Just want to feel normal again.

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HeplMeh
Regular Member


Date Joined Aug 2014
Total Posts : 30
   Posted 8/2/2014 6:14 AM (GMT -6)   
Hello everyone!
35 Year old Male, New member here.

For the past two years, I have been experiencing many symptoms. Many of these symptoms can point to things such as GERD, IBS, and Anxiety. I just wanted to share my story, in hopes that somebody could relate. For anyone who does not want to read this entire post, you can skip to the end to see all of my symptoms, and maybe help me figure out what exactly it is that I have, while waiting on such long waiting lists to get some severely needed tests done.


So my story begins...


For as long as I can remember, I have not had the most healthy lifestyle. For the last 15 years, I've smoked a lot of marijuana and drank a lot of soda's. One night, shortly after smoking while playing video games, I began experiencing trouble swallowing my saliva. I did not have cotton mouth, nor did I have problems drinking my soda, just when trying to swallow my saliva. It felt as if, my throat muscles were just not responding. After having this happen a few times, I decided to just go to bed early. The next morning I seemed to have felt fine and continued on to work. about half an hour after eating my normal hotlinks sandwich off the food truck, I suddenly became feint and lightheaded. Began to get very dizzy and had a shortness of breath. I squatted down regained my composure and focused on breathing. 60 seconds later it was gone. At the time I thought maybe it was just a head rush from standing up too quickly or something. After getting off work and returning home, I got back into my usual routine of smoking and playing video games. 15 minutes or so after smoking, I suddenly felt a tingling that started from my forehead and moved to the back of my scalp on the right side of my head. Once again, I decided to call it an early night. For the next few days, these symptoms would seem to come and go. Over the next few weeks, I started developing palpitations and a thick sticky gel like mucus in my throat that I have never had before. I also occasionally felt a sharp sudden jolt in my kidney areas that would literally paralyzed me for ½ second.

I decided it was time to see the Dr. After explaining all my symptoms to him, he immediately thought Anxiety, and wanted of the put me on Zoloft. I tried the Zoloft for a few days but it made everything 10 times worse. It's like I was emotionless except for a very severe fuzzy feeling, what I would imagine is what real anxiety feels like. After that, the heartburn began to set in. I also started to feel nauseous after eating. We decided it might be Gastro related. Antacids, then PPI's and the works, all gave me the same severe reactions. After a countless number of blood tests that all came back to normal, I finally convince the Dr. to schedule me a endoscopy and CT scan of my chest.

Previously to having all these tests done, my work told me to take a month off as "health is the most important thing." Three days after returning to work, I was brought into the general manager's office where they proceeded to lay me off because I was "Unreliable." Needless to say, this made me furious. They were the ones who suggested to take some time off in the first place. Rather than try to sue them, I decided it was probably for the best, as I really didn't like that place anyway. The only downside was, I lost my Health Insurance.

After losing my job my I had my endoscopy and it came back negative, but my CT scan showed early signs of emphysema from smoking. Needless to say, this news was enough to make me quit cold turkey. For the next two years of being unemployed, the symptoms continued to come and go sometimes weeks and months at a time. Not only is the severity getting worse, but more and more symptoms are arising.
I've been to the emergency room three times, the only thing they can ever find is a high white blood cell count. I've continued to deal with these problems on my own for the last two years trying every suggestion under the moon. I cut out all trigger foods, sleep in an upright position, wait at least 3 hours before bedtime, quit smoking, quit drinking sodas ect.

Luckily, just recently my medi-cal kicked in, so now I can see the doc again. Three weeks prior to my last Gastro appointment, all my symptoms came back full force, this time including explosive bowel movements of everything that I had eaten in the last hour. I could not keep anything down. I am currently being scheduled for Mamometry tests. In the meantime I was given sucralfate, which am not responding well to either. I'm also currently waiting on stool sample results for parasites and such.

