Best test to actually diagnose LPR

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cokie
Regular Member


Date Joined Jul 2011
Total Posts : 315
   Posted 10/17/2014 9:28 PM (GMT -6)   
Despite the fact I had every test imaginable in 2011, I have only had a throat scope by my ENT for my recent symptoms of mucous in throat, constant throat clearing and feeling of lump in my throat. I have also suffered from neck pain for years... I just live in fear with the thought " what if something is really wrong"---
My gastro doctor has not ordered an endoscopy because he says he wants to test the PPI response first...
should I have a Menometry(sp?)...or another endoscopy or a barium swallow...How can my ENT possibly determine that I have LPR with only a throat scope?
Does anyone just feel a constant purge to clear the throat?

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 10/18/2014 2:26 AM (GMT -6)   
Yes..constantly, it's not just my throat I also feel the urge to clear stuff from my upper airways which is cough t and throat clearing combined too. I have constant mucous in my mouth and throat. I have collarbone/neck and shoulder pain all on the left hand side. I never put 2 and 2 together before but as the pain us very similar to the pain following a nissen, I'm presuming it's diaphragm irritation. Funnily enough my ENT didn't actually see solid evidence of lpr but he said that may be due to me taking ppi and still thinks my issues are lpr. Think most doctors trial ppi first and if the symptoms ease then they attribute them to gerd/lpr. The lump in the throat should ease on ppi.

Post Edited (Trotters) : 10/18/2014 2:35:51 AM (GMT-6)


cokie
Regular Member


Date Joined Jul 2011
Total Posts : 315
   Posted 10/18/2014 11:29 AM (GMT -6)   
I just read some of your posts--sounds a lot like me...I just read some of a book by Dr. Kaplan ...it is discouraging because he feels the PPI approach is futile..he hypothesizes that we are probably suffering from a deficiency of acid as well as digestive enzymes thus causing this awful stuff attributed to LPR...I am tempted to stop the Protonix and Zantac and go get some digestive enzymes and probiotics.. Have you tried either? I did three years ago when this digestive nightmare began...before that time, I never had digestive issues except years ago in grad school....
Do you mind me asking your age?
Does your throat clearing ever get better? How long have you suffered with it?

PrivatePrime
New Member


Date Joined Oct 2014
Total Posts : 8
   Posted 10/19/2014 10:28 PM (GMT -6)   
Hey guys,

I'm in the same boat as you. My dr had me try a few PPIs: Omeprazole for a couple of weeks, Lansoprazole for 30 days, and on protonix for 3 weeks. Protonix was the only one that didn't give me headaches.

After using these 3 PPIs, I felt like not only my symptoms got worse, but when I wasn't taking them, they would give me severe heartburn (something I never had). I also felt like they "dumbed" down my mental acuity.

My doctor after seeing that none of these are helpful has suggested that I do an endoscopy at this point. But you know what's troubling? I've managed to get my symptoms under control with diet tweaks and exercise. So I'm not sure I want to put myself through the risk of endoscopy when all the symptoms lead to LPR... So I totally understand your frustration and anxiety about what REALLY could be causing the problem (we're all afraid we have some kind of cancer).

What I've done that helps me (and what I've found not to be helpful):

- It seems to me that with LPR which tends to cause symptoms in the neck and head area (throat problems, saliva, tongue burning, taste issues, swallowing symptoms etc), using a wedge pillow has ZERO help. Why? The majority of symptoms us LPR sufferers experience are when we're "upright" not when lying down.
- Not eating bread, and tomatoes is very helpful
- Eating light, well cut up, or easily digestible protein with lots of fresh fruit/vegies doesn't trigger my throat problems as bad. For example, I tend to eat more egg white, ground turkey etc instead of rough hard to chew beef, or processed crap meat like sausages. Think of this disease as a gift in disguise that pushes you to even eat healthier. For breakfast for example, I eat a shake of fresh veggies, vanilla protein, and probiotic yogurt etc. It makes me feel great and doesn't trigger my symptoms because it's so easy on my digestive system.
- I've just started taking probiotic OTC pills that have 5 billion organisms per capsule. I'll report back here on my experience.

Post Edited (PrivatePrime) : 10/19/2014 10:31:15 PM (GMT-6)


Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 10/20/2014 7:14 AM (GMT -6)   
Hi Lillye

I have stopped PPi and whilst I have had burning and a burning stomach at times, I have found I have managed to cope with Gaviscon advance. I mainly get the burning in the early hours of the morning whilst lying down now which is what I was getting whilst on PPI apparently PPI can have breakthrough acid. Considering my symptoms are mainly worse at night and I was still getting them at night I thought It pointless to stay on them. The side effects I experienced on ppi far outweighed any relief I felt whilst on them.

It's interesting what you say about low acid, despite me having the fundo performed I can still produce a burp that any man would be proud of and it almost always tastes of what I have eaten, sometimes 5-6 hours earlier. Also, when I had my first ph probe test performed, I vomited my breakfast which was still mostly undigested, despite me eating 4 hours earlier. Perhaps this is my problem ...hmmmmm.

Since stopping PPI I have been taking a multivitamin with probiotics in, extra b12, extra iron and probiotics with 20 billion bacteria in them and I have to say the gurgling in my stomach has eased significantly, I haven't had any bloating, hardly any excess gas and have been able to go the loo again! Sorry to be so open! Probiotics haven't exactly taken my gerd symptoms away but they have eased other uncomfortable symptoms which in turn has made it easier to cope with. I'm afraid I'm still plagued with the dreaded throat clearing much to my colleagues and families despair! It's worse in the morning, after biggish meals and fatty food (not that I have the last 2 very often any more, I'm too scared to eat!)

Oh and I'm 37 but feel about 77!! Not sure how I'm going to cope with this until old age!

I think if you feel like you aren't getting significant relief with ppi it may be worth giving probiotics/enzymes a whirl??

Keep me posted on how you get on:-) take care.

cokie
Regular Member


Date Joined Jul 2011
Total Posts : 315
   Posted 10/20/2014 8:14 PM (GMT -6)   
I don't believe the PPIs help me either... I am in my early 60s but before three years ago, I was never ill and never had digestive issues....For me it came on very suddenly and did not abate for a year..Before I got sick, I was running everyday and traveled to do bike trips and hiking. I am back to doing some of that but these issues surface every few months just when I mistakenly believe I am almost healthy again..
I do take a probiotic and I have been sucking DGL ( diglyccerized licorice) tablets which have made the lump in the throat go away..I have never experienced the burning typical of GERD but have had the chest pains and now the throat clearing.. Also, I have had neck pain for a few years..
I did take vegetarian digestive enzymes in the past and may try them again....Thanks for suggesting that...
I sincerely hope and pray that we find something ( either a supplement, a lifestyle change or grace) to help us overcome this uncomfortable way of life.

Trotters
Regular Member


Date Joined Jun 2014
Total Posts : 329
   Posted 10/21/2014 4:46 AM (GMT -6)   
Hi, Mine came on very suddenly. Looking back I have always experienced regurgitation and very occasional heartburn. I have a very weak LES which I think is hereditary but it I really started to experience the cough, chest pain, burning and mucous when I was finally diagnosed with endometriosis. I think the stress of it all and also popping ibuprofen every couple of hours really started this nightmare off. If only it would bugger off as quickly as it came!

One last thing...would you not be a candidate for surgery? Has your doctor ever suggested? Despite me being in the minority of success stories, I'd wholeheartedly have the op again if it meant there was a chance to be free of this. Wish you well and have a good day.
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