Hi everyone! I posted in another LPR thread but that one doesn't seem to have any traction at the moment. Please help me, as I am feeling scared at the moment regarding my GERD/LPR! I am 38. I started having heartburn in June, and seemingly overnight, I had dysphagia. It went on for three weeks until finally the PPI I am taking started to kick in (omeprazole). In early July I had my first endoscopy, which showed mild (Grade A) esophagitis and mild chronic gastritis, with no H Pylori. The gastro doc also did not find a hiatal hernia (even though I suspect I have one). Around that time, my difficulty swallowing finally showed signs of going away. I was told to resume my regular diet, but I've tried to be very careful about my eating habits (no caffeine, chocolate, soda, tomatoes, etc.)
I was told to continue taking omeprazole twice a day, and I supplemented that with a probiotic (PB8). The probiotic seemed to work wonders. For about a month, I was able to eat normally again, just in smaller portions, and to regain the weight I had lost (about 5 pounds). I was so relieved! I was suffering from other side effects of the medication (constipation, excessive urination, possibly a UTI?). I had just gone to my GP to discuss the excessive urination. We chalked up to me drinking a lot of water, almost overhydrating. I was told it was OK to lay off the water a bit.
Eating-wise, everything seemed to be going well until Saturday night. I took my evening omeprazole with
a glass that was about 3/4 full, and I thought the pill went down smoothly, like normal. I didn't worry about it. I went downstairs to talk to friends before dinner as I waited for a half hour to begin eating. At some point, during dinner, I realized that food was not going down as well as it normally did. It wasn't getting *stuck* but my throat felt a little dry, and an acid-y feeling kept creeping in while I was eating. I realize NOW that I may have been dehydrated and perhaps I had started eating before the omeprazole had made its way to the stomach? Is that possible? Not realizing that I had made any mistakes, I also took my probiotic with a 12-ounce Gatorade a couple hours later.
Yesterday was more of the same, if not worse. I was able to eat if I made my food VERY small and liquidified. I started worrying that pills were stuck in my throat, even though a nurse friend told me that that was unlikely. At night, I tried sleeping on my left side, as I heard that was better for acid reflux. But I woke up in the middle of the night feeling as though I was choking on phlegm.
Today, I am able to swallow somewhat, but the dreaded lump in my throat is back! I took my morning omeprazole, and I thought it went down fine. But when I had lunch, I could feel pain under my left breastbone. And when I tried to take the pill before dinner just now, that pain was intense as I was drinking my carrot juice and water to try to get the pill to go down. For awhile, it felt like the pill was stuck at the base of my throat before I drank about 16 ounces, and the feeling went away.
My question is this: Have the events of this weekend erased the progress I had made up to this point? Or is this just a setback that will right itself soon? I was very much hoping that my esophagitis would heal by mid-September (about 12 weeks total) and that I could slowly wean off the medication. Now it feels like I am back at Stage 1, and I am panicking that perhaps I have developed a stricture -- or worse!-- and that healing is now an additional 3-6 weeks away (if this EVER goes away).
I am new to GERD/LPR, and while I haven't been perfect, I have tried to follow the rules. I sleep on a wedge pillow, try to not eat 3 to 4 hours before bedtime and stay upright after meals. Everyone else I know who has had GERD or heartburn says that they had to be on the medication for months but now are back to normal. I am afraid that my case is very severe, and that I may never be able to get off of these medications. I have been so anxious, frustrated and afraid because every day seems to bring discomfort of some kind.
Could someone please offer me some guidance or words of wisdom? I'm beginning to feel hopeless. This level of discomfort and fear (of Barrett's or throat cancer) might be something I learn to live with. Please help if you can.
The reason you didn't get traction on the other LPR post is because it is not a thread you are hijacking someone elses post rather than starting your own. Its unfair to the original poster because you have refocused their post looking for help to be about
you so now the replies are mostly to help you rather than the original poster. If you are unsure the main GERD thread is where you should start your own post even when its about
LPR, https://www.healingwell.com/community/?f=45 using the button at top left which says post new topic. You will usually get a reply pretty quickly.