I'm new to this forum and hoping I can find someone who can help me. Just under 2 years ago I stated having nausea and stomach pain. I had vertigo at the time so I attributed the nausea to that.
After it didn't go away for several months I finally went to my doctor, we both suspected it was my gallbladder. I had an ultrasound, my gallbladder shows no stones or problems. Just prior to the ultrasound I started to experience pain, fullness, and trouble swallowing.
I was referred to a GI, did an EGD all is normal. I started losing weight. I have no appetite. I feel full like I just ate a thanksgiving dinner most of the time and I'm almost constantly in pain. To date I have lost 80 pounds due to lack of appetite. I needed to lose weight, but I'm to the point of being too thin.
I have tried all of the food modification diets, no help. I've been treated for H. Pylori, no relief. I've been biopsied for celiac's , not that either. My gastric empty study showed slow motility at hour 3, but at hour 4 I missed the criteria for gastroparesis by one percentage point, so they say it can't be that.
I had HIDA scan, slow ejection fraction. Surgery was suggested, but i was told it wouldn't solve most of my problems, so I declined. I have had CT scans, ultrasounds, swallow study, esophageal manommerty (YUCK) all with normal to mostly normal results.
The doctor says that the tests that had a small variance in normal are not off enough to give me a diagnosis. I really like my doctor but I live in a smaller city, so at the request of my family who are worried about
my weight loss I went to the Mayo Clinic in Rochester MN. We were told they have better equipment and more experience so what the heck I had nothing to lose and maybe I could get a diagnosis. Per the Mayo's request I brought my scans and reports with me.
They looked at them and took them at face value. I had expected them to re-do some of my tests especially the tests that had some variance of normal. After all they said they have better machines. I also thought they would do a capsule endoscopy because that is one test I haven't had, but no such luck. They did run two other tests i hadn't previously had but of course they are normal.
I did find in the swallow study report that Barretts Esophagus could be possible. This was never mentioned to me by the doctor. When all was said and done I was told I have Visceral Hypersensitivity.
I'm having a hard time with this diagnosis . I feel like they can't find anything so it must be this. I'm having a difficult time finding any information about
this. I've read some doctors don't even believe it's a real thing, it's all in the patients head.
I was given anti-anxiety meds that MAY help. The few things I have found about
this is that the general medication is an anti-depressant not anti-anxiety. After driving 1600 miles to the Mayo, I have to say I'm a little disappointed that more wasn't done there. I was dismissed to go home. So after all this I guess my question is does anybody have any experience with Visceral Hypersensitivity? I'm hoping someone can offer some insight to this diagnosis.
All help is welcomed! ThanksCreated text breaks for easier reading...
Post Edited By Moderator (dencha) : 8/13/2014 7:51:25 AM (GMT-6)