Damage to Nissen

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BCer
Regular Member


Date Joined Jul 2011
Total Posts : 55
   Posted 6/24/2014 1:07 PM (GMT -6)   
Hi Everybody!

I'm back! Once again I am so grateful for this forum and to talk to all of you! The past couple of months have been interesting so thought I would bring you up to date with my situation.

My Nissen was about 3 years ago - a giant para esophageal hernia with my stomach located high in my chest. After a 5 hour surgery it was successfully moved down but another hernia developed right away while I was still in the recovery room. This was due to coughing and retching! This hernia was repaired a few months later but they did not get all of the hernia or else there was another that was missed. So another surgery!

During the past year I have had more symptoms than ever including food getting stuck, a LOT of reflux and even nausea. Finally I told my family doctor that another scope was needed even though I was not due for one. I got to see the surgeon who does the scopes within a 2 week period. While still in his office I was given lab requisitions for blood work and an ECG AND told to be at the hospital at 7:30 in the morning for another scope. Just amazed that they got me in so quickly.

The scope was this morning and showed that I have a rip in the wrap and the stomach has come back up! I was given prescriptions for increased Nexiom and Notilium. They called directly from the hospital to set up appointments for a bariom swallow and another ECG.

It looks like more surgery is coming my way.

Before my initial surgery I had not been aware of giant para esophageal hernias. After the surgery I thought everything was fixed! I had no idea that things could unravel.

I will post again after all of my results are in and they decide what they are going to do with me. I hope all of you have better luck the first time through this procedure!

Sandy

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 6/24/2014 5:50 PM (GMT -6)   
So sorry! I pray that third time's the charm. I didn't know anything about giant paraesophageal hernia before I got one too.

I'm having a lot of nausea and burning throat as I near the 5 year point after GPEH repair with Toupet wrap. I need another scope but I fired my gastroenterologist and haven't been able to find another one as good. He is very good but mean, so I refuse to go back.

I had a couple bad episodes of trying to vomit, one with a little blood coming up. I think something tore the first time only a few weeks post-op. The second time was the flu and I went to an ER that mostly ignored me, didn't believe I had vomiting/heaving, never diagnosed flu. They thought I was drug seeking because I have a pain doc. My family doc did diagnose, had me take Zofran.

My surgeon said he doesn't use mesh for repair because it too often erodes into the esophagus. He did use some of my own tissue to strengthen the hernia repair.

Keep in touch!

BCer
Regular Member


Date Joined Jul 2011
Total Posts : 55
   Posted 6/24/2014 6:05 PM (GMT -6)   
Hi Alcie,

Thanks for posting back. When I initially asked my GP for another scope he said I wasn't due for one for another year. The dr who does the scope said the same thing - until finally I went back to the GP and recited the symptoms. Then things moved very fast!

One of the first things I was asked was "Are you vomiting blood"
I am glad I could say no but you have had that symptom - Yikes!

The next thing asked was if I had burning in my throat - heart burn. And I do and it is getting steadily worse.

I don't know what variety of wrap they did but for the last hernia repair, the dr used a big piece of mesh. He is getting tired of patching me up!

I wish that he would do the next surgery but he has already said no to that idea. I don't want the surgeon who did the initial wrap so I am going to have to look for someone out of town.

I hope you can get a scope scheduled soon.

I will post again when I have more test results and know if they will do surgery.

Sandy
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