Dual Probe Impedance (Quick answer needed please :D)

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Daxter
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Date Joined May 2013
Total Posts : 406
   Posted 7/15/2014 6:13 AM (GMT -6)   
I need to discuss with my specialist about organising a dual-probe impedance study as soon as possible, since I doubt the normal impedance has shown anything, but my symptoms are becoming quite serious. The link I've attached shows an impedance test, but it describes it being like a barium swallow, so I'm a bit mixed up. Is this the device I need to mention?


http://www.ardmorehealthcare.com/mii.php


Remember I'm the UK; Restech is known as Aardmore here. I don't mind how far through the UK I travel to get tested, but I can't go abroad, I just don't have the funds for it ^^; If anyone can also mention where I can get the test done, that would be very handy..!

Post Edited (Daxter) : 7/15/2014 6:16:10 AM (GMT-6)


Trotters
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Date Joined Jun 2014
Total Posts : 329
   Posted 7/15/2014 10:48 AM (GMT -6)   
Darter I've looked into this too. Is there anyway I can obtain your email so I can forward you the email I have received?

Trotters
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Date Joined Jun 2014
Total Posts : 329
   Posted 7/15/2014 10:55 AM (GMT -6)   
Aardmore healthcare manufacture the restech probe in the uk. I have been in touch and they said the best bet is castle hill hospital in hull. I have also had an email from doctor Jo Barlow who does the ph impedance test and also the restech. She informed me that there is controversy as to whether restech is the best to diagnose atypical gerd symptoms. She advised me to have the impedance test as it measures liquid and gas both acidic and non acidic plus how far it travels and is the best to diagnose supra oesophageal problems/symptoms. She is based in spire Manchester. Hope that helps

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 7/15/2014 11:37 AM (GMT -6)   
Trotters said...
Aardmore healthcare manufacture the restech probe in the uk. I have been in touch and they said the best bet is castle hill hospital in hull. I have also had an email from doctor Jo Barlow who does the ph impedance test and also the restech. She informed me that there is controversy as to whether restech is the best to diagnose atypical gerd symptoms. She advised me to have the impedance test as it measures liquid and gas both acidic and non acidic plus how far it travels and is the best to diagnose supra oesophageal problems/symptoms. She is based in spire Manchester. Hope that helps


Spire just so happens to be where I had the tear-drop Restech probe. This is great news, thank you. :)

I can't post my e-mail here, so I need to send you a PM instead ok? What kind of controversy did she mention?

Trotters
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Date Joined Jun 2014
Total Posts : 329
   Posted 7/15/2014 1:13 PM (GMT -6)   
Not sure how you private message on here but I can forward you the email if that helps?

Trotters
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Date Joined Jun 2014
Total Posts : 329
   Posted 7/15/2014 1:20 PM (GMT -6)   
So you have already had the restech test? She just basically said they do perform restech but for supra oesophageal symptoms, impedance test would be best in my instance. She didn't go into any details regarding the restech.

GC1pink
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Date Joined Nov 2012
Total Posts : 532
   Posted 7/15/2014 4:00 PM (GMT -6)   
Daxter,
I can highly vouch for Jo Barlow and her expertise, she is one of the top experts in this field.

When no-one could diagnose my LPR she found that I was having an excessive amount of reflux events with 22% going into my throat.

My DeMeester score was normal but I am having excessive non acid reflux events into my throat which has caused my upper dysphagia, and mine was discovered with an impedance probe, and it shows all acid, weak acid, impedance, gas, gas and liquid and gas on its own.

Jo Barlow will answer all questions that you have, and she will send you full detailed copies of all your tests within days.

I can't recommend her highly enough!

