How much reflux did you have?

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GC1pink
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Date Joined Nov 2012
Total Posts : 532
   Posted 9/19/2014 9:17 AM (GMT -6)   
Hi,

Could people please describe to me how much reflux they had prior to a fundoplication, or how much reflux they are having now, just so I can compare it to my own symptoms please.

Had my 4th barium swallow today this showed hiatus hernia and reflux right up and going into my windpipe - lovely.

Many thanks,

Pink

GC1pink
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Date Joined Nov 2012
Total Posts : 532
   Posted 9/19/2014 4:32 PM (GMT -6)   
Seriously ... No answers?

This is a reflux forum which I contribute to a lot - and take the time to answer a lot of other people and their questions, yet not one of you can be bothered.

Thanks

Bye

Pink

Trotters
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Date Joined Jun 2014
Total Posts : 329
   Posted 9/19/2014 4:40 PM (GMT -6)   
Hello pink,

I'm Sorry you haven't got the response you wanted.

You have been full of information to me on here and have found out a lot of information from you and for that I want to say thanks and it is appreciated that you took the time to reply to me.

I'm sorry you haven't got a response and information you have asked for.

Hope you are ok

X

Wendy Workout
Regular Member


Date Joined Mar 2014
Total Posts : 173
   Posted 9/19/2014 6:03 PM (GMT -6)   
Hi Pink,

I just popped back on here a couple days ago. I left b/c no one responds much. I've asked questions or concerns and they go unanswered. It used to be much busier. Sorry you have not received any responses either. It's frustrating. As for me, I had severe reflux. Suffered everyday and night. Was doubled up on meds and they were still losing their effect. My whole life was revolved around reflux. I was at the point were I regurgitated most of what I ate. I woke up vomiting on acid, even out of my nose. I was miserable. I lived with Tums in every drawer, vehicle, purse, etc.

Debra

Pat Tall
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Date Joined Aug 2012
Total Posts : 950
   Posted 9/19/2014 6:31 PM (GMT -6)   
Hi Pink
I'm sorry that you haven't heard much back from the forum members. When I read your question, I tried to think back to test results . I don't have numbers for you but was wondering if you were looking for total number of episodes, number of acid and/or number of non- acid over what period of time. This might help others in looking up there numbers. Ours are too complicated (for me) to interpret meaningfully.

The moderators for the GERD area are volunteers that keep things moving along, respond to many questions and are really, really helpful. I'm sure one will respond shortly to your specific question. It is a GOOD question.

By the way, the Administrator is looking for another volunteer Moderator for the Gerd area. Might you consider applying? The other Moderators reply to questions and they give their time so generously. You would be an asset. Wish you the best. Pat

CAGU
Regular Member


Date Joined Apr 2014
Total Posts : 315
   Posted 9/19/2014 8:45 PM (GMT -6)   
Hi Pink
I am sorry you are having trouble getting answers. I did not have the surgery, but at one point was thinking about it, because my acid reflux was off the charts. I dont know how to tell you how bad it was, but lets just say I could not even eat a slice of a banana without acid coming up.

Before you consider having surgery, I would recommend you get tested to see if you have any food intolerances that could be contributing to the acid reflux problem such as dairy, soy, corn, gluten, etc.. Your allergist can do a test for several foods.

Another thing, I would rule out before having surgery is delayed gastric empting. Once of the symptoms of delayed gastric emptying is acid reflux. There is a delayed gastric empyting test that can be done at your local hospital.

II had delayed gastric emptying which was a side effect of some medication I was taking. My acid reflux has now been greatly reduced and I do not believe I will need surgery now. It just took me a year to find this out. Hopefully you will get your answer much sooner

Hope this helps Pink Good luck to you!

GC1pink
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Date Joined Nov 2012
Total Posts : 532
   Posted 9/20/2014 3:59 AM (GMT -6)   
Thank you to those who have bothered to reply.

I simply wanted to know if you have reflux symptoms all day long? I have it lying down, sitting upright some standing, and that's not including eating, where I seem to regurgitate all the time.

So so fed up with the pain.

