? The reason I ask is I've had some success with a few of them. I've been on Jaime Koufman's Dropping Acid, Norm Robilliard Fast Tract, Body Ecology, and now the Whole 30 diet. I'm on Day 16 of the Whole 30 diet and my throat no longer burns. That never happened with the other diets. I'm also sleeping quite well. I still have the mucus but I expect that could be the last to go away. I'm cautiously hopeful. I wasn't going to mention it until I'd been on it longer (it's a 30-day plan so I'm only half-way into it), but I'm feeling so much better and you are obviously suffering. Here's the book: It Starts with Food by Dallas and Melissa Hartwig. Here's a website that explains it further: http://www.whole30.com/ It isn't written specifically for GERD/LPR. It's base is Paleo. I've taken what I learned in other books (listed above) and tweaked it a bit. I don't use trigger foods and modify some of the recipes so they'll work for someone with LPR. I couldn't be more surprised that it is working for me. I really didn't expect it to. It remains to be seen if it continues to help, but other than giving up sugar, dairy and grains it's the most positive thing that's happened in 3 years. There is a support network built into the plan which I really like. And you can document your progress as you go. The first few days were difficult for me. I had nausea and headaches for a few days and digestive issues. That has since gone away. But gradually, I noticed my throat started improving. I'm taking 2 enzymes with each of 3 meals a day. I think that has helped too. Nothing else. Just food and enzymes.

It sounds like you've tried diets before, but I thought I'd mention it since you are suffering so much. Even if it just decreased your suffering until you can have the surgery...

I'm not able to tolerate PPIs either. I've tried 4 of them. None of them helped. And I'm not ready to try the surgery. I fear it won't work and then what? It doesn't seem to always work for people with LPR. My doctor wanted me to see a surgeon to start a dialogue but I decided to try Fast Tract first. It helped. Reading the book was an eye opener. But after two months counting fermentation potential, not a whole lot of change. My next stop was to contact Norm Robillard for a consult. That's still a possibility if I don't continue to make progress on the Whole 30. Then someone on this forum mentioned Whole 30. I had never heard of it so looked into it and decided to give it a try. So that's the short version of my story.

I really hope you find something that helps you Daxter. Even if it's just to get you through until you can schedule the surgery.

Sunshine99
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 4/22/2014 3:47 PM (GMT -6)   
Hi Daxter,

Was your Restech test positive? If so, why are you being told this is in your head? I can't handle PPIs either. I am in the processing of tappering off them. I have not been on them that long, but they give me rib pain and make some of my symptoms worse. You may want to consider tappering off.

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1178
   Posted 4/23/2014 3:42 AM (GMT -6)   
Its strange that the gavicson makes you worse. Does it make your stomach worse too or just the throat?
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity
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