GERD for 2 years and need some advice

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chrispy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/28/2014 6:55 AM (GMT -6)   
Hello everyone, I am new here, chance upon this site while browsing the net for some tips. Hope that some of you may be able to offer some advise since I never had spoken to any other people who shared the same problems.

I am diagnosed with H. Pylori infection almost 2 years ago. I had acute gastritis, and GERD as the primary symptoms. These symptoms got me to take an endoscopy and confirmed the results. I took PPIs to control GERD and after that I took the 2-week course to eliminate the H.Pylori.

After that my GERD didn't seem to get any better. In fact I felt that I was burping much more than before. I tried many things, like exercise, controlling diet, protein based diet, stopping smoking, but none seem to work.

Everyday I had to live with constant reflux and excessive burping like hundred over times a day. It has affected my life so much that I felt that I can no longer do stuff like sports or travelling. The only relief that I can get is taking back the PPIs, which reduces the reflux and burping. (only reduces, but still occurring)

Fast forward to 2 years to now, I feel my esophagus is already sore with all the reflux I am getting. A few years more down the road, I am not sure if I am going to have any esophagus left !

Anyone able to offer some advise or to share some experience will be so much appreciated !!!

Thanks a lot for reading.

Chris

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8384
   Posted 10/28/2014 8:15 AM (GMT -6)   
Have you tried switching brands of PPIs?

You said you controlled your diet, but did you follow GERD guidelines like reducing meal size, avoiding high acid foods, elevating your head at night?

It is probably time for another scope.
*******************
52 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day) generic Colazal (9 6 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (2 tsp daily), mesalamine enema as needed. Gluten free as of 5/30/11. Scope in 8/11 found no evidence of inflammation!

chrispy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/28/2014 8:47 AM (GMT -6)   
Hello Kazbern,

Thanks alot for your reply and comments.

I felt that all PPIs are not as effective as it was when I still had the H.Pylori. - Once the H.Pylori is eradicated, the PPIs somehow didn't felt as effective as it was - in terms of controlling reflux and excessive burping. (I was on PPI medication (Pentoprazole) for about 5 months before I done the endoscopy to confirm the H.Pylori infection)

In terms of controlling the diet, i tried many stuff during these 2 years. the only difference so far is 1. Normal Reflux, 2. Bad Reflux, 3. Very bad Reflux.

Even when on an empty stomach or when just drinking water, I still have a need to belch constantly.

So it is advisable to do a scope every year?

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8384
   Posted 10/28/2014 9:39 AM (GMT -6)   
Your GI doctor should discuss with you how frequently you need to be scoped.

Many people find that one PPI will stop working and another will be more effective. I spent two years on Nexium before switching to Prevacid and getting better within weeks.

My daughter got no relief on Prevacid and did really well on Dexilant.

Get a different PPI and see if that helps.
*******************
52 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day) generic Colazal (9 6 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (2 tsp daily), mesalamine enema as needed. Gluten free as of 5/30/11. Scope in 8/11 found no evidence of inflammation!

AWadd618
New Member


Date Joined Oct 2014
Total Posts : 6
   Posted 10/28/2014 12:11 PM (GMT -6)   
chrispy said...
Hello everyone, I am new here, chance upon this site while browsing the net for some tips. Hope that some of you may be able to offer some advise since I never had spoken to any other people who shared the same problems.

I am diagnosed with H. Pylori infection almost 2 years ago. I had acute gastritis, and GERD as the primary symptoms. These symptoms got me to take an endoscopy and confirmed the results. I took PPIs to control GERD and after that I took the 2-week course to eliminate the H.Pylori.

After that my GERD didn't seem to get any better. In fact I felt that I was burping much more than before. I tried many things, like exercise, controlling diet, protein based diet, stopping smoking, but none seem to work.

Everyday I had to live with constant reflux and excessive burping like hundred over times a day. It has affected my life so much that I felt that I can no longer do stuff like sports or travelling. The only relief that I can get is taking back the PPIs, which reduces the reflux and burping. (only reduces, but still occurring)

Fast forward to 2 years to now, I feel my esophagus is already sore with all the reflux I am getting. A few years more down the road, I am not sure if I am going to have any esophagus left !

Anyone able to offer some advise or to share some experience will be so much appreciated !!!

Thanks a lot for reading.

Chris


Welcome, I am also new here.

