Is carafate making my gastritis worse?

New Topic Post Reply Printable Version
40 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 4/30/2014 2:18 AM (GMT -7)   
First of all, sorry if this sounds like the ramblings of a lunatic, but after weeks of problems it drives even the best of us a little crazy!

Im going through a bad bout of gastritis atm and over the last couple of weeks it doesn't seem to be getting better. I'm pretty sure its not an ulcer - no blood and not much pain, just nausea and discomfort - having h-pylori test too.

In the past I have never had so much trouble with food as I do now (even before I went on PPIs), I cant even have a piece of meat without stomach being worse and am just eating rice and spinach + some other veggies, sipping at gaviscon and on every medicine conceivable.

I was looking over my notes and when I first started on Carafate, after a week my stomach had gone from fine to bad. It slowly got better, I thought it was more coincidence, or something I ate, than the carafate.

But one thing I always notice when disolving carafate and drinking it is that it gives me a heartburn type sensation - I never thought much of it, thought it was just because I could feel the particles sticking to the esophagus. And it has never given me any stomach upset immediately after taking.

Over the last few months I was completely off Carafate as my stomach had been ok and then I had a long period where my stomach was never better, I was eating and drinking all the "wrong" foods like deserts, orange juice on empty stomach, fish and chips, without so much as a rumble. Clearly I was going overboard and it finally caught up with me after a half tub of ben & jerrys chocolate brownie ice cream.

I wasn't too bad after it, painful at first and some nausea for that week, but only on and off but I immediately controlled my diet again. Thats also when I started back on the Carafate 4x a day and I've just never recovered, only got worse, despite an incredibly bland diet.

I searched a bit but can't really find any anecdotes of people that have these kind of problems with Carafate. But then I think about what it does, kind of like putting a plaster on your stomach. I know when I put plasters on cuts they dont heal the same way as without, they dont develop that resistant coating so when you take off the plaster the cut is still sore to touch. Maybe my stomach isn't renewing its protection properly because Im constantly coating it with something that does the job for it?

Am I crazy or does it sound like I should try coming off the carafate? Im already taking PPI's, Zantac and Gaviscon like candy which have recovered my stomach in the past, Im just terrified of making it worse.

1039smooth
Veteran Member


Date Joined Sep 2013
Total Posts : 1982
   Posted 4/30/2014 5:24 PM (GMT -7)   
Man, that was like me talking minus the Carafate. Sadly, I know nothing about it.

I know this is of no consolation, but based on everything else you said, I know how you feel.
LapNissen Fundoplication, 8/9/13
GERD, Anxiety, Depression

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/2/2014 2:57 AM (GMT -7)   
Well I've been off the Carafate for a couple of days. Hard to tell whether I'm feeling any better to be honest but I'm not really feeling any worse so thats a plus. I guess I've been doing better than at the start of the week because on the way to work this morning I wasn't hoping a bus would run me over!
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

Cons
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 5/2/2014 6:21 AM (GMT -7)   
I have never posted but have been reading the posts from time to time and have to comment on this one, Andy! I have such similar symptoms.

I had my gallbladder removed a year ago and since then I have had pain right under my breast bone smack in the center of my body. Pain like someone punched me!

The pain at the time I went for the tests was also a tremendous burning all in the esophagus and stomach area.... I went for several tests and one being the scope came back with an inflamed stomach lining.

I was put on Carafate( 4 times a day) and Zegrid (2 times a day) The burning has all stopped, I feel like you where I could finally go eat a pizza or something fun... but the pain in my stomach is still so bad I can not allow myself to even think fun food, or wine!

The problem is they can not find anything in these tests that is causing this! It is random times, sometimes tied into when I have had a meal or sometimes with no food. Sometimes as you said you feel great, and then bam out of no where it comes back.

They told me it takes 2 months to heal a stomach like mine was and I am in my 5th week of smoothies, bananas, baby food, rice and occasionally a few bites of chicken. Has anyone had this and come through where it is completely healed and you can eat again?

My life was chips and salsa from my favorite mexican restaurant 3 times a week as my nightly snack and I miss it so much! They said especially NO popcorn, NO salad, NO tomatoes.... that is why I am where I am because that was my diet leading up to this! I would love to hear from anyone going through this...