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 9/20/2014 4:23 AM (GMT -6)   
Pink

prior to my op I regurgitated all the time. I had from a very young child and stupidly thought it was normal! Same as you, sitting, standing and lying. There wasn't a day that went by where undigesed food or stomach acid would come up into my mouth. I constantly had horrible taste in my moth despite being meticulous with oral hygiene. Any form of exercise became a nightmare. Unfortunately the op for me hasn't been a success as I think I have mentioned before. I don't regurgitate the volume I used to but what I do is really damaging my oesophagus and airways. I've had another manometry and ph study where my deemester was 0.5!!! But my acid reading when the probe went in was 6. I was told by the physiologist my problems is almost certainly gaseous and weak acid reflux which is just as damaging. It's so so frustrating trying to get this complex disease sorted and I'm sure you are the same in that you just want your life back.

Where are you at in your process now? Do you have any further tests/consultations scheduled?

CAGU
Regular Member


Date Joined Apr 2014
Total Posts : 315
   Posted 9/20/2014 8:08 AM (GMT -6)   
Pink
Yes, I had reflux all he time. I had it lying down, sitting up, and it did not matter what I was doing.. I had reflux that was off the charts. Delayed gastric emptying which was causing the reflux. With delayed gastric emptying, food is sitting in you stomach too long which causes excessive reflux and in worse cases it can cause vomiting. There is a simple test, you can get at your local hospital to test for delayed gastric emptying. It is an out patient procedure.
My delayed gastric emptying that I have is actually a side effect of taking omeprazole. Once I was completely off the medicine I started getting better. However, it is very difficult to get off a proton pump inhibitor because of acid rebound. If you are thinking about quitting your proton pump inhibitor google "acid rebound", so you will know what you will be going through.

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 9/20/2014 5:14 PM (GMT -6)   
Pink

Just wondering if you are any closer to getting a decision from the consultants as to the next course of action for you? Have they decided if they will operate on you?

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/21/2014 3:18 AM (GMT -6)   
Hi
Cagu I have an open pyloris now so I don't think gastric emptying is a problem, more like I have some bile reflux adding to my problems now.

Trotters, I have a further discussion with my surgeon next week but he is not keen to operate on me at all, it's a nightmare. Sometimes my LES is closed and it's very painful to eat and then I get weak reflux all day long, or at other times it's wide open and there is no pain to eat but free flowing reflux that's agony and damaging.

I now have limited motility and fear I am heading for a fundo and a tube, and not looking forward to it at all, then on other days I think I have no life as it is so why not?

I have also developed cervical radiculopathy and am getting nerve weakness in legs from the upper dilatation's I have had, and am virtually housebound now, if I said I was depressed it would be an understatement.

Surely it can only get better!

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 9/21/2014 3:54 AM (GMT -6)   
😞 so sorry to hear that Pink. I do understand the depression part, it's wearing being in so much pain and discomfort doing something that should come naturally. I think it's hard also when people just don't understand how low it can make you feel. I've had people say "well it's not life threatening and only reflux so what's your problem" I challenge anyone to deal with this disease.

I'm sure if you trust the surgeon/consultant to make the best decision for you that's half the battle. If he isn't keen to operate at all then surely he must have another option, nobody can expect you to carry on the way you are. I really hope next week comes quickly for you and get some positive answers. Please keep up posted pink. X

diaba
Regular Member


Date Joined Aug 2009
Total Posts : 175
   Posted 9/21/2014 6:37 PM (GMT -6)   
hi pink, just wanted to let you know I was thinking about you. I sure hope something can be done to lessen your symptoms. Please keep us posted.

diana

GC1pink
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Date Joined Nov 2012
Total Posts : 532
   Posted 9/23/2014 6:22 AM (GMT -6)   
Finally some good news, got a letter from my surgeon today, he has agreed to operate on me, we are having a meeting now on Friday to discuss it!

I can't wait for the end of acid reflux!

SharonZ
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Date Joined Mar 2014
Total Posts : 1368
   Posted 9/23/2014 7:07 AM (GMT -6)   
Hi Pink:

Prior to my NF in April, I had constant reflux and gastritis. I had multiple endoscopies, barium swallows, BRAVO pH monitoring and a manometry. I had a full wrap and hernia repair, done via robotics, and have not had any reflux episodes since the surgery. I am not taking any PPIs and have not used an inhaler or had any of the asthma symptoms that had been the result of the reflux.

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 9/23/2014 7:48 AM (GMT -6)   
Pink

That's great news!!! So, so pleased for you! A giant step forward towards you feeling loads better!

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/23/2014 8:17 AM (GMT -6)   
Sharon that's fantastic news I'm thrilled for you, it's so lovely to hear a really positive result!!

trotters- I'll keep you posted on how I get on, I'm refluxing now even as I eat, it's revolting.

