Welcome to Healing Well! Sorry to hear you're suffering. People respond differently to reflux. Some can have very little reflux and get lots of pain and symptoms. The fact that there was some damage to your esophagus is evidence of reflux, which is why your doctor has you on PPIs.
If your esophagus is sensitive, it would explain why you're reacting to your reflux with the discomfort you're experiencing.
Before I had my Nissen fundoplication surgery, I would get gastritis and reflux episodes that would lead to very painful esophagitis. Healing esophagitis takes a lot of time and patience. Being on a PPI an hour before breakfast and an hour before dinner can be an important part of getting it healed and comfortable. Be sure that the first thing you eat after the hour wait time is something high in protein (like milk). This ensures you get the full positive effect of your PPI.
When I suffered from esophagitis and gastritis enough to be very painful, I couldn't eat anything like beans, broccoli or apples. The only thing I could tolerate at its worst was egg custard. Be sure that whatever you eat is chewed to a liquid and is smooth before swallowing. This will protect irritated tissue from further damage.
There is one thing that aways helped me when my esophagus/stomach were inflamed. A prescription drug called Carafate suspension coats, protects, and provides comfort. It's worth a try if you've got good prescription insurance (it's expensive). If you don't, you could try the generic version. It's called Sulcrafate, and comes in a tablet. You can melt the tablet in a little medicine cup or shot glass by adding a little water and stirring it. Then throw it back like a shot. By melting it, it can coat your esophagus on the way down. The Carafate suspension works better if you can get it, but I've used the Sulcrafate and received comfort from it as well.
Patience and careful eating will make all the difference. This type of healing can take months, not weeks, so don't panic if it takes time. Hang in there!
Nissen Fundoplication 2/09
"Whatever you fight, you strengthen, and what you resist, persists.”
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“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”