Scope Tomorrow

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Firelightglow
Regular Member


Date Joined May 2014
Total Posts : 21
   Posted 7/1/2014 10:49 AM (GMT -6)   
After waiting for six agonizing weeks my scope is tomorrow July 2nd. Today I feel like a basket case, I'm both relieved that it's time to do the scope and at the same time I'm afraid of them finding esophageal cancer. I've tried over the past weeks to keep myself calm and at times I've been able to but other times I've sat and planned how I'm going to tell my children that my time is up. If my symptoms had remained constant with no change over these past weeks, I might not suspect anything was really wrong, however, in the last week I'm not able to swallow any solid food any longer and the food that I do swallow hangs up on the way down and when it hits my stomach it causes mild pain, my voice is hoarse. The pain is now in my back on the left side.

So things are progressing, and it can't be just gerd any longer the way this feels. It's been eight years since I was first diagnosed with gerd, two years ago I had mild to moderate inflammation, so there's been plenty of time for something far worse since then I'm thinking. Nothing works anymore, even with Nexium 40 mg. in the morning and 40 mg. at night, I now have such bad acid at night that I take a teaspoon of Gaviscon to be able to get through the night. I've had silent reflux and have never felt the acid before, so this is also something different.
My ears are ringing and sometimes my vision seems a bit blurred, all this can't be good, I'm quietly panicked inside right now I don't know how I'm going to tell my family and I'm not ready to die, who is though? This is awful shakehead

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 7/1/2014 11:42 AM (GMT -6)   
Firelight glow,

Keep calm and take deep breaths. Food can get stuck for many reasons, usually reflux slows down your peristalsis and can cause a motility disorder - it may be just that simple.

The best thing is to try to not imagine the worst, just take it a day at a time, hopefully it will be a minor problem and they will be able to give you a solution.

Do let is know how you get on,

All the best,

Pink

Firelightglow
Regular Member


Date Joined May 2014
Total Posts : 21
   Posted 7/1/2014 12:03 PM (GMT -6)   
Thank you..I'm trying, and I'm out weeding my garden and trying not to make a fool of myself mopping around. After writing that message I felt embarrassed, but I'm scared flat out. I'll try hard to have some hope and I will let you know. Thanks for responding, I think I just need some kind words today and not to proud to admit that.

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 7/1/2014 5:14 PM (GMT -6)   
You're going to be fine. I have 2 motility disorders caused by silent reflux, I have upper dysphagia - food sticks in my throat, and then I get distal spasms where food sticks there too - all caused by reflux, and I was also convinced I had a stricture or something nasty.

Keep calm, take the sedation, and enjoy a nap it will soon be over and you will feel much better then,

All the best,

Pink

Firelightglow
Regular Member


Date Joined May 2014
Total Posts : 21
   Posted 7/2/2014 1:54 PM (GMT -6)   
Scope is done and there are no tumors that can be seen. Moderate inflammation is all there is, however biopsies have still been taken and I can follow up with that in 3 weeks time with my own doctor. It still doesn't explain the hard to swallow sensation but he seems to think it's caused by globus pharyngeus. I don't know if I buy that, I sometimes feel a bit of burning at the back of my throat to, but at this point I'm happy enough that things seem to be okay in the "no cancer" dept. I know it will still be an ongoing fight to find a happy medium with gerd, as you all know well, but at least I'll still be around to fight it. I think the next step for me will be ph testing and anything else that has to be done to see if Nissen Fundoplication is right for me. I know that I have midchest reflux already from last years barium swallow test.

Thank you all for the kind words and reassurance, I was a basket case this morning and cried like an idiot on my husbands shoulder.

James_a
Regular Member


Date Joined Jan 2014
Total Posts : 97
   Posted 7/3/2014 10:37 AM (GMT -6)   
so glad everything is fine for you :)

before my first endoscopy i was very worried about cancer and Barrets osophagus, everything was nightmare. I assume you have tried moderating your diet, weight and possibly change from nexium to another ppi. The ppi have a habit of just not working anymore after prolong period of use for some people, so possibly changing to another ppi. Maybe discuss this with your doctor also you might want to try sucralfate at nigh as well as gaviscon. Sucralfate can coat the osophagus much longer than gaviscon and protect it. Maybe discuss all these with your doctor.

Good luck with everything.

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 7/3/2014 1:15 PM (GMT -6)   
Hi,

I'm so pleased for you! If you look up crycopharyngeal spasm on youtube you will be able to compare and see if it's similar to what you're feeling. It's probably LPR causing it.

Now relax and enjoy your life,

All the best,

Pink

Firelightglow
Regular Member


Date Joined May 2014
Total Posts : 21
   Posted 7/3/2014 1:38 PM (GMT -6)   
Thank you GC1pink I'll be able to enjoy it more when this awful reflux takes a break or I find a solution in another PPI. I spent the night in my recliner my chest was so heavy and my whole digestive track felt out of whack. Today it still feels awful and irritated with burning throat and the whole bit. I am relieved about no obvious cancer growths, hoping the biopsies are good, and they should be. I'll look up crycopharyngeal spasm and see what that's all about.

James I don't smoke or drink or eat junk food, or drink coffee or even regular tea at the moment, I'm 5'9" and weigh 137 lbs so not the least bit over weight. My bed is propped up with a wooden beam at the top under the mattress, so I'm doing all the right things, just no luck with relief as of yet. Tomorrow I'm going to try a new PPI called Dexilant, as Nexium twice a day stopped working, and also I take Gaviscon every night to and it helps somewhat, I'll ask about the sucralfate if things persist, thanks for the advice on that.
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