Many thanks to the GERD forum!! New member story

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New Member

Date Joined Feb 2013
Total Posts : 4
   Posted 10/8/2014 11:22 AM (GMT -6)   
Hello all,

First off, I would just like to say that this forum has been a saving grace for me. Although this is my first time posting, I have been reading the GERD forum discussions for months. These posts are informative and have provided me hope for dealing with this condition. So...thank you to all who have contributed!!

I'm a 36 year old married mother of two young children. I was diagnosed with silent reflux in February 2013. A few months leading up to that I was coughing, had a runny nose, and had to clear my throat almost every time I spoke. I was teaching Business English at the time, and the constant throat clearing was rather annoying for me and my students!

I went to my primary doctor and he suggested that it was probably allergies. He prescribed anti-histamines and an inhaler for two weeks. When I returned two weeks later and told him the medication didn't make any difference, he ordered for me to have a Prednisone injection. I did, but change.

I started researching on the internet and found that my symptoms matched silent reflux perfectly. By this time, I began having a lot of difficulty swallowing. It got so bad that I was unable to eat solid food and lived off of vanilla pudding for a couple of weeks. I went back to the doctor with my internet research and asked to see a gastroenterologist. I was given an endoscopy and they found an opening in my LES and that I had grade 1 esophagitis. I was put on Omeprazole 20mg twice daily for 6 weeks. Thankfully my esophagitis cleared up, but while on the medication I experienced terrible headaches. And so began the hunt for the "perfect" PPI.

I have been on 4 different kinds of PPIs due to side effects. My silent reflux evolved to GERD and I was diagnosed with gastritis in February of this year. I'm now dealing with burning pain in my chest and stomach, waking up with a sore throat (and yes, I sleep with a wedge!). I am now on my 5th PPI - Dexilant 60mg a day, in addition to Gaviscon and Zantac as needed. Last week, I had the esophageal motility test and the 24 hour PH test. I am currently waiting for the results.

I realize there is a big push by doctors to use PPIs for silent reflux and GERD, but I no longer feel comfortable being on this medication. While it does seem to help some people, for others it creates more complications and comes with uncomfortable and unpleasant side effects.

The last time I saw my gastroenterologist I told her I was seriously considering surgery. She seemed to think that there is a PPI out there for me, but we just haven't found it yet. I've had this condition for almost 2 years and I feel I need to do something more. Now.

I'm an American living in Canada and the only surgical procedure offered here in the Nissen fundoplication. I really don't want to get that surgery because it's rather invasive and I have read about people having difficulty swallowing afterwards, not to mention the inability to vomit and the need for a possible re-wrap in the future. However, I know some of you have had successful surgeries. The Linx, Stretta and EsophyX procedures are not currently an option for me.

The most frustrating thing about GERD is it's unpredictability. Some days are good, some are bad. You have to change your whole way of thinking when it comes to food. I think there are a lot of people out there who underestimate just how miserable GERD, silent reflux and gastritis can be. It really affects your mental and emotional state. And when you have a combination of the three like I's almost unbearable.

Thank you for taking the time to read my story. I hope to become more of an active participant in this forum.



P.S. - To all you ladies with young children: I was actually told by my gynecologist that my weak LES may have been caused by my son! I carried him very high, which created pressure on that area. I had no GERD or silent reflux symptoms prior to or even during the pregnancy. I didn't start experiencing symptoms until after he was born.

Post Edited (DD78) : 10/8/2014 11:25:38 AM (GMT-6)

Regular Member

Date Joined Jun 2014
Total Posts : 329
   Posted 10/8/2014 12:15 PM (GMT -6)   
Hi sorry to hear you are suffering but hope it offers some comfort to know that there are many of us suffering with this horrible disease. I've found it a great comfort when things start to get me down just knowing there are others who understand how you feel.

I'm a 37 year old mom of 2 and whilst I think I have always suffered to a certain degree, my symptoms greatly increased following childbirth.

I agree with you ref the ppi, I think they can be absolutely brilliant for some and majority of people do not have any adverse side effects but like you, they just do not agree with me at all.

Prior to me having the nissen performed in May, I'd say my symptoms were silent" gerd. On occasions I suffered terrible chest poain and burning but my main symptoms were chronic cough, inflamed bronchi and respiratory symptoms, throat clearing, ear pain, burning nose and throat. I have been told it was asthma and was on inhalers for many months with no joy and since been told it's not asthma.

Unfortunately, I'm one of the few unlucky ones who the nissen hasn't been a success for. I reluctantly started back on lanzoprazole nearly 2 months ago and whilst they did eliminate a certain amount of chest pain, they gave me terrible stomach cramps, constipation, diarrhoea, increased my palpitations and I'm also plagued with hair loss. I've been off the tablets over a week and I've realised I've now got horrific burning in my stomach which I've never ever had before and have to eat very often to get rid if the pain. It could be rebound acid but just wished I'd stayed away from them to be honest. I'm trying to get by with gaviscon advance.

I wouldn't write off the nissen, for the vast majority of people it is a huge success... (Heartbroken I'm in the minority) and I think there are lots of horror stories about recovery etc. Although mine hasn't been a complete success I can safely say I would happily go through it all again if it meant me being symptom free. The only real discomfort I felt was gas pains which lasted a day and was bearable... Childbirth is a million times more painful :-)

Sorry for rambling on!

Hope you find some relief from your symptoms soon... It's hard being happy go lucky mummy when you feel so grot.

Take care

New Member

Date Joined Feb 2013
Total Posts : 4
   Posted 10/8/2014 7:17 PM (GMT -6)   
Hi Trotters!

I'm so sorry to that the Nissen surgery didn't work for you. Is there any possibility that the wrap isn't tight enough? I have the same fears as you, since the PPIs are kind of hit and miss, what if surgery doesn't help either?

And you're absolutely right, it's so hard to be a happy mom and be active with your kids when you're feeling like crap most of the time. My daughter recently asked me why I don't eat the same meals as the rest of the family. I had to explain that mommy has a sensitive stomach and can only eat certain things. It actually made me sad to say that.

I think I will end up getting surgery at some point. I can't imagine going on like this for much longer. It's not worth the risk of waiting and developing something worse.

I wish you all the best!!


Forum Moderator

Date Joined Mar 2012
Total Posts : 1110
   Posted 10/14/2014 11:50 AM (GMT -6)   
Glad to hear that the forum has been helpful. I became a Moderator because it helped me more than any doctor or anything else I read online.
GERD Moderator; Diagnosed GERD, possible IBS; Gluten free since 2012; low lactose since 2012
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