Incompetent doctors!!!!

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electracat
Regular Member


Date Joined Sep 2009
Total Posts : 89
   Posted 10/21/2014 12:53 AM (GMT -6)   
Rant:

Went to see local ENT today, who did throat scope. Found 'arytenoid edema' and 'mucus pooling in esophageal inlet'. So, nothing too serious i guess, damage-wise, at least not yet. I was diagnosed with LPR.

However, doc could NOT: Pronounce 'endoscopy' correctly (or know what it entails); tell me how PPIs work (I had to tell her) (even though she prescribed them); understand how we might aspirate mucus/acid/pepsin into our lungs, amongst other things.

Me: "Why should I go on a PPI, when it only treats the symptoms and are not good long-term"?
Her: "Well, I'm not sure how they work, but our patients only stay on them for a month, then we wean them off'.
Me: What's the point in doing it at all, then?
Her: Well, if they work, then we know you have LPR.
Me: But you already said I have it...?
Her: Well...

If it were being prescribed due to damage to airways, fine. But what's the point, anyway, if one needs to get off them after a month? I know they're not safe long-term. My point is, after you go off them you'll have the same symptoms/issues with reflux, right? So what's the point in going on them at all??? Argh.

I will see another ENT at some point, but I'm going to work on diet right now. Maybe try to figure out the pepsin thing.

Alcie
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Date Joined Oct 2009
Total Posts : 5029
   Posted 10/21/2014 8:23 PM (GMT -6)   
Maybe it's time to see an actual gastroenterologist and find out what's causing the problem.

A gastro will likely have a different attitude toward PPIs too, might keep you on them long term. Just for example, if you have a bad lower esophageal sphincter, getting off PPIs isn't an option, unless you have surgery to correct it.

I was on PPIs for many years before finally needing surgery from another cause. Non-acid fluids don't burn the esophagus, etc.

PrivatePrime
New Member


Date Joined Oct 2014
Total Posts : 8
   Posted 10/22/2014 3:50 PM (GMT -6)   
"You" are the best Dr. you'll ever have, because you care about making you better the most. That's why I saw _three_ Gastroenterologists and then _I_ decided which one of them sounded like they actually listened to their professors in medical school. (And I put up with the grumblings of the third one for seeking 3 opinions.. so what? We have 1 life - It's ok to be thorough). It sucks specially with LPR because the diagnosis, with our insanely primitive science of medicine, requires a long guessing game of ruling things out.

I firmly believe we have a greater responsibility than the medical professional for the outcome of our treatment because it's our responsibility to do the research and find the right Dr. and right medical center. Mediocrity and careless-ness is bountiful in this world. So in your situation, I would never see that Dr. again :-( (mainly because they have no idea how PPI works).

Post Edited (PrivatePrime) : 10/22/2014 2:53:25 PM (GMT-6)


electracat
Regular Member


Date Joined Sep 2009
Total Posts : 89
   Posted 10/22/2014 5:58 PM (GMT -6)   
Alcie, I did see a gastro, had an endoscopy done, but haven't measured the strength of the sphincter. How did you find out about yours?

PP, you are absolutely right, and I will see other docs to rule out stuff. Working on diet/supplements right now (until I find out anything else of consequence), because that is NOT what docs look at first. Crazy, isn't it? So much research done on low stomach acid, SIBO, etc., and yet so many 'western' docs just throw meds at us, first, and don't even seem to know the basics of stomach health!

So, when my parents tell me to 'just take the meds', I have to patiently explain the benefits of doing my own research, and the fact that docs are not gods!

Good health, everyone! And PP, good luck tomorrow! You'll be fine. :)

ericapeace2000
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Date Joined Mar 2012
Total Posts : 1110
   Posted 10/23/2014 2:23 PM (GMT -6)   
You have to be your own advocate. Doctors should have a well rounded approach instead of throwing pills and they should try the least restrictive treatment first (like an H2 Blocker) before just giving out PPI drugs. But they are not always this way. That is why this forum is such a helpful tool. I was on PPI drugs for 8 years and I felt ill. Turns out those drugs gave me IBS. I now take Pepcid AC and I have learned to manage both conditions.
GERD Moderator; Diagnosed GERD, possible IBS; Gluten free since 2012; low lactose since 2012

electracat
Regular Member


Date Joined Sep 2009
Total Posts : 89
   Posted 10/23/2014 3:04 PM (GMT -6)   
I agree, Ericapeace, and I am so glad I've found this forum and others. I do take a Pepcid AC when things are really bad, but I'm going to focus on diet because I'm pretty sure the PPIs will not lead to anything very beneficial. I'm so sorry they caused you more distress. Scary.

I was just amazed at how mis- (mal-?) informed docs are. We truly do need to be our own health advocates.

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 10/23/2014 9:11 PM (GMT -6)   
After all, it is the "PRACTICE" of medicine. The more you practice, the better (hopefully) you get by lots of experience.

One of the professors told us that when you visit a physician, he has just these choices: 1. Refer to a specialist, 2. Refer for tests, 3. Prescribe medicine, or 4. Do surgery. He said it's as simple as that.

He also said that the doctor will ask you a series of questions. He's trying to match the symptoms to a disease he is already familiar with. They stop listening to the patient. Usually within 5-10 minutes. As soon as the match is completed in his mind.

When done in this manner, a disease is nothing more than a set of symptoms, based on his experience and education. His diagnose has been made without hearing it 'all.'

While there are truly wonderful docs out there, my experience has shown me that they need an understanding of health on the body as a whole and listen to concerns beyond the "match" They are missing too much. What are your thoughts?

Thanks for listening to my rant too. BTW, I love my doctor. He listens!
electracat, I understand. Wish you well. Kindly regards. Pat

electracat
Regular Member


Date Joined Sep 2009
Total Posts : 89
   Posted 10/23/2014 9:16 PM (GMT -6)   
Thank you, Pat! Wishing you well, too.

I always think of the 'diagnosis' column in the NY Times magazine section, in which docs really have to think outside the box in order to solve (often potentially fatal) physical ailments.

But generally, what you said makes sense. They have a series of steps to go through, and then they're usually done. As my friend said, they prescribe what is most common, not necessarily what is correct.

Good luck to us all! My mom gently chides me for looking up stuff on the internet too much---health stuff--but I tell her it's the only way I'll find the truth. Or something close to it...hopefully. ;)

I'm also going to find a doc I trust...I know they're out there. Glad you've found a good one. :)

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 10/23/2014 10:02 PM (GMT -6)   
Thanks electracat. I've been told to leave the Internet as it's not accurate. I feel it is helpful to read other opinions, options etc. I've had to explain rebound to a GI doctor. He wasn't familiar and said he never had a patient experience it. I told him it was all over the net including medical journals. Several months later he was telling us about it. Wonder who educated him!

Same thing with LPR. 'No such thing' hah! Not a real diagnosis.

I know you can't know everything in the medical field. I see unopened/unread medical journals in the waiting room and restrooms. The assistant said when they are delivered they just put them out on the table.

Maybe what we need is a physician who had (in the past and cured) his LPR or GERD. then they would be able to empathize some and listen 'outside the box'. And fix us too. My best to y'all too.
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