Edited to provide text breaks for easier reading.

Post Edited By Moderator (dencha) : 5/2/2014 7:44:28 PM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 5/2/2014 6:55 PM (GMT -7)   
Hi Cons and Andy,

I have a reactive stomach, and before my Nissen surgery, that stomach inflammation would lead to esophageal inflammation as well, due to reflux.

Cons, YES. There is light at the end of the tunnel. Even before my surgery, after careful eating and lots of patience, my stomach/esophagus would heal and I'd go back to eating normally. Now that I have had the Nissen, though, my stomach will be irritated, but without the reflux/esophagitis, it is much less painful, and doesn't take as long to heal.

I am never without Carafate suspension. It has been a lifesaver in my situation. When my esophagus was involved, the Carafate would provide immediate relief. It makes my stomach feel much better as well. I generally don't get in all four doses (it's hard), but even two or three are helpful. One trick to getting in an extra dose is to do it in the middle of the night.

The thing to remember is that your stomach mashes food as part of the digestion process. Therefore if you have rough or harsh foods in there (like popcorn) you will be irritating it further. Take small bites, chew, chew, chew, and don't swallow anything that doesn't reach a creamy consistency.

I found egg custard to be a great food during the worst of the irritation. It's high in nutrition, and very smooth. No alcohol, acidic foods, spices. (Yes, Mexican is out for a while.)

I do follow my GI doc's advice, though. He said to wait two weeks after my stomach feels perfect before introducing more challenging foods. This healing thing takes a lot of patience, I know. It's a bummer, and no fair, but that's life. We all have our cross to bear, like it or not, we have reactive, sensitive stomachs!

I am an example of someone who has/does get intermittent stomach irritation, but who once it's healed, can eat completely normally (including popcorn and Mexican!

So hang in there! Andy, if you can get the liquid form of Carafate I think you'll find it works better. I've used both, and though its more expensive, if you can afford it/have good insurance, it's worth it. I don't see how the Carafate is the thing that is bothering you. Though I know everyone is unique, it has only ever helped me.

Happy healing,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Post Edited (dencha) : 5/2/2014 7:59:42 PM (GMT-6)


Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/3/2014 1:33 AM (GMT -7)   
Cons, I think your problem is common after gall bladder removal, bile sometimes gets into the stomach because you have no gall bladder. Carafate is good for this as it binds to bile so hope it works for you.

Think ill give it another day and if im no better ill try taking the carafate again but just at night. It seems im always worse after my stomach has been empty a while.
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

Cons
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 5/3/2014 11:15 AM (GMT -7)   
Thanks to you both! I have been so down about all of this and you both have given me hope that someday I will eat normal food again! I am so happy you both wrote to me! I want to tell you that I read somewhere on a blog that this man said he sets his alarm on his phone for 6:30am , 11:30 am, 4:30pm and then takes one before bed on the Carafate and that is what I have been doing. It is wonderful because I am not forgetting anymore! Andy, I do think the liquid might work for you as Denise said. I have heard it is very expensive but maybe try it for a while then go back on the pills. Mine was very bad on an empty stomach a few weeks ago, but now that the Carafate is helping I feel better on an empty stomach. I also want to tell you that I carry baby food in the car with a plastic spoon for those times when it is empty and I need a little something! Good luck to you !

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/4/2014 1:27 AM (GMT -7)   
Well I decided to go back on the Carafate yesterday, cant say I notice much difference but not feeling worse.

I had an epiphany yesterday, that maybe having plain brown rice for every meal isn't the best, because unless chewed for an absolute age it is still quite coarse, so I switched to some mashed potato yesterday and that seemed to go down ok, think Ill have that as my main carb source from now on instead of rice.

I screwed up this morning though, tried soy yoghurt for breakfast, seemed to go down ok but after a while my stomach was getting more and more irritated. After a quick search soy yoghurt is quite acidic with pH 4 so I;ve just aggravated my stomach again argh. Its been two weeks now and Im feeling no better.
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 5/4/2014 6:07 AM (GMT -7)   
Hi Andy,
Your decision to switch to mashed potatoes is an excellent one. Yes, rice is going to be irritating, especially brown rice. It's good for you, but not for your stomach right now.