I'd never even heard of hernias and reflux until 2 1/2 years ago, what an odious disease it is!

diaba
Regular Member


Date Joined Aug 2009
Total Posts : 175
   Posted 9/23/2014 11:15 AM (GMT -6)   
pink, great news! Keep us posted.

Poppie
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Date Joined Feb 2014
Total Posts : 2133
   Posted 9/23/2014 7:25 PM (GMT -6)   
Congrats! Glad to hear your going to be helped.
Samantha, 45 yrs
Diagnosed. Left sided UC, 8th Feb 2014
Pentasa..2g daily
2 x Ultimate Flora 50 billion probotics, Vit D, and Multi vitamin tab daily.
Stopped smoking Jan 2013.

1039smooth
Veteran Member


Date Joined Sep 2013
Total Posts : 2049
   Posted 9/23/2014 8:42 PM (GMT -6)   
I had some pretty bad episodes prior to surgery. My throat burned so bad, not much could help it.

1st scope: Medium hiatal hernia, stage 4 esophigitis, GERD
2nd is blurry
3rd scope: Esophigitis cleared up, but revealed Barrett's.

Sorry for not responding sooner. Few respond to me, too.
LapNissen Fundoplication, 8/9/13
GERD, Anxiety, Depression

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/24/2014 1:25 AM (GMT -6)   
Thank you Diaba, Poppies and 1039 smooth.

1039 smooth, glad to hear you have had the surgery, and really hope that you are back to normal now!

Pink

1039smooth
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Date Joined Sep 2013
Total Posts : 2049
   Posted 9/24/2014 4:53 AM (GMT -6)   
Pink, I had some heartburn the other night from overeating as well as a sore throat, so that has me worried.
LapNissen Fundoplication, 8/9/13
GERD, Anxiety, Depression

GC1pink
Veteran Member


Date Joined Nov 2012
Total Posts : 532
   Posted 9/24/2014 8:53 AM (GMT -6)   
1039 smooth,

Sorry to hear about the heartburn, but if it was from overeating and not just a general meal then I don't think you have too much to worry about.
The repaired LES is not completely back to how it once was, it never will be with a fundoplication. If you over eat you will cause gastric distension and you are bound to get some reflux, I honestly wouldn't worry about that too much.

Keep us informed of your progress, and fingers crossed for you!

Pink

1039smooth
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Date Joined Sep 2013
Total Posts : 2049
   Posted 9/24/2014 4:01 PM (GMT -6)   
Pink,

It lasted from Monday night until sometime yesterday. Today, I just had general discomfort around my heart, my left hand tingled, and I just didn't feel right. I ate a slice of pizza, half a roast beef croissant, some Doritos, a Hawaiian Punch, and some gummy bears. There's a chance I might be stupid. lol. I took some pepto to combat it.

Usually overeating messes with my stomach and not so much the higher up.

I try to eat slower, but old habits die hard. My emptying is good, stool is good and I've had some other tests, too. The doctor does want to perform a colonoscopy. Seldom are my stools shaped the same. CT scan did reveal gallstones. I see a surgeon about that on the 30th.

My swallowing has gotten better and I've gained about ten pounds back. I went from 225 to 168. At a time after the surgery, I crept back up to 200, had some complications, and lost again.

I'm still afraid to lift much. :(

How are you?
LapNissen Fundoplication, 8/9/13
GERD, Anxiety, Depression

1039smooth
Veteran Member


Date Joined Sep 2013
Total Posts : 2049
   Posted 9/24/2014 4:02 PM (GMT -6)   
Pink,

It lasted from Monday night until sometime yesterday. Today, I just had general discomfort around my heart, my left hand tingled, and I just didn't feel right. I ate a slice of pizza, half a roast beef croissant, some Doritos, a Hawaiian Punch, and some gummy bears. There's a chance I might be stupid. lol. I took some pepto to combat it.

Usually overeating messes with my stomach and not so much the higher up.

I try to eat slower, but old habits die hard. My emptying is good, stool is good and I've had some other tests, too. The doctor does want to perform a colonoscopy. Seldom are my stools shaped the same. CT scan did reveal gallstones. I see a surgeon about that on the 30th.

My swallowing has gotten better and I've gained about ten pounds back. I went from 225 to 168. At a time after the surgery, I crept back up to 200, had some complications, and lost again.

I'm still afraid to lift much. :(

How are you?
LapNissen Fundoplication, 8/9/13
GERD, Anxiety, Depression
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