At the end of my rope...

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Date Joined Jun 2014
Total Posts : 1
   Posted 6/30/2014 9:37 PM (GMT -6)   
I am almost 7 weeks post hiatial hernia repair, with a nissen fundoplication revision. I had my first wrap done in september of 2002 (I was 13 yrs old) and was well managed for about 7 years. In 2011, I then went back in to have a hiatial hernia repair and nissen fundoplication revision with a gastropexy. This repair lasted less than 6 months, the surgeon who performed the surgery felt that it had failed from either human error, or long term prednisone use to treat my temperamental Lupus. I had been having severe dysphagia since 6 months after it was repaired. It took quite some time to try and find another surgeon who performed this type of surgery and who was willing to take on my complex case. After going through all the pre-op tests the surgeons were confident that my swallowing difficulties were caused by an anatomical mismanagement versus a mechanical failure in my esophagus. I had a laproscopic repair on May 13- during this time my hernia was repaired, my stomach was uncoiled (it had coiled up inside its self) and pulled back through the diaphragm- the stomach had been pushing on my heart and the lower left lobe of my lung. The original wrap was undone and rewrapped and then the diaphragm was reinforced with synthetic mesh and some of my own tissue. While the surgeons were correcting everything, a jackson-pratt drain was required as one of my lymph nodes was acting up and would have caused an abscess. Then to top it off, I was wheezing quite bad while on the ventilator during surgery. After extubation, I required emergency management as my left lower lung had collapsed. I spent 5 days in hospital, 4 days of which were on oxygen and the drain was removed prior to my discharge home. Since being home, I have had nausea- all day, everyday. Some days are much worse than others, on those really bad days staying flat is the only treatment. I have been given zofran 8mg QID PRN with little relief. One of the other extremely annoying and painful side effects I have are the hiccups. For the most part I am not having episodes that are lasting 30 minutes or more but they are constant. Maybe a coincidence- the days that my nausea is worse my hiccups seem to be worse as well. I have spoken to my surgeon about all of these concerns and complications and he states "this is normal" and the hiccups are because my diaphragm is irritated. I had a significant amount of pain in to my 5th wk post op that required treatment by narcotic. The other most frustrating and concerning part is that my diet is not advancing as it should. I am still on a relatively soft diet, which hasn't been for a lack of trying. I still have enough swelling in my esophagus that swallowing most things, including water is painful/uncomfortable. On more than one occasion I have vomited the fluid contents of my esophagus- normally I am having a small drink to wash whatever down and the food becomes stuck. I try and avoid this at all cost due to pain and fear of causing damage. I have lost 25-30lbs since surgery and now have had to rely on nutritional drinks to supplement my diet. Being that this is my 3rd time going through this surgery, I have followed the diet very closely and there are some foods that I will wait sometime to add it- very acidic items (juices), a lot of carbs (breads etc...). I have noticed over the past week or so I have had a couple episodes of heartburn- the burning in the middle of the chest as well as pressure in my back of my throat (which I had daily prior to surgery). I am hoping this is just due to some swelling or irritation and the heartburn isn't going to be a common thing. After my first 2 surgeries I didn't require any PPI's for management.
Sorry to ramble on, I am very frustrated with this situation. I am wondering if anyone else has had any of the above symptoms or complaints.
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