I am new help, PLEASE

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carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 12/10/2005 11:12 AM (GMT -6)   
I am usually on the crohn's board.....I have been having these weird chest pains lately...The last 6 days have been awful.....It started last saturday all of a sudden , I found myself gasping for air. I thought it was my asthma...I took my puffer so many times ..I then ended up in emergency, They checked my heart, My lungs...Told me it was not my asthma. Weird. Came home and continued to gasp for air and my chest  feels like somebody is sitting on it, also strange feelings in my upper back. It is now the 7th day of this episode , I went to the family doctor, increased my advair for asthma, gave me prednisone and singulair.....Today the breathing is a bit better...But the feeling in my chest and back are still there....Today a kind of burning in my chest...does not feel like heartburn though. Also my throat feels sore , when I swallow it is worse....Does anybody have these kind of symptoms ....I need to figure out what is going on...Very scarey when you cannot breathe and they cannot figure it out.
 
 
Thanks Carmen 

solfed
Regular Member


Date Joined Oct 2005
Total Posts : 22
   Posted 12/10/2005 12:36 PM (GMT -6)   
OMG! Carmen! we have the same symptoms. You described it so well.
Well hopefully this will help you.
For me it started just like that late september, i thought it was asthma coming back after 20 years, or heart problems, i also have mildew at home and thought i had a lung infection.
Later i realized the pressure on my chest was mainly on the left side. At night i would wake up with a stinging feeling sometime in my stomach.
Well i went to 3 docs, my family doc had me on zantac, and it didn't work. the second one, didn't believe that the breathing was GERD related and gave me aciphex and said "come back in a month if you are not feeling well" eyes
I waited for 10 days on aciphex, the breathing thing almost went away, and then i had a burrito and boom!
I felt the breathing thing again and almost felt like i had to go to the ER. Next day went to a new GI doc
ready to have him do an endoscopy and see what i had.
This great physician assistant, answered every question and mainly confirmed that YES the breathing thing is part of GERD, SPECIALLY if you had asthma as a child, your lungs tend to be weaker and more sensitive so GERD affects us that way while other folks with GERD don't get shortness of breath.
The main things she said that has helped me tremendously:


1. Take something to reduce acid (I recommend aciphex)
2. Don't bend over too much, when you bend over the acid can go to your esophagus. I've seen it happen.
I've gone from feeling great to awful in 2 minutes by bending over to pick up something instead of flexing my legs.
3. DON"T EAT FAT. This one is very important, i was avoiding acidic stuff but not fat, try to eat low carbs and lean meat, veggies, some fruits, PROBIOTICS, yogurt.
4. Avoid coffee, smoking, alcohol, sodas, or bubbly drinks, mints, spicy food
5. Raise the head of the bed a little by putting blocks under the feet of the bed or get a "wedge pillow" to sleep on so you are never flat so the acid won't go to your esophagus.
6. Eat smaller meals, stop eating 2-3 hours before you go to bed.

That has done the trick for me, basically you need to give it time to heal. You won't necessarily have this all your life, just baby yourself for a couple months, doing this stuff. It has worked for me, the breathing thing hasn't happened again. I am terrified of it coming back but it hasn't come back.
So i think it is healing, it is hard to be good when you are feeling better, so watch out. I've done that having 2 cups of coffee or eating something spicy. nono

My problem is that i eat out a lot so it is hard to control what you eat and what kind of oil they used and spices, I hear cumin is the worst. So avoid indian and mexican for a while and anything deep fried or fried.


I feel 80% better, the only thing i feel is bloated sometimes when i eat something bad.
Also something that has helped much is Aloe Vera Juice and tablets. If you can go to a health food store
I think Probiotics and Aloe will help you with your Crohn's too.

Hope you feel better soon!! yeah

carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 12/10/2005 3:12 PM (GMT -6)   
Solfed , thank you so much for responding...Today I said I was feeling better with the breathing, all of a sudden it started again...The breathing part...does it feel like 1 in 5 breaths you can take a deep breath and the other 4 you struggle and you just cannot get a deep breath...I am so scared. Did yours just start so quick one day, last saturday , I was just sitting 1 minute I could breath , the next I was struggling and have been since...I am going to do what you suggested....At least when I have my asthma attacks, I know the treatment , but this is so strange and scarey...I have had crohn's for 23 years...but this is experience is really horrible. I feel like I am going to suffocate...I am wondering if it is the inversion machine(the machine that flips you upside that has done it to me. Because I also have a bulging disc. You have given me hope, I will try what you suggested....thanks Carmen

LauraV
Regular Member


Date Joined Nov 2005
Total Posts : 84
   Posted 12/10/2005 3:19 PM (GMT -6)   
Carmen, Solfed offered some great advice.  If you want to be tested for reflux, insist that your doctor order a barium swallow.  This is the first step in determining whether or not you are refluxing.  If you are, the next step is an endoscopy test.
 
Best to you,
LauraV

solfed
Regular Member


Date Joined Oct 2005
Total Posts : 22
   Posted 12/11/2005 1:56 PM (GMT -6)   
Carmen,
I am glad, don't panic. you'll feel better. You know when it started for me was like that all of a sudden a pain and shortness of breath, i thought it was pulmonary and they gave me an inhaler at first and it was worse the suffocation feeling. What did help when i was having that was taking an alka seltzer gold and the breathing was better in a few minutes. But i haven't had that in probably a month now, only minor stomach symptoms and bloating but i feel like my breathing is back to normal.
At first it was scary because i wasn't diagnosed and i didn't know what it was exactly but the doc confirmed it and said to treat it with aciphex and changes in diet and sleeping, etc. If it got worse then we could do the endoscopy, some people like to have the endoscopy asap for their peace of mind, i decided i would wait a while mainly because my insurance doesnt cover it. But it seems like things are definitely improving.
My doc gave me enough samples of aciphex to last a month or two so i am ok.
I think for us that had asthma before that feeling is scary but also we have a higher tolerance of shortness of breath than most people, other people just freak and go to the ER.
Ask your doc about aciphex or a proton pump inhibitor, i am sure that will help.
Have you noticed that the shortness of breath happens at night after dinner specially? Sometimes i would have it vaguely through the day and then at night it would get worse, then the next morning fine.
Hope you feel better soon!!!! take care Carmen!!

carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 12/13/2005 5:46 PM (GMT -6)   
Hi solfed, I wanted to say Thank you , thank you, with your advice , I have now started the pariet, which is the same as the aciphex you are taking, I am in canada, so it is called pariet.... I am on 20mg in the am. I went back to my doctor and explained what you said. She stated it is possible to have gerd, sometimes I have to come on the board for help so I can go back to my doctor and explain what it could be. I am so glad for this board.. How long did they say you should be on aciphex for. My doctor did not suggest any testing yet, should I be concerned. I am so terrified of that breathing attack coming on so strong again.I still feel problems breathing , but getting better.

Thank you so much
Carmen

solfed
Regular Member


Date Joined Oct 2005
Total Posts : 22
   Posted 12/14/2005 6:48 PM (GMT -6)   
hey Carmen,
good for you, I am glad you are on stronger drugs. I think you will be able to see the difference in a day or two, plus if you do the other stuff, girl you'll be feeling much much better
The doc said that it takes at least a month even if you feel better don't stop taking it because it might not be all healed.
It's been a month for me and i the doc said at least a month, most likely two. and we'll see.
I felt great yesterday and today i had coffee at home and then again at work..yikes! it didn't come back but i felt some discomfort. I won't do that again. Yesterday i almost ate chocolate.
I feel like it improves so slowly but it is improving.
The breathing thing, though is long gone. (knock on wood)
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