So my question to you all is, what does it sound like may be the underlying problem that is triggering the dommino effect? Axiety, IBS, LES, GERD? It's really starting to feel like I'm trapped in my own body, all I want to do is go back to work and be normal again. But I don't see how I possibly can with all the symptoms happening every day.

I know none of you will be able to diagnose me over the Internet, I just felt like I had to get my story off my chest to some people who might understand where I'm coming from. After losing my job I had to move back in with my parents, and they seem to get tired of hearing about all of my health problems and think it's just all in my head. I can assure you, it is not.


Anyhow, thanks for listening!






Here's a list of my current symptoms today in order of frequency.


-Heartburn. (Several times a day, even with only drinking water)
-Nausea/sweats. (Everyday, generally after eating but sometimes randomly)
-Thick Gel-like mucus balls in throat sometimes giving me a scratchy voice until cleared. (Everyday)
-Constant burping (Everyday)
-Feeling of Upper Esophageal Sphincter Spasms
that release's gas/air pressure beyond my control when lying down. (Almost Every night)
-Shortness of breath. (Few times a week)
-Weakness, lack of energy in legs (Few times a week)
-General feelings of uneasiness or slight nervousness. (Every other day)
-Sharp pains all around the chest area. (Few times a week)
-Sudden lightheadedness/verge of passing out. (Few times a week, most often on the computer)
-Fluctuating blood pressure. (Few times a week)
-Palpitations. (Few times a week, only when lying down)
-Slight numbness in limbs. (Few times a week)
-Tingling in scalp (Few times a week)
-Sensitivity to sudden sounds (As they occur)
-Stuffy head and ears / feeling fogyish. (Occasionally)
-Sharp jolts to the kidney areas. (Occasionally)
-Sudden arm or leg twitch that makes me jump up out of bed as I'm trying to fall asleep, (Occasionally)
-General digestive discomfort (Occasionally)

Post Edited (HeplMeh) : 8/2/2014 6:24:07 AM (GMT-6)


Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1178
   Posted 8/2/2014 9:01 AM (GMT -6)   
Hi there, I can relate to everything you're saying, my symptoms started about 2 years ago too, with palpitations then getting light headed often, then progressing to feeling sick to my stomach. It was labelled 'anxiety' and after 4 months of therapy & drugs my anxiety had gone from mild to severe as my symptoms would not go away. Now my anxiety is in check but symptoms have only got worse.

I've been on the usual meds for a while, PPIs, Ant acids, pro-kinetics, sucralfate, nothing makes it go away, but because Ive been on the PPIs so long I can't come off them without horrible stomach pain.

I've had CT, 2 endoscopies, manometry, 24 hr pH test and barium swallow, all they found was a hiatus hernia and inflammation in my intestines on which I've had an MRI for more info.

I've seen a dietician whos had me on very strict diets and last time I saw her she said she was at a loss as to what to do next, she'd never had a patient that didnt respond to the restrictive diets, so theres a good chance my symptoms arent caused by diet (though eating carefully makes a big difference)

Im on so many drugs my liver blood tests have gone from normal to dangerously elavated.

I'm still trying to find answers myself, but know you're not alone with this horrible illness. The only thing I can think of that's left that the drs haven't tested for is gallbladder malfunction, I dont have gallstones but a lot of the symptoms correspond to mine, maybe you should ask the dr about a HIDA scan to see if its causing your problems. I dont think a manometry will help at all - mine found my esophagus was a bit weak in places, but that has nothing to do with feeling dizzy/nauseous/light headed.

