Still scared and confused

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 7/13/2014 9:47 AM (GMT -6)   
I just read a post on here saying my latest test - an impedence and manonetry - will probably do nothing to provr whether or not I have LPR. This has pushed my stress into overdrive, as I am still getting worse and I still have no idea what to do. These are my observations and symptoms:

- A single drop of Gaviscon Advance has gotten rid of my dysphagia. It comes back after 1 - 7 days.
- I still have trouble swallowing the thick mucus in my throat - it sticks and makes me dizzy/lightheaded and I gasp for air/sweat/become tired.
- There's a nagging tickling in my throat along with soreness, and a burning feeling lower down. I'd like to blame hayfever but I don't have a runny nose or watery eyes.
- If I do somehow swallow all the mucus away, my throat becomes extraordinarily tight.
- I am fine first thing in the morning until I start swallowing.
- Bad foods like pizza and cookie day (during my manometry etc) did not cause burning. Water does when my throat has no mucus.
- All spit test/Restech results are normal. A member of staff at Peptest believes I do not have reflux at all.

I was going to wait until my specialist gets in contact with me again, but the other day I had an attack of severe dizziness/sweating/breathlessness after swallowing mucus at the wheel on a 70mph road. That was a stupidly scary experience, and was very much the last straw. Everytime I find sonething that says I may not have reflux, something else - usually on these forums I must confess - says I still do and always will do. And to be frank, you are all much more knowledgeable than almost every doctor I've ever seen, so I can't help taking your words for it.

Some of these symptoms - including the symptoms upon swallowing - occur even on Gaviscon Advance/controlled lifestyle/diet. What does this mean for me? What test do I get next, if I can even afford anymore or if my specialist allows for it? What other possibilities are there besides reflux?

Apologies for all these questions once again, I'm just so confused and long for a day when even my basic bodily functions will work again.

Post Edited (Daxter) : 7/13/2014 9:05:27 AM (GMT-6)


Mommanoesbest3391
Regular Member


Date Joined Jun 2014
Total Posts : 64
   Posted 7/13/2014 3:18 PM (GMT -6)   
Hey Daxter,

I feel for you I'm still recovering from a very bad flare up of LPR. Guess we all have some degree of being irritated and for some like me it's taking a little while longer (being switched PPI's in last 4 weeks)but what I did do is put myself on a low acid diet, strictly bottled water with a higher PH on it as well. My main staple and still are at the moment, mashed potatoes, some chicken boiled or roasted, toast but this can irritate some ( eat middle only). My stress level? Gosh I wish I could erase that in a blink but I can't and it's probably what triggered this flare up along with other things and so I keep it to a minimum, if you can do that I the job is half done. I too had a relatively controlled diet/ lifestyle or so I though and going back to my first episode years ago and again today all I can say is I keep learning even more how to control this and back on track faster. Food choices to a T and stress for me are the triggers and so I changed all my diet and controlled my stress and it's getting better. Are you taking any meds? and has your doctor ordered a test called an upper barium test? I'm rooting for you, hang tight and keep me posted :))

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 7/13/2014 5:33 PM (GMT -6)   
Hi Dax.

That was good news about the Gaviscon. It sounds worthwhile to take it regularly.

I have thick mucus when I get a sinus infection. It can be gagging. Half the time my ENT doesn't even diagnose it. Meds mostly don't get rid of it anyway, so I keep it under control by using a good saline sinus wash - I like Neil Med - every morning and in the evening too if it's bad.

Mucinex 12-hour and generic 12-hours will also thin the mucus so the cilia can sweep it away.

At least these things are cheap to try.

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 7/14/2014 4:27 PM (GMT -6)   
Alcie said...
Hi Dax.

That was good news about the Gaviscon. It sounds worthwhile to take it regularly.

I have thick mucus when I get a sinus infection. It can be gagging. Half the time my ENT doesn't even diagnose it. Meds mostly don't get rid of it anyway, so I keep it under control by using a good saline sinus wash - I like Neil Med - every morning and in the evening too if it's bad.

Mucinex 12-hour and generic 12-hours will also thin the mucus so the cilia can sweep it away.

At least these things are cheap to try.


I've tried Saline before but it didn't help, and I can't buy Mucinex etc here in the UK. :(

Mommanoesbest3391 said...
Hey Daxter,

I feel for you I'm still recovering from a very bad flare up of LPR. Guess we all have some degree of being irritated and for some like me it's taking a little while longer (being switched PPI's in last 4 weeks)but what I did do is put myself on a low acid diet, strictly bottled water with a higher PH on it as well. My main staple and still are at the moment, mashed potatoes, some chicken boiled or roasted, toast but this can irritate some ( eat middle only). My stress level? Gosh I wish I could erase that in a blink but I can't and it's probably what triggered this flare up along with other things and so I keep it to a minimum, if you can do that I the job is half done. I too had a relatively controlled diet/ lifestyle or so I though and going back to my first episode years ago and again today all I can say is I keep learning even more how to control this and back on track faster. Food choices to a T and stress for me are the triggers and so I changed all my diet and controlled my stress and it's getting better. Are you taking any meds? and has your doctor ordered a test called an upper barium test? I'm rooting for you, hang tight and keep me posted :))


Barium has been done yes, all clear.

The symptoms continue even on alkaline water/Gaviscon so I doubt another Peptest would display anything. I wish I knew exactly what is happening to me. I just had another attack trying to fall asleep - I can't sleep on my sides at all due to mucus blocking up my throat, making me gasp and sweat. All day it feels like I'm swallowing glue, and dry foods get stuck. God help me.

Mommanoesbest3391
Regular Member


Date Joined Jun 2014
Total Posts : 64
   Posted 7/14/2014 5:07 PM (GMT -6)   
Hey Daxter,

If barium was negative then time to pass on other things. Process of illumination might be a good thing here. If I may ask, and trying to look back at your previous posts, are you on meds and for what also do you have access to your primary caregiver? Maybe by looking at diet or meds something else or someone could chime in with alternative ideas as to what you could try until you can have a chit chat with your doctor. I've learned a great many things from this forum that I was still pretty much unaware. Keep posting :))
-Take care of your mind and body so that your soul will be tempted to stay-

GERD with laryngoesophagitis
Intercostal Neuralgia 2012
General Anxiety Disorder
Lactose Intolerant


Losec 20mg twice a day (restarted July 2014)
Ativan 1mg since 2011 for body/ GERD spasm and sleep as needed.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 7:37 AM (GMT -6)
There are a total of 3,004,562 posts in 329,154 threads.
View Active Threads


Who's Online
This forum has 161744 registered members. Please welcome our newest member, rju65654.
289 Guest(s), 7 Registered Member(s) are currently online.  Details
Naples, Froggy88, boris_badenof, oceanfisher58, getting by, Sherrine, RobLee