Patience! :-) I hate to be depressing, but we are talking about months here, not weeks for healing. For some reason I don't understand, healing G.I. tissue takes a long, long time. I wish it wasn't true, but it is.

Each incident that I had, would take 2 to 3 months to heal. And that's if you do everything right. You are not likely to see any improvement with the Carafate, until much longer than a few days. It takes consistent use, and consistent care to put only smooth things into your stomach. Stick to smooth bland foods, and drink plenty of water if you can.

Are you taking a PPI? It is best to use the highest dose you're allowed during this time, (if you tolerate PPI's) as you will want to keep the acid in your stomach at a minimum. You should consider adding Zantac at bedtime as well. During those times when my stomach is irritated/gastritis, I take 40 mg of protonix twice a day, an hour before breakfast and hour before dinner, then 300 mg Zantac before going to bed, until things heal. Your stomach will need all the help it can get.

Hang in there, you will get this healed. But it takes time and patience. Do your best to get four doses of Carafate in each day. It was a drug that was developed to coat the stomach and protect it during healing of ulcers, so even without ulcers, it will give you some protection. It is just one more tool in your healing tool box. Good luck! You can do this!

Take care,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/5/2014 1:05 AM (GMT -7)   
Well for the first time in 2 weeks I had a period of my stomach feeling ok yesterday, I've just been eating mashed potato and I definitely notice the difference when walking around afterwards, its less painful. I've also started adding bicarb of soda to my water and drinking it fairly often and it seems to be helping too.

Im on 20mg of Nexium 2x a day at the moment, and taking 300mg zantac before bed and definitely notice the difference when I forget to take it.

This morning has been a bit better so hopefully the mash is doing the trick and I can actually start to heal, never had it go on for this long without some sort of improvement before.
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

pazshalom
Regular Member


Date Joined May 2014
Total Posts : 75
   Posted 5/6/2014 9:15 AM (GMT -7)   
Andy1986 said...
Well I've been off the Carafate for a couple of days. Hard to tell whether I'm feeling any better to be honest but I'm not really feeling any worse so thats a plus. I guess I've been doing better than at the start of the week because on the way to work this morning I wasn't hoping a bus would run me over!
 
Dear Andy,
 
I am new to this board. I was reading the posts , but your words made me to send you a big hug. I will be praying for you and for all here. I am dealing with acid reflux also. We are together in this!

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/7/2014 9:23 AM (GMT -7)   
Thank you for the support paz. The one good thing to come out of all this over the last couple of years was I realised I wanted God back in my life after being disinterested for a long time. I was confirmed a Catholic 2 weeks ago :)

I've recently switched from Gaviscon liquid to Tums tablets and they seem to be nicer on my stomach, some of that Gaviscon liquid is so strong it burns my mouth so I can only imagine what its doing in the stomach. Also the anti-gas part should help, I've been drinking bicarb water a lot but think I then get gas pains so it isn't perfect.

Im going back to the drs in two days and think I will ask to switch to Dexilant from Nexium, I don't see how the PPI can be working properly if I get burning in my stomach every time after only eating mashed potatoes, so hopefully that suits me better. Also I really notice the difference when I forget to take Zantac so not convinced the Nexium is that effective anymore.

Will also get my h.pylori result but thats always negative so not expecting much from that, but would be a nice plus if it was positive and I had an explanation for all this!
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/8/2014 8:11 AM (GMT -7)   
Well I spoke too soon, the Tums did nothing for me this morning, my stomach was burning so much. I just dont know what to do, I can't go on like this, almost 3 weeks now and there is no improvement at all. I feel like the meds aren't even working.

Im so desparate Ive been sucking the contents from my stomach into my esophagus to get relief, it gives me heartburn but I just cant take the burning stomach anymore. :(
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

Sunshine99
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 5/8/2014 9:39 AM (GMT -7)   
Hi Andy,
 
Nexium is a really stong medication that may be causing you more problems.  You might want to consider getting off it.  If you started with mild reflux/gerd, you probably don't need the meds.  I also have a sliding hernia, but I got off the meds becuase they made me a lot worse.
 
Talk to your doctor about something other than a PPi that might help you.
 
