12 days off PPIs...

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Mommanoesbest3391
Regular Member


Date Joined Jun 2014
Total Posts : 64
   Posted 8/5/2014 6:36 PM (GMT -6)   
cry
...still refluxing after 12 days being off of PPI. I was ok after 6th day but then it stared again with major nausea. I'm taking gravol like candies, and Zantac morning and night. Also brought in ER twice since I stopped and both times they didn't really address the issue, but found a urine infection and sent me home with Nitrofurantoin (Macrolid) antibiotic suspension four times a day sad this is so disheartening since I'm still waiting for Gastro consult, tested negative for Celiacs and ovum bacteria by stool test. My pylori test is negative also, what could this be since I still can't eat properly, I've lost 30 pounds so far and everything is just a wreck..plus trying to keep my anxiety in check is a real killer.
Any feedback is welcome, I just had to write because I'm almost at wits end.
-Take care of your mind and body so that your soul will be tempted to stay-

GERD -weened off PPI July 25th, Zantac since
Intercostal Neuralgia 2012
General Anxiety Disorder
Lactose Intolerant


Losec 20mg twice a day (July 2014) stopped July 25th
Ativan 1mg since 2011 for body/ GERD spasm and sleep as needed.

James_a
Regular Member


Date Joined Jan 2014
Total Posts : 97
   Posted 8/5/2014 7:44 PM (GMT -6)   
Hi

Just wanted to say the nausea could be because of reflux acid because of loose oesophageal valve. The nausea could also be just from the rebound acid and you don't have loose oesophageal valve or it could be from both contributing their fair share to reflux acid. It may be possible you have gastritis, now about you change from Zantac to something like fomitadine or cimitadine if Zantac is not doing much -discuss this with your doctor.If you are happy to take ppi, now about you try another ppi, like pantoprazole, pantoprazole, dexilant, rabeprazole. They may be more effective. But its still possible to have axis rebound at week 2. Hopefully things will settle for you soon.

what dose Zantac so you take?

I truly sympathise with you, really do. I hope you will find some relief soon, i know its hard but please be strong, loosing it now will just compound your problems.

all the best.

Mommanoesbest3391
Regular Member


Date Joined Jun 2014
Total Posts : 64
   Posted 8/6/2014 5:05 AM (GMT -6)   
Hi James_a thanks for listening to my rant :-)

I was only taking 75mg of Zantac morning and night, but I guess I'll have to up it to the 150mg. I'll try other OTC's if these don't work and also I've been on Losec, Nexium, Dexilant as well as Tecta, my goal is to get off the PPI's since I don't do well on them. Thanks again, hope your are well too:)
-Take care of your mind and body so that your soul will be tempted to stay-

GERD
Intercostal Neuralgia 2012
General Anxiety Disorder
Lactose Intolerant

Zantac twice daily 75mg
Losec 20mg twice a day (July 2014) stopped July 25th
Ativan 1mg since 2011 for body/ GERD spasm and sleep as needed.

James_a
Regular Member


Date Joined Jan 2014
Total Posts : 97
   Posted 8/6/2014 5:57 AM (GMT -6)   
Thank you

I don't want to recommend dosages and i always recommend talking to your doctor if you ever want to change medication or increase dosage. But 75mg Zantac is very small dosage, ideally you want between 150-300mg. With most dosages i have seen is 150mg x 2 a day and with maximum of 300mf x 2 a day. I was on 300mf x 2 a day and it did nothing for me apart from kill my gallbladder and sever cramping after 2 months. PPI or H2 blockers cause lazy gallbladder which is more dangerous and life ruining than the gastritis i was being treated for. Lazy gallbladder and low far diet I was on only contributed to the lazynessn of the gallbladder, and this causes a slugs to form and even stopping the ppi would not really make gallbladder recover, the sludge is very difficult or next to impossible to fix. More wonderful stuff the doctors dont warn us about, if i knew i would of not even considered the medication. I know don't agree with the no fat or very low far diet for gastritis, certainly not long term.

a family friend also found Zantac useless and tried fomitadine which was better, unfortunately until you try you will never know, i would talk to your doctor for help before doing anything out of desperation.

I am currently in a world of hurt, i am now not taking anything, not even gaviacon and even dropped sucralfate out of desperation to help my gallbladder pain die down. I am now forced into upping my fat quite substantially. and adding vegetables substantially and unfortunately all these are hurting my gastritis badly and my gallbladder is getting a little better when i eat fatty foods.

I would like to try a gallbladder flush but its not possible with this stomach and gastritis on full stomach acid. I am refluxing but its tolerable right now. I just hoping my gallbladder pain goes because doctors will just try remove it. I am unfortunately stich in between a rock and a hard place.

I just angry when thinking about how over one year the doctors have ruined my life with medications and not telling me about their horrid possible side effects, they did not pet me decide on whether the risk outweigh the benefit. Stupid doctors, absolutely stupid.

They can't warn you about anything, or five good advice they treat us like slaves and themselves like gods. LOL

Just put of interest what are you eating? have you tried varying your diet to control your acid reflux.

I hope you get better soon, keep us informed.

