Help! Doctors disagree, need to find one who will listen

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Eleanor99
New Member


Date Joined May 2014
Total Posts : 18
   Posted 5/5/2014 9:44 AM (GMT -6)   
I was diagnosed with LP six months ago after a terrible bout with bronchitis, asthma, antibiotics and prednisone. My ONLY symptoms are a rumbling in my chest and asthma like symptoms with breathing difficulty. No heartburn, no stomach upset. Whatever I eat (and I have been vegetarian/vegan for years) does not make a difference. The ENT guy says to take PPIs and that LPR does not cause breathing difficulties. The LPR expert in NYC (I'm betting all of you know who I mean) was rude, pushy, belligerent, insisted I had had Bell's Palsy as a child (I did not), insisted that I never had asthma (my lung function tests since childhood show that I do) and wanted to put me through two painful (her words) tests and when I asked why, the only answer was, "I'll know when I see the results." Since the end result of all these tests seems to be PPIs anyway, I declined.

I went to an integrative doctor who made me sicker with supplements. Seeing an acupuncturist helped. But, oddly enough the one thing that clears up that rumbling in my chest and the breathing difficulties is Klonopin, which my doctor suggested I try. Does this mean it IS a nerve issue? And since Klonopin is so dangerous and addictive, is there anything else I can try? I suggested to this doctor that it might be nerve damage and requested elavil or some other meds, but was denied.

Does anyone know any doctors in the Manhattan area who might be open to at least trying me on some nerve drugs to see if it clears this up? I'm currently on a PPI, but it isn't really helping, plus I know the danger of these drugs. If anyone could at least suggest someone, I would be so, so grateful. Thank you, Eleanor

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 5/5/2014 11:05 AM (GMT -6)   
try dr latov,

hes only good if its a nerve issue.
tell him you have laryngeal neurothapy.

hes gonna run a battery of tests... but he will give you the meds...

you can try elavil, gabapentin, lyrica, cymbalta.

Dr k. is good too i would run the test at least you will know if u got reflux in your throat, if your LES work etc.
its expensive for sure.

its like going to a mechanic, u need to figure out what the issues are so u can treat each one. LPR is complicated maybe the nerve drugs help a little, but the end goal is you want to be cured.

just my 2 cents.

Eleanor99
New Member


Date Joined May 2014
Total Posts : 18
   Posted 5/5/2014 11:07 AM (GMT -6)   
thank you. I went to Dr. K (had a terrible experience) but I will look up the other doctor.

Eleanor99
New Member


Date Joined May 2014
Total Posts : 18
   Posted 5/5/2014 11:09 AM (GMT -6)   
Can you tell me what tests Dr. Latov did? And you are right. i want to be cured.
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