Good luck!

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/8/2014 10:22 AM (GMT -7)   
Now you say that, I am always worst the meals after taking Nexium, morning and evening. I thought it was to do with not having the carafate for that meal but makes me wonder.

My stomach problems started long before I was put on PPI's, and when I came off them my stomach rebelled massively. Can't say that it improved when I went on PPI's though. After I last came off PPIs and then went back on them my stomach actually settled down, reflux was still terrible though. My stomach has actually been ok since then, but that has been through a strict low fat diet for about 6-12 months then I gradually started adding back in treats. Then everything just fell over.

To be honest I never got much relief from omeprazole, drs acted as if it would give me instant relief but I just never found that. it could be that it just isn't that effective on me and that I healed because of all the Gaviscon I was downing and simple time. My last dr once tried to switch me from omeprazole to pantoprazole so clearly they had the same idea, I gave up after a few days because I was having more pain on pantoprazole though.

I feel like the Nexium just isn't working, how can I be in pain for 3 weeks from eating mashed potatoes while taking 40mg Nexium, carafate, as well as about 5 other home remedies for gastritis. Its not an ulcer because the pain isn't bad enough, just an endless burning sensation.

Gonna see the doc tomorrow and ask to switch to lansoprazole. I read a couple of forums online with people that made the switch and saw immediate benefits so Im just praying to God that its a problem with the Nexium and Ill see improvement on Lansoprazole.

If it is that then hopefully I can come off PPIs altogether in a few months when Im all healed up.

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/8/2014 10:52 AM (GMT -7)   
p.s. I just had an aloe vera capsule before a meal and unbelievably, have just eaten dinner without burning so far for the first time all week, despite the rest of today being a literal nightmare! Fingers crossed I've found something that helps.
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

pazshalom
Regular Member


Date Joined May 2014
Total Posts : 75
   Posted 5/8/2014 12:41 PM (GMT -7)   
Dear Andy,

Your information is so helpful. I am learning little by lttle. We pray that the new medicine works super well!

Please tell us what did the doctor say. Hope all is getting better and better every day! We are all in the same boat , and we all are going to get better! May the Lord heal us all.

pazshalom
Regular Member


Date Joined May 2014
Total Posts : 75
   Posted 5/8/2014 12:44 PM (GMT -7)   
Dear Andy,

Your information is so helpful. I am learning little by lttle. We pray that the new medicine works super well!

Please tell us what did the doctor say. Hope everybody is getting better and better every day! May the Lord heal us all.

Sunshine99
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 5/8/2014 3:26 PM (GMT -7)   
Hi Andy - When you see your doctor ask if he or she can tell you if you have reflux/gerd/or some esoph problem that is shown via testing evidence.   I am just trying to help you.  If there is no sign of any of this, taking a different med won't make a difference.  If there is evidence of this, then it is worth switching to another med.    Good luck!  I hope you find relief! tongue

Cons
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 5/16/2014 2:27 PM (GMT -7)   
Hi Andy,
I am checking in and I see your still having trouble. I am too, but the carafate is working! I have been on it for 4 weeks now and I can feel the difference. Denise is right, the less you eat and the smoother the food the better you're going to get. I was doing really, really well only eating smoothies, yogurt, bananas, oatmeal with bananas sautéed in Manuka Honey and white rice (although I just read that that is irritating!) BUT Mother's day came and my daughter made a delicious meal and I could not help myself. Felt fine for a few days... then bam! Right back to square one! So now I am back on my crazy weird diet and hoping to get back to feeling better. Doctor said this does take a very long time to heal and he said to stay on my bland soft diet another month..... I had a CT scan and it showed a thickening in my intestine and the doctor now wants to do a colonoscopy on June 2nd. Going to follow through and do it because he said it is a symptom of Crohn's , I also am going in for a special blood test only done at my hospital. I am telling you because it may help someone on this site, or you! I might have said that I am on 2 zegrid a day and 4 carafate . Hope you find some relief.

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1111
   Posted 5/17/2014 8:12 AM (GMT -7)   
Hi Cons

Yep Im still having trouble, still taking the Carafate but I tried some Aloe Vera yesterday and it sent me back to square one, burnt my stomach. Am a little better today though my stomach burns lightly after every meal.