Here's how my symptoms correspond to yours

Somebody said...
-Heartburn. (Several times a day, even with only drinking water) Yes had a lot of that
-Nausea/sweats. (Everyday, generally after eating but sometimes randomly) Yep although if I eat safe foods I can avoid the sweats
-Thick Gel-like mucus balls in throat sometimes giving me a scratchy voice until cleared. (Everyday)Not had much of that
-Constant burping (Everyday)Yep, I wonder where all the air comes from
-Feeling of Upper Esophageal Sphincter Spasms Not had much trouble with that, manometry might help diagnose something
that release's gas/air pressure beyond my control when lying down. (Almost Every night)
-Shortness of breath. (Few times a week)I get that, just feel worn out a lot
-Weakness, lack of energy in legs (Few times a week)Not specifically but I feel weak often
-General feelings of uneasiness or slight nervousness. (Every other day)Oh yes, especially when I feel a bit better, its as if Im not used to it anymore!
-Sharp pains all around the chest area. (Few times a week)I get these more in stomach area, but had them in my heart before I went on PPIs
-Sudden lightheadedness/verge of passing out. (Few times a week, most often on the computer)oh yeh, some days every time I stand up I will almost pass out
-Fluctuating blood pressure. (Few times a week) Never checked but guess its related to the lightheadedness
-Palpitations. (Few times a week, only when lying down) Mine got a lot better when I went on PPIs, but had them bad before that
-Slight numbness in limbs. (Few times a week)not rly had this
-Tingling in scalp (Few times a week) I had that at the beginning, last year it just seemed to go away
-Sensitivity to sudden sounds (As they occur) Not noticed this
-Stuffy head and ears / feeling fogyish. (Occasionally) yep
-Sharp jolts to the kidney areas. (Occasionally) I get these mostly in stomach area
-Sudden arm or leg twitch that makes me jump up out of bed as I'm trying to fall asleep, (Occasionally) I get 'restless' legs occasionally and cant keep them still
-General digestive discomfort (Occasionally)oh yeh, big time!

Post Edited (Andy1986) : 8/2/2014 8:08:33 AM (GMT-6)


HeplMeh
Regular Member


Date Joined Aug 2014
Total Posts : 30
   Posted 8/3/2014 4:14 AM (GMT -6)   
Thanks for the reply Andy, it does seem like we have quite a few symptoms in common. Do you mind me asking what diet your dietician tried to put you on? I've been trying everything I can at this point and would love to try a few more things.

I will defiantly ask about the gallbladder and HIDA scan as you suggested. I have just received an appointment late November for a complete ultra sound of my abdomen, hopefully.. If I'm not mistaken, that should get a view of the gallbladder as well, just not sure what that will if anything, tell them. Out of curiosity Have you ever had your heart checked? Other than a 30 seconds EKG, I'm surprised my doc's have not given me any stress tests or anything like that. Maybe checking of the arteries? I would imagine bad blood flow could impact every single organ which is what I kind of feel like is happening in a sense. Then again maybe it's just some Anxiety of not knowing what the hell is going on that makes me think that.

Post Edited (HeplMeh) : 8/3/2014 3:26:40 AM (GMT-6)


Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1178
   Posted 8/3/2014 5:01 AM (GMT -6)   
Dietician put me on the fodmap diet, but the only thing that works for me is a zero fat diet, atm i have to get calories from sugar just to stop losing weight.

I had the ultrwsound of my abdomen but she said it can only see gallstones, and will even miss small ones. It doesnt really tel them if your gall bladder is fuctioning properly.

I had a 24hr heart monitor and echo for heart, but never been stress tested. I think i may have POTS as my heart races when i stand up but I also think the heart is just fast because im not well somewhere else.

HeplMeh
Regular Member


Date Joined Aug 2014
Total Posts : 30
   Posted 8/3/2014 6:02 AM (GMT -6)   
Hmm, I never heard of POTS. Looks like another one I need ask about. It looks like more or less I am currently on a diet very close to the fodmap diet. I am having the same problem as you though, I cannot stop losing weight and as soon as I eat anything I get sweaty and nauseous which stops me from eating. Maybe I should test with some sugars and see if I can at least stomach them as well to get some lbs. back.

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1178
   Posted 8/4/2014 3:49 AM (GMT -6)   
Yeh POTS is a weird one because there is no real cause of it and the treatments look pretty limited, basically they tell you to drink lots of water it seems. I try to do this anyway especially after meals because it seems to help my stomach to keep everything in it diluted. Also if I dont drink enough then every time I stand up I almost faint.
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