To start, it is unlikely that you will sustain the kind of significant damage to your esophagus in such a short period of time. That is, unless, you are honestly having reflux soo severe that it is pure acid coming up all the time. That being said, I fully understand how miserable this is and how it impacts your life.

Pre-GERD, I was extremely active, and now it seems like I need to plan every aspect of my life around this stupid problem. I have been this way for almost a decade.

For me, in order to exercise I either need to put up with constant throat issues and regurgitation, shortness of breathe, and nausea, or I need to not eat within about 6 hours of exercise. The same goes for food at night: if I eat within 4 hours of sleeping, I wake up the next morning feeling like I woke up an hour before and ate a whole pizza. It's like everything just stays in my gut forever.

Your options are basically limited to adjusting diet and lifestyle, taking meds (PPI's and H2's, etc), or having a procedure done such as Nissan or TIF. Personally, I don't mind taking meds as long as they are safe, but since I have been taking them for many, many years, I no longer want the burden of constant attention to my stomach acid.

I've elected to try the TIF procedure and see how it goes. if I get no relief, i'll need to reassess.

This disease is really kind of in a league of it's own. It's something that, compared to so many other issues, appears almost benign... but the problem is that your throat/eso is so close to your mouth, heart, lungs, etc, and it also effects digestion, nutrient absorption, and many other things. As a result, this single problem create a myriad of symptoms beyond just your throat. For myself, the bloating and nausea are the worst. Also, when it gets really bad, the excess pressure in my throat sends my heartrate through the rough... i've often thought I was having a heart attack because of this.

gerdo
Regular Member


Date Joined Nov 2008
Total Posts : 37
   Posted 10/28/2014 7:56 PM (GMT -6)   
Hi Chrispy,
I'm sorry to hear you are having a hard time getting the reflux under control. I have seen this happen in some cases where H Pylori is treated. You may want to look into dysbiosis. It can cause chronic GERD, as well as severe problems with bloating, gas, and cramping. The burping and bloating might be due a weakened digestive system, including an imbalance in the bacteria that break down food, as well as insufficient enzymes. This means that your GI tract may be fermenting food instead of breaking it down. The fermentation can create a tremendous amount of upward pressure on the LES ring, creating a opening for food or gases to back into the esophagus. Also, dysbiosos can create a lot of inflammation along the entire GI tract (including the intestines) so you feel like you have heartburn all the time. There is an interesting description of the H Pylori cycle in a youtube video (in some cases, the treatment may worsen the situation bc the antibiotics prescribed kill the good, the bad and the ugly indiscriminately. If you had few good guys to begin with, too many of them might have been wiped out). Look up John Bergman's presentation on Fermentation, How to get Healthy Bacteria to Your System. I actually took the easy route and did a program to slowly work up a very high dose of the Primal Defense probiotics by Garden of Life for 5 weeks, and then leveled it off slowly. I also took a bottle of powdered form of L-Glutamine to help heal the entire GI tract. I've seen a few people with similar symptoms and background kick GERD in the bucket by doing this. So don't give up hope! It takes about 3 to 4 weeks to feel 90% better.
Of course, I am not a doctor, and cannot prescribe anything, so please check with your physician. Best of luck!

chrispy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/29/2014 2:18 AM (GMT -6)   
Thanks everyone for your comments and advice.

I have read about nissen fundo but never heard of TIF.

Also I have read about dysbiosis and fermentation, which made me cut down on carbohydrates, focusing more on protein. I found there is less bloating if I take meaty stuff over carbohydrates. However this only results in milder reflux and bloating. It's not completely gone.

I tried many times to do away with PPIs, only to give up and taking them back. Since there are so much negative aftereffects from taking them long term.

I also read that the absence of stomach acid causes bloating. The digestive system is just so intricate and complex that I think its impossible to find a solution.

Thanks for the advice and sharing of experience. Maybe I will try the probiotics overloading program and see if it helps

chrispy
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 11/7/2014 12:43 PM (GMT -6)   
Hello everyone, I will like to update on my situation.

I tried the probiotics solution and I must say it really helps a lot .

After 2 weeks of taking plain natural yoghurt after meals 3 times a day, my bloating and especially the excessive burping has reduced significantly.

This in turn reduces my reflux a great deal. Although I still take PPI one tablet just once in a few days , whenever I feel my lower esophagus having a burning sensation, I must say my condition has improved and being under control by a lot since then.

Of course , all these are still accompanied by low carbs diet, avoiding potatoes, rice, sugary stuff .
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