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toritone
Regular Member


Date Joined Apr 2014
Total Posts : 40
   Posted 4/28/2014 11:45 AM (GMT -6)   
I was very compelled to write, when I read the negative comments about Dr. Koufman, from people that have not even seen her.
I suffered from a chronic, choking and dibilitating cough for 30+ years, I am now 50. I have been to many specialists, including allergists,gastroenterologists, pulmonologists and ENT, and given many different diagnoses and many different meds that did not help me. They did not help because I did not have Asthma, post nasal drip, Sinusitis etc., or even GERD.  That was until  2 years ago when I discovered Dr. Jamie Koufman.
She was able to predict what I had before the tests, which was not only LPR but Vagus Nerve damage and a paralized vocal chord, just by her questions she asked and listening to me. Her extensive in office testing proved her predictions. I left there crying out of happiness that someone was actually going to help me.
With the medication, especially Ranitidine for the vagus nerve and her Induction diet, I had significantly improved. Unfortunatly I can not tolerate many of the reflux meds, and I have significant damage from all those years with no treatment, that she has recommended me for surgery. I see the surgeon this Thursday.
My husband is also a patient of hers, after he passed out a few times and landed in the hospital. He too seen many doctors, including ones mentioned above and a Cardiologist. They basically said nothing. One doctor actually told him his neck was too large, not his throat but his neck!!!
When Dr. Koufman scoped him, she couldn't believe that he was still breathing, that the opeining of his throat is like a slit.  He has now been on her induction diet for only 1 week and the meds she prescribed and not only has he lost 10 lbs, which was needed, he stopped snoring, stopped coughing and is breathing so much better. I can't wait to go back to see what is throat looks like now.   
Some may also think she treats everyone the same. That is not true either. My husband has Reflux but does not have nerve damage or a paralized VC, therefore she is not treating him the same as me. He is even taking different meds and differents doses of the reflux meds.
 
By the way I have read posts that she doesn't take insurance and she is all about money. As long as you have out of network benefits, she works with you. AND her expensive book someone mentioned was given to me, and I am sure too many other patients.
No one doctor is for everyone, but to me and my husband and countless others, she is our miracle. We live on Long Island, so we have many many excellent doctors close by, but like I said no one diagnosed either one of us correctly before.
I came on this site for support and education from people that have gone and are going through the same thing, especially the surgery, not  to brag about the doctor I am  fortunate to see, or hear bashings about her, but I had to write this.
If you have an excellent experience with a doctor, or a really bad one or treatment, then I would love to hear it. But please don't talk bad or good about someone you never have seen as a patient by not liking her book. That doesn't help any of us.. We are all here for advice, help and  support.
Toni-Ann
 
 
 
 

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/29/2014 7:10 PM (GMT -6)   
I've seen her before,

She put me on 40mg twice a day protonix, 4 a day zantacs and 100 mg up to 4 times daily of gabapentin.

I was told that I wasn't the worst patient and I wasn't the best patient she saw, but she said my VC was paralyzed.

What meds did she put you on and you husband?


Right now I'm not taking any meds... Meds don't work for me. I feel the same off them.

toritone
Regular Member


Date Joined Apr 2014
Total Posts : 40
   Posted 4/29/2014 7:33 PM (GMT -6)   
Sorry you are still not feeling well, and like I said above the reflux meds are not working for me anymore. I am only on zantac 4 times a day now since im going to the surgeon and amitriptyline 40mg, thst is for the nerve damage. That med really helps with that. My husband is on protonix, zantac and gaviscon advanced and on her induction diet. His swollen throat was the worst she and her office has seen and told him he would die if he didnt take this serious. Only a little over a week and he is so much better. Are you still seeing her and did you give other meds a try? Has she suggested surgery? She suggested it for me because i havebeen sufferring way too long.

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/29/2014 9:49 PM (GMT -6)   
I gave them a decent try. I pretty much was on similar meds as what she prescribed me from going to mayo minnesota. so I only stayed on her regime for 3 to 4 months. Didn't notice much improvement so I hopped off them.

Im not sure what to do... May start up on the anti-ds for the nerve damage but after 3 months of taking it, I would think I'd see some benefit.
-TheSickness-

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 4/29/2014 9:51 PM (GMT -6)   
I just ordered some GA from the UK. Hoping to just take that... I've been off all meds for about a week now and have been getting pasted the rebound from a years worth of ppi's with the american gaviscon.
-TheSickness-

Eleanor99
New Member


Date Joined May 2014
Total Posts : 18
   Posted 6/12/2014 8:05 AM (GMT -6)   
Hi Toni-Ann, I saw Dr. Koufman and had a horrible experience with her.

toritone
Regular Member


Date Joined Apr 2014
Total Posts : 40
   Posted 6/18/2014 11:05 AM (GMT -6)   
sorry to hear that Eleanor. No one doctor is right for everyone, but she was my life savior.
 
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