Mommanoesbest3391
Regular Member


Date Joined Jun 2014
Total Posts : 64
   Posted 8/6/2014 3:10 PM (GMT -6)   
I will be increasing Zantac to 150mg twice a day from now on....I've put pressure on the doc and I'm finally seeing a gastroenterologist next thuesday after 2years wait. Fingers crossed its a good one, horrible day today with IV antibiotics, my husband is sending me off to nap,Thanks James for caring ;)
-Take care of your mind and body so that your soul will be tempted to stay-

GERD
Intercostal Neuralgia 2012
General Anxiety Disorder
Lactose Intolerant

Zantac twice daily 75mg
Losec 20mg twice a day (July 2014) stopped July 25th
Ativan 1mg since 2011 for body/ GERD spasm and sleep as needed.

Linda Sue
Regular Member


Date Joined Mar 2014
Total Posts : 459
   Posted 8/7/2014 8:26 AM (GMT -6)   
James_a, I would have done a gall bladder cleanse had I known in 2009 what I know now. Doctors told me my gall bladder was causing my acid reflux problems. I’ve been worse off ever since I had it removed. I thought they knew what they were talking about. They sure didn’t. I’m sorry you’re in such misery. I know how unbearable it is.

After 5 days off PPI’s, a 30 day or so weaning, (Zantac 150mg 2x daily did nothing) I got so deathly ill I could NO LONGER FUNCTION. I went back on them yesterday … I have an appt Sept. 22nd with a NEW gastroenterologist with a ‘teaching’ hospital that is more on the ‘cutting edge’ of new treatments for GERD and digestive issues. My previous gastro doctor is USELESS and has NO answers.

I feel for you, too mammanoesbest, I am also right on the edge of madness from the PAIN that never goes away. I can’t sleep more than a few hours even on my highly elevated bed, without awaking with severe chest pain. We are all in debilitating misery and there has to be an answer.

I’m real short on faith right now but am praying that this new doctor will actually LISTEN and hear me and have some answers or some method of treatment and relief. I just want my LIFE BACK!

I check this forum frequently and will be back with anything that can help.... hang in there!

Mommanoesbest3391
Regular Member


Date Joined Jun 2014
Total Posts : 64
   Posted 8/7/2014 9:05 AM (GMT -6)   
Hi Linda Sue, sorry to hear your in the same basket as us:( Sure wish the health care system were more attentive to us as patients, after all we are the ones in pain and living in misery. I've been sick for 2 months now and I've waited away weight wise, not to mention the toll it's had on my husband and children. On PPI I feel ill and have too little acid and without them now I have a clearer mind but seems like I can't eat a darn thing, just sits there with or without nausea every day. I had to get mad at the gastro doctors office yesterday and almost yell at them that I'm getting very sick and it's not normal and so with that I'm going next week. Trying to manage some liquids, and Zantac and water. I don't know what else I can try because everything irritates me or stays in stomach. God bless you guys...
-Take care of your mind and body so that your soul will be tempted to stay-

GERD
Intercostal Neuralgia 2012
General Anxiety Disorder
Lactose Intolerant

Zantac twice daily 75mg
Losec 20mg twice a day (July 2014) stopped July 25th
Ativan 1mg since 2011 for body/ GERD spasm and sleep as needed.

WellWoman
Regular Member


Date Joined Jul 2014
Total Posts : 40
   Posted 8/11/2014 8:41 PM (GMT -6)   
Mommanoesbest3391, I've felt your pain and been there in the ER when they stick you in a room and forget about you for two hours. Get some dried ginger candy. Eat just a little piece, no bigger than 1" square. It will stop the nausea within minutes if not seconds. Have you ever tried DGL licorice root and slippery elm? I've been off PPI's for two weeks now, eating three meals, and gaining back some weight thanks to this and aloe vera juice/honey cocktails.

SJAB
New Member


Date Joined Aug 2014
Total Posts : 2
   Posted 8/14/2014 9:56 AM (GMT -6)   
Hi!

I'm about 3 weeks off of PPIs after a month of weaning. I felt great for 5 days after the last dose then WHAM! Incredible burning pain that was worse than the initial problem that got me here. That lasted about a week and a half. I have also had reasonably good days with little to no pain or irritation. The last few days have been morale busting because of chest and throat irritation and bubbling gassy feeling and upset stomach. I have been using DGL, Pepzin, and Digest Enzymes. On occasion I will take a Zantac, but I'm trying to stay off the meds.

I too suffer from GAD, but have had some success managing it of late. It does become increasingly difficult not to let it get the best of me when I suffer setbacks like I have this week. All this to say keep at it you will incrementally get better, it just may take longer than we would like.

WellWoman
Regular Member


Date Joined Jul 2014
Total Posts : 40
   Posted 8/14/2014 9:58 PM (GMT -6)   
SJAB said...
All this to say keep at it you will incrementally get better, it just may take longer than we would like.

Amen to that! As good as I feel now, life still isn't completely back to normal yet. I was reminded of that today after I stopped at McD's and ate a burger and shake and forgot to bring my DGL and slippery elm with me. Thankfully, it doesn't take nearly as long to get back to my "pre-careless" condition as it did before, and I'm fine now.

Good luck to you. It sounds like you're determined and slowly beating it. I hope you feel well soon.
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