Posted 10/13/2014 6:00 AM (GMT -7)
I know exactly what you're going through. Have similar symptoms - the sore/burning throat and tongue. The symptoms are like rollercoaster--one day they're liveable the next day, they're not. Even in the same day..I can have a good morning..and by afternoon it feels like all hell has broke loose. Going on day trips are the worse...you're always frightened..what kind of day is my throat going to let me have??
Everyone I know, has no clue what it feels like. They tell me to just 'ignore' the reflux. Or to hell with it, just 'eat what I want', as they scarf down burgers, pies, etc etc. I get so irritated and annoyed, because they have no clue what they're talking about!
I have been suffering from LPR symptoms for 8 months (a little longer than you). I'm also young, in my late 20s, and live a healthy lifestyle (exercise each day, careful about what I eat). And like you, I suspect my symptoms were brought on by a period of psychological stress. I am also a type A personality, high achiever, organized, ambitious... But until now, never really suffered from any illness in my life. This illness for sure has changed the way I think about health--and I realized now, how much I took my health for granted..I always felt I was invincible, and constantly worried about other people's health..not mine!
It's sad to say, but I have also been let down by the healthcare system, and medical field. I have been to different specialists (ENT and GI) and nobody knows what's causing my symptoms. They have simply dismissed me...with a 'I'm sorry, I know this isn't what you want to hear..but I'm stumped. I don't know why you're having symptoms'. It's so frustrating. Even after a gastroscopy, and every test you can think of..they still can't diagnose me...except to say..I saw a little 'redness' and 'inflammation'..'no doubt you're having reflux'...well no **** sherlock! (sorry, just a little frustrated here). When it comes to treating LPR/GERD...medicine is really primitive as you said.
I'd say something you can look forward to though..is around the 6th, 7th month..the soreness and burning went down slightly. I'd say from a 7-8/10 to a 6-7/10...on good days..it can be a 4-5/10. I know, I know, not much improvement. but hey, at least it's something to hold onto. Unfortunately, my dad also has GERD/LPR for 4 years. And he really has not improved much. He told me on his good days, he's a 5-6/10. Which I think is horrible.
I was like you...in denial that this was a chronic disease..and frantically looked for answers..for cures..for anything..because I said to myself..this isn't me..I'm young, I can bounce back..
Then I went through a frustration and grieving period..when my body wasn't responding the way I wanted it to..despite all my efforts..it was letting me down...and then I entered a depression phase...when I realized I was in this for long haul..permanently..forever..
Now I bounce between depression and acceptance of my new disease state...One day, I think..well I can accept this..this is just a part of me..a new me...other times I cry, break down, or just silently retreat. this is usually when a memory is triggered...a happy memory..like when I see pictures of me just a year ago, travelling with my boyfriend...visiting exciting new places, eating whatever I wanted..laughing, so carefree..being able to wake up smiling in the morning...wearing pjs and enjoying a warm cup of coffee, or milk tea, or some freshly squeezed orange juice..these are all things of the past.
What's worse is thinking about all the dreams of travel, trying new cuisines..starting a family...how much harder these dreams are going to be, to make them come true..:(