Mayo or Cleveland?

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globalprof
New Member


Date Joined Aug 2014
Total Posts : 18
   Posted 8/19/2014 4:19 PM (GMT -6)   
Hello, I just discovered this site and joined today! I would be grateful for any suggestions as I'm having to seek second opinion due to my local doctors suggesting I do so. I'm very stressed out about what I should do as I've been getting progressively worse over the last couple of months.
I have had severe gastritis for decades, along with rheumatoid arthritis, migraines, asthma, endometriosis, and other auto-immune diseases. Now I have intense flare up of stomach pain and gastritis with a lot of reflux. My gallbladder is malfunctioning (HIDA scan showed 8% rate, but no gallstones). I can't eat anything without pain and bloating, and feeling like something is stuck in my throat. The gallbladder attacks are quite painful, but I am resisting having it taken out as I know it will exacerbate the gastritis.
I am debating where I should go to seek out comprehensive treatment where a team of doctors work together. Cleveland clinic is about 4-5 hours drive away, but Mayo clinic would require flying to/from. I would be grateful for any insights from experience at either place. Also, any names of specific doctors would be very helpful.
Thanks very much!

Post Edited (globalprof) : 8/19/2014 8:16:16 PM (GMT-6)


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/19/2014 10:17 PM (GMT -6)   
globalprof

Welcome to Healing Well.

Between the 2, Cleveland Clinic would be my choice.

When my gall bladder stopped working and it was removed it didn't increase my GERd at all, but the attacks stopped and that was a huge plus.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

globalprof
New Member


Date Joined Aug 2014
Total Posts : 18
   Posted 8/20/2014 12:50 PM (GMT -6)   
Bill, thank you for the feedback, I really appreciate it! I have GERD and severe gastritis (i.e. inflamed stomach) due to decades of many different RA meds (NSAIDs, DMARDs, biologics, regular painkillers, etc.). I've read that removing the gallbladder is not advised for patients with advanced gastritis as the constant bill drip from the liver can exacerbate the problem, so they recommend resolving the gastritis first (although I don't see how that can happen as it's a three-decade old problem). That's probably why the surgeon I was sent to put me on another stomach medication (Sucralfate - usually given to patients with ulcers, but I don't have any according to my stomach endoscopy), as it may help coat the stomach and help the gastritis. I haven't seen any improvement in the last month though. I've also been on PPI (Nexium) for about 14 years, so I'm sure that is also causing some problems. I also read that prolonged use of PPI can apparently impact the gallbladder function. Mine has been malfunctioning for the last couple of months, and the pain is very bad. But I was also told by the surgeon that removing the gallbladder may not solve the problem if the malfunction is coming from the Sphinctor of Oddi. It's all so complicated and overwhelming now. :( My GP is just confused and thinks it would be a good idea to go to a top place where a team of doctors can consult simultaneously to configure things (as we're not sure I have actually been diagnosed properly for all the illnesses I have), and then advice a treatment protocol. Fresh eyes apparently should be helpful. Unfortunately none of my doctors know anyone at either Mayo or Cleveland.
May I ask why Cleveland clinic would be your top choice? Have you had a good experience there? Any specific doctors you would recommend? I would be so grateful for any insights and advice. Thanks very much!
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