I'm starting to think this is LPR instead of GERD

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BlueWaterGirl1988
Regular Member


Date Joined Feb 2014
Total Posts : 20
   Posted 8/30/2014 12:30 AM (GMT -6)   
I have more symptoms of LPR than I do of GERD. My endoscopy came back fine, just a little tiny bit of irritation at the bottom of the esophagus, nothing major at all. I'm still taking the Zantac I was prescribed, it's kind of helping, but not with what I want it to. I've had a lump feeling in the back of my throat for a few years now, but always ignored it, because it didn't bother me that much, I didn't start showing other symptoms until December. I've never had normal GERD/acid reflux type symptoms, always just the occasional indigestion, that's why I couldn't believe it when my doctor diagnosed me with GERD, even after the scope, considering I don't show hardly any irritation of the esophagus.

It feels like it's all in my throat, it always has, which my doctor never wanted to listen about and just wrote it off as GERD. I'm constantly clearing my throat, and my voice is so hoarse sometimes. I never really cough though, not unless I start choking on the mucus that seems to build up randomly in my throat. When the lump feeling developed a few years back, so did what looks like lingual tonsils. Though when this all started in December, one of my actual tonsils started to look so mangled or that a mass of some kind was taking it over and my tongue (and sometimes my throat) won't stop burning to this day, plus it feels so dry no matter what, like my tongue is a piece of sandpaper. Sometimes there's the tiniest bit of blood in my spit, sometimes not. I get horrible neck and sometimes ear pain on the right side, which is where that horrible looking tonsil is. The general surgeon felt my neck and said my glands or lymph nodes didn't feel swollen at all, so she was surprised this pain was happening. I just want the post nasal drip to go away too, but it's been going on nonstop since December. Plus, I don't like having asthma-like symptoms for months now, it's scary sometimes. My throat looks red as can be when I open my mouth too. I just want some relief, I want to stop choking on mucous when I talk and I don't want anymore burning pain.

I want an ENT now before this gets even worse (if that's possible), but my doctor still hasn't referred me to one, that's what I get for having Medicaid I guess. I remember him looking at my tonsils and saying that they look normal to him, which they're not at all, I know what my own tonsils have always looked like.

The weird part of all of this is that I have gained 20 LBS or more since this has all started and the doctors seem a bit surprised that I haven't lost weight instead.

ninjakiller1
Regular Member


Date Joined Jul 2014
Total Posts : 208
   Posted 8/30/2014 2:25 AM (GMT -6)   
Hi, BlueWaterGirl1988

Listen its best for your to see your Doctor and make him/her to listen to you and referal to you Gastroenterology as soon as possible, you have right to be referal because your condition is getting worse. Gastroenterology will be your guide to help you with your situation and do endoscopy again on you and other test as well.

As well, have you been test for helicobacter pylori by any chance? if not than, than best to do that first to see if its negative or positive.

BlueWaterGirl1988
Regular Member


Date Joined Feb 2014
Total Posts : 20
   Posted 8/30/2014 10:50 AM (GMT -6)   
They tested me for H. pylori through my blood, but that came back negative. Also, when they did the endoscopy, I am sure they tested me for it when they took a biopsy of the irritated area, but I've been so busy working that I didn't answer the call for the results on Thursday, so now I have to wait till Wednesday to call them. The pathology results didn't sound like they could be serious, because all the woman said was to just call back to get the results over the phone. I don't have any symptoms other than a tiny bit of nausea after I eat that would indicate H. pylori anyway.

This all started in my throat and nose, so this is why I wanted an ENT, but my doctor said he wouldn't refer me to one until I had an endoscopy done by a general surgeon, got that done, and I still haven't gotten a referral. I've suffered from bad tonsils all my life, no one would remove them when I was a kid, even though I had so many sore throats and strep throat twice a year. I even remember a doctor telling me that my tonsils aren't doing their job anymore, they're actually harboring bacteria instead of filtering it, but they still wouldn't remove them, and no one would say why.

I do need a GI doctor, I'm not going to lie. When I was 21/22, I suffered from stomach burning pain once or twice a month for a whole year, so bad that I was actually doubled over in pain. I had a GI doc then, because I had better insurance, and they didn't do much, said it sounded like ulcers and gave me some medication for it, which surprisingly made the pain go away. I always wonder if these two are linked some how, but when they did the scope, the surgeon said everything looked perfect in the stomach.

The burning tongue pain comes and goes, depending on what I eat, and how hard the food is. It's especially bad when I brush my teeth, but I switched to Sensodyne, which has helped somewhat with the burning. As I said, my symptoms are much too close to LPR, but the doctor keeps wanting to say GERD. I figure I should just switch doctors, but I have to wait for that. I could also try for a referral to a GI doc, but I'm sure this doctor will give me the run around with that too, just like he is for me wanting an ENT.

houston girl
New Member


Date Joined Aug 2014
Total Posts : 3
   Posted 8/30/2014 10:55 AM (GMT -6)   
Bluewatergirl - I can sympathize with you.....Yes, it definitely sounds like LPR - I finally had an ENT look down my throat and saw how red and swollen it was and tons of mucus and nodes on my vocal cords. In turn, he also sent me to the gastroenterologist and they did an endoscopy all the way to my stomach and I had a hiatal hernia so the valve isn't working right.
 
Don't ignore it, as you can end up with long term scarring, etc. in your esophagus and cords. Mine even affected my bronchial tubes..
 
Sigh....And I always ate well and healthy.....So you just never kn ow.
 
Good luck to you. Make sure you take care of yourself.
 
I'd get some print outs of LPR and go back to the doctor and hand it to him/her. The only difference between the two is the fact that the acid is washing up further up  your esopagus - but it can cause a ton of damage wince your esophagus does not have the same tissue as down further and so can burn easily since it wasn't made to have acid sitting on it.
 
So, maybe do some more reading of what to eat and try really had to stick to it and hopefully you wll find a little relief.

gtothep82
Regular Member


Date Joined Apr 2006
Total Posts : 26
   Posted 8/30/2014 2:45 PM (GMT -6)   
Bluewatergirl, Keep in mind that LPR and GERD can overlap. I used to have "pure" LPR for the longest time (swallowing problems, lump in throat, constant coughing and throat clearing, shortness of breath, hoarse voice at times) but lately I've been getting heartburn on a daily basis as well. My endoscopy came back perfectly clear, no irritation of any kind in the stomach or esophagus and the biopsies came back clear as well. Point being, you might need a PH or impedance test done to see whether you're getting acidic or alcaline reflux in your throat. Going just based off of physical scars or irritation is not always a good way to diagnose reflux.

ninjakiller1
Regular Member


Date Joined Jul 2014
Total Posts : 208
   Posted 8/30/2014 3:01 PM (GMT -6)   
Hi, BlueWaterGirl1988

If you had this tonsils problem since childhool until now, Doctors have to referal to you for the tonsils to be checked and see to be removed. Because as I had only once a problem with my tonsil and doctor said to me that she won't remove my tonsil because this happen once but if this happen many times I would consider you for referal. I think its to go back to your doctor and demand that you want to referal to GI Specialist, they have no right by not allowing you to see a GI Specialist. Actually my Doctor also not tried to see a referal for me, I went to my Doctor like more than 10 times in a 1 month until she given me a referal.
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