I wish I could eat smoothies and yoghurt, I tried some yoghurt the other day and was in pain for 2 hours, apparently yoghurt is acidic and my stomach can't take anything even mildly acidic now. Im pretty much living on mashed potatoes.

One thing I found really helped is DGLiquorice, I take it before bed and have noticed a big difference when I wake in the morning. I read it stimulates the stomach to produce more mucus and lining.
GERD, Anxiety, Depression, Rolling Hiatus Hernia, Esophageal Hypersensitivity

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 5/17/2014 10:08 AM (GMT -7)   
Hi Andy,

Have you tried egg custard? It was a lifesaver for me, and was the only thing I could eat without pain at the worst of my gastritis/esophagitis issues. Here's a recipe, in case you want to try it:

8 eggs
5 c. milk
1/2 tsp. salt
1 c. sugar
1 tbsp. vanilla
a little ground nutmeg

Bake in a pan of water/water bath
@375 for 1 hour
You'll know it's done when a knife comes out clean
(no milky substance--it'll be a bit wet).
You can also tell by how jiggly it is!

Be sure to grease/spray the pan before pouring in the custard mix.

Of course if you want to make less, you can halve all the ingredients. I was once hospitalized for GERD/gastritis/asthma, and it sustained me. Fortunately, the hospital kitchen had it in pre-made containers, and I subsided on egg custard and bottled water.

Give it a try, if you're not egg/milk sensitive!

Best wishes,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

librooks
Regular Member


Date Joined Dec 2013
Total Posts : 40
   Posted 5/17/2014 11:03 AM (GMT -7)   
I had problems with the liquid Carafate/Sucralfate. They add other ingredients to it to make it more palatable to drink. The ingredient that caused problems for me was sorbitol, which they use to sweeten the liquid. Sorbitol is known to cause gastric distress. There are some other chemicals in there too, artificial color, etc. It burned as it went down. When I switched to the Carafate pills (which don't have all those extra ingredients or sorbitol), I had no problems. I mix it with water until it dissolves.

willard65
New Member


Date Joined Jul 2014
Total Posts : 1
   Posted 7/13/2014 12:32 PM (GMT -7)   
Hello, i just joined the forum and I'm not good with this stuff, but so far it's been very informative, I was just reading a chat and the "dissolve carafate in water" was mentioned again. I tried this with hot water but got mostly a suspension vs a solution. I'll see if my insurance will cover liquid rx. Also i had my gall bladder removed a year ago and now I'm getting daily "dull" pain on the middle-right side and also getting intermittent nausea ( from the carafate) Mornings are terrible until I'm fully awake and have some milk or tea,. Is anyone else getting nausea from the carafate? I' only been on carafate for 2 weeks and can only tolerate about 2 tabs a day. Not sure what else to try except try to see my gastro guy sooner than scheduled. Thanks for everones input. willard cry

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 7/14/2014 8:29 AM (GMT -7)   
Hi willard65,

I am a strong proponent of the healing qualities of Carafate suspension, and am confident that they nausea, etc. you're experencing isn't related to the medication, but rather to the problem it's treating.

Gallbladder issues/bile backing up into the stomach, are a well-known irritant, and Carafate is used to coat and protect the stomach from that bile. It's the bile that is causing the nausea, not the Carafate. Even after gallbladder surgery these problems can persist.

If you can get the liquid, do so. It's far superior to the pill form, even when made into a slurry. I know it's hard to take all the Carafate doses, as it has to be separated from meals and medications, but it's worth the effort. It takes a long time to heal upper GI issues, and you need to be persistent with its use.

Good luck with healing your symptoms!
Best wishes,
Denise

GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
New Topic Post Reply Printable Version
40 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, December 17, 2017 2:40 PM (GMT -7)
There are a total of 2,906,533 posts in 318,967 threads.
View Active Threads


Who's Online
This forum has 158307 registered members. Please welcome our newest member, Minniegirl.
337 Guest(s), 14 Registered Member(s) are currently online.  Details
PeteZa, Oldbuddy, Wilderness, SeanL88, artvark, Mergirl, M1961, AZ Guy, Sono, Szabo246, Connor77, beatUC, k07, straydog