Hope this helps

Pink

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 7/15/2014 4:12 PM (GMT -6)   
Pink you are very knowledgable! You are the one that have me the info in the first place! Thank heavens for forums like this!
Did you have to be reffered to Jo by consultant/gp?
My surgeon is very very reluctantly reffered me to have the bog standard ph test due to me still having quite severe symptoms but he has told me that he expects it to not show acid! I genuinely feel that my problems are due to reflux and also in gaseous form hence why I'm interested in the impedance test. I have no idea how to take this forward though? If I could just have the test done privately without referal Id be there like a shot but I don't feel my surgeon is very approachable at all to ask about the possiblity of having this test performed instead. Arrgghh

Daxter
Regular Member


Date Joined May 2013
Total Posts : 406
   Posted 7/16/2014 1:24 AM (GMT -6)   
GC1pink said...
Daxter,
I can highly vouch for Jo Barlow and her expertise, she is one of the top experts in this field.

When no-one could diagnose my LPR she found that I was having an excessive amount of reflux events with 22% going into my throat.

My DeMeester score was normal but I am having excessive non acid reflux events into my throat which has caused my upper dysphagia, and mine was discovered with an impedance probe, and it shows all acid, weak acid, impedance, gas, gas and liquid and gas on its own.

Jo Barlow will answer all questions that you have, and she will send you full detailed copies of all your tests within days.

I can't recommend her highly enough!

Hope this helps

Pink


Excellent info thank you; has she helped you progress towards surgery at all? I can't find her name on the Spire, Manchester consultants list, but she did appear on the LINX website which makes me believe she supports it.

If this next impedance - and all my other tests - comes back normal, does that rule out reflux? I know it's pathetic, but I'm still praying I don't have it.

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 7/16/2014 5:49 AM (GMT -6)   
Trotters

You can be referred to Jo via your GP or your Consultant via her secretary Julie Golden - julie.golden@consultantcare.com

I have always seen Jo Privately, I have really good insurance so I've never had to pay for it. If you are paying yourself to see her be advised you will be charged a day bed as well, but if you don't want it speak to her secretary to say you won't require the day bed after for a cuppa.
A lot of LPR is caused by non - acid reflux which a lot of gastroenterologist and surgeons don't believe exists or if it does it's trivial.
I had the bog standard test as my first at a different hospital with another consultant and it showed nothing.
It was only the impedance that showed that I was having weak acid and a lot of impedance 94 events a day, burning my throat, that stuff is caustic!
Yes the impedance probe will show gas and how high up you are getting it.

Daxter - Jo is not on the Spire Manchester Website you need to go through her secretary. She works a lot at Alder Hey with children, as well as other NHS positions.

You can usually get slotted in the same week or the following week. Jo doesn't get you to a surgeon she just gives your consultant the results, however I have found her most informative, and really helpful.

I think all PH studies are snapshots of a moment in time, and reflux only shows if you are symptomatic on that day.

I really wish a lot of surgeons would go on just symptoms.

I hope for your sake Daxter that you don't have LPR as it's particularly odious.

All the best

Pink

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 7/16/2014 6:40 AM (GMT -6)   
Really appreciate your help and advice pink. I agree with you, if only consultants would go by what we are actually experiencing rather than going by what the text books say.

Thanks so much for your help.

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 7/16/2014 6:42 AM (GMT -6)   
Out of interest pink, whats your situation? Have you had nissen performed or are you due to?

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 7/16/2014 8:09 AM (GMT -6)   
Hi Trotters,

I have poor motility, was originally accepted by Endostim, then put off it by an idiot Gastro, now they won't touch me as my motility has worsened with the reflux.

I was told by one surgeon that my motility is not good enough for a nissen, however I have seen an expert surgeon today recommended by professor Attwood and he is going to look more into my case, so another Gastroscopy on the 30th of this month, with the view of trying to find a surgical solution.

I would have the endostim in a heartbeat if they let me.

Fingers crossed for any solution, dysphagia is NOT fun!

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 7/16/2014 10:57 AM (GMT -6)   
Ahhhh bless you, that must be a nightmare for you. Sorry to hear you are suffering. Must be very frustrating knowing that it's got worse due to reflux, if bloody only they had performed some procedure sooner. :-( I'll be keeping my fingers crossed for you and stay positive that they find a solution to this soon for you.
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