Linx Procedure 2017 My Experience

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Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 3/9/2017 1:42 PM (GMT -7)   
My legal Disclaimer- I am not a doctor! I am only giving an honest account of my recovery regarding the Linx Procedure. I am in no way suggesting that someone should or should not receive the Linx Procedure. Also, what works for me may or may not work for you. please consult with your doctor for questions or medical advise.

Now to the good stuff.

OK, so where to start. If your reading this, you've been on a long road of misery and still have a very long road until you get to the surgery date. I can explain that later if anyone ask. There are test after test and doctors after doctors you have to see first.

There does not seem to be a lot of 2017 updates for the linx procedure/recovery, so i decided to share my experience. I had the Linx surgery and hiatal hernia repair February 7, 2017. I am now 31 days post op.

First, i will explain why i had the linx device installed and then i will account for the positives/negatives that i have dealt with during recovery from the linx procedure.

Why:
I've dealt with Heartburn/gerd/ibs for 17 years, im in my mid 30's. The last 5 years were the worst. It seems that i was throwing up 3 or 4 times a week because i felt a burning at the base of my esophagus. Also, I work out daily, and if i bent over after taking a drink of water, i noticed the water would run back up my throat and also make me nauseous. Finally, i had enough! No more. If someone wants to know the steps that i had to take to get to the surgery, please ask. For now, i will just talk about what I have experienced.

---surgery day is here and im excited---

I wake up from surgery, very sedated and loaded with anti nausea and pain meds. I did not feel any pain (but that came later on). Doctors come in and ask questions etc.. just checking in

Nurses bring food out a couple of hours later, chopped steak, mash potatoes with gravy and a chocolate muffin. Normally, i would not eat these foods as they would cause massive reflux and nausea for me. But, i said what the hell, i just went through this procedure so lets try it out. I ate a little of everything with no problem. To my surprise a few hours later, no burning at the base of my esophagus. This glorious day had come--- i had a a few more meals overnight during my stay at the hospital. The next day or so i ate just the same at home, i even had sweet tea, grilled cheese (things i have not ate in years) pretty much whatever i wanted. I was so excited.

So, 4 days post op, im slowly coming off the pain meds, i also start to notice a pain at the base of my chest.
That night, fear struck, i took a swallow of chicken and my body froze. I noticed a very strong pressure building in my chest. I took a gulp of tea, BAD IDEA, I swallowed a few more times, nothing. I could breath but i could not swallow. I leaned over the sink and threw back up the chewed chicken and sweet tea. Note that i did not throw up food i had already ate, i only threw up what did not make it through/pass the linx. It seems a the dreaded dysphagia kicked in pretty early. Interestingly enough, after throwing this food back up, i waited 10 minutes and began to very slowly and was able to pass food. dysphagia in my opinion, should be a topic that doctors cover very extensively. I was told about it, but i had no idea just how bad it was going to be.. for me at least. I can honestly say, im a grown man and i was at my wits end. I could not swallow food or water.

The next couple of days i experienced horrible swallowing problems. I literally would swallow water and it would not pass though the link devise. The water sat on top of the linx and my saliva starting sitting on top of that, (i think its called pooling saliva) basically in my case, i couldnt even get water down and when i threw it up, it came up with the globs of saliva that were very thick and stringy. So, i fought it and fought but i gave up. I went in to the medstop for fluids. I was losing weight, over the course of 15 days, i lost 7 lbs and still counting.

I went back to my linx surgeon and said take this out i cant do it. He asked me to calm down and perform a barium swallow test. Please google it if your not show what it is, but my results showed a slight pinch after a soft swallow which was trapping the saliva and soft foods like bread on top of the linx. The surgeon said he wanted to put me back to sleep, do another endoscopy and dilation. Basically put a tube in my esophagus, that tube then balloons up and stretches the scar tissue around the device making it easier to swallow. Since that procedure eating has been easier. But, i still eat small portions, chew forever, swallow and wait.

What i can say is that since the procedure, i do not have the burning feeling at the base of my esophagus nor does water or food run back up if i bend over. Very happy!!

However, i now experience normal heartburn which i havent felt in several years. Antacids usually calm this down.

Now i get Nausea, after meals even after a month.
Weight loss
My scars and abdomen still hurt 30 days post op. Probably doesnt help that i went back to work 6 days after surgery. I just started walking again, my first walk was 5 minutes and i felt ran over by a truck all day. Since that day, ive made myself walk every morning, twice in some days. My goal is to get back to running a mile again and working out.


Recap: Linx surgery fixed what i went in for, but just so you know, the recovery process for me was slow and horrible. I had a very hard time in the first 2 weeks. I almost had the device removed. If the nausea and dysphagia do not get better, i will consider removal of the device.

Please feel free to post questions and comments/suggestions. If you are considering the procedure or you are fresh out of surgery, please ask any questions you have.

hammer44
Regular Member


Date Joined Oct 2012
Total Posts : 44
   Posted 4/9/2017 1:52 PM (GMT -7)   
i will be seeing doctor on 18th April 2017 about Links and i do have a list of questions to ask him.
what i am concern about is the diet during recover ? I know I will be drinking warm water because
I think it will help to swallow of the food and should help the links to open and close without food getting
stuck if every thing went as plan.

hammer44
Regular Member


Date Joined Oct 2012
Total Posts : 44
   Posted 4/9/2017 1:54 PM (GMT -7)   
i will be seeing doctor on 18th April 2017 about Links and i do have a list of questions to ask him.
what i am concern about is the diet during recover ? I know I will be drinking warm water because
I think it will help to swallow of the food and should help the links to open and close without food getting
stuck if every thing went as plan.

law
Regular Member


Date Joined Sep 2005
Total Posts : 81
   Posted 4/10/2017 7:51 AM (GMT -7)   
Chad2322, how are you feeling now? I'm going in for a consult for this procedure and some others, but what you are going through sounds really rough. Linx is not a the top of my list, but I want to see what the doctor says once my test results are in. I'm very concerned about the dysphagia you speak of and also the fact you still have heartburn and have to take antacids. I hope you are feeling better now a month later since your post. Lori

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 4/10/2017 10:41 AM (GMT -7)   
Hammer and Law, i will answer both of you in one post.

hammer ask away- The diet, its going to he be different for everyone. So what what works for me may not work for you. The first couple days i was ok (i ate anything, then dysphagia. I could not even swallow water much less any food. After a consult and barium swallow test it showed that the device wasn't opening as good as it should due to scar tissue forming around the linx so they put me back to sleep for a dialation. During these rough days i drank, water gatorade. Food, i stayed away from breads as they do not go down well. To be honest, until my dialation i could not eat or drink anything, as i stated above i had to go back for fluids. The linx worked keeping my acid in my stomach but made it very had for me to get anything down. VERY IMPORTANT. Chew your food for a long time, take a hard swallow. wait until you hear it pass, then take a drink, works for me. If you get dysphagia you will know it, the food will sit a the top and saliva backs up, you will lean forward that throw up just a tad. You just have to find the will to make it through, it was probably the most challenging thing in my life, its almost like learning to swallow again. Side note, one doctor said it takes a week to kick in and another said it starts immediately. For me it was immediate

After experimenting i ate baked potatoes a lot. i also found that if i wanted to eat chicken i had to chew in baked potatoes to almost form a very solid base or consistency so that it would mesh together and all pass at once through the linx. Today i am 64 days post op. Things are so much better. i can really eat water ever i want but i use baked potatoe or mashed potatoes with every meal, basically just to mix in with the food im trying to swallow.


LAW- How am i feeling now you ask..I would say almost 100% better but i have been nauseous everyday since surgery. So bad in fact ive been on phenergran to get through the days, typically it starts after my first meal. I went back to the gi doctor and they ordered a hida scan, they say maybe my gal bladder may be causing nausea because my surgeon said hes never seen this. But on the flip side, regarding the heartburn i mentioned, i went back to the gi very mad and i thought he would be putting me on a stronger PPI antacid, to my amusement he said stop taking everything. I said doctor im here because i had a surgery to fix reflux that you suggested and still having heartburn. He said he understood and i said ok, that day i stopped. Mind you i was taking over 100mg of nexium a day and over 200 mg of zantac. I was freaking out. to my surprise, the hearburn went away. The gi said it could have been the vagus nerve or all sorts of things. I did switch to liquid gaviscon which really shouldn't be needed but i occasionally will take a swing if i feel any burning.

To wrap this up, the LINX has been a godsend for acid reflux for me. In this regards it has done its job. The nausea on the other hand is undetermined and i will know soon.

Law- Dysphagia is no joke. There should be a warning sign at the door. Now i eat just find, i do eat slower than most people, occasionally i do get a stuck situation but its no biggie. I ate pizza for the first time in 4 years yesterday and was fine other than the nausea

Please let me know if you have other questions or if i didnt answer one,

rby
New Member


Date Joined Jun 2017
Total Posts : 1
   Posted 6/1/2017 11:39 AM (GMT -7)   
Hi chad - I have the surgery scheduled for next week. Was wondering how you are feeling a few months out?

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 6/1/2017 12:45 PM (GMT -7)   
Hey RBY.

Great question. So today is almost four months out. I can say that i experience no acid reflux issues since the linx surgery. I've said its been a blessing for acid reflux/gerd but i still have bouts of swallowing issues. To be honest, from what a read, it effects everyone differently, but ive a hard time with eating. It seems that if i get this first swallow to pass without any problems then the rest of my meal will be fine. However, if something gets stuck or i do not get a full swallow, the meal is pretty much ruined. Ive noticed extra production of saliva here and there, its to the point where i have to actually spit several times a day. Now keep in mind i do not place blame on the linx or the surgery, i just know my body is having a certain reaction. Early last month i had horrible gas pains. to the point of missing work bad. But once i was able to pass the gas the relief was instant.

On a positive note, i am now eating anything i want and i get no reflux. My energy is finally back, im working out 4 times a week, heavy weight training etc. I will tell you from my experience, the first two week were very rough. make sure to stay very hydrated and stay in touch with your doctor if and be persistent if you have problems. i had to see my gi and surgeon to discuss early issues. do not let them pass you off.

brianissleepy
New Member


Date Joined Jul 2017
Total Posts : 4
   Posted 7/17/2017 1:51 PM (GMT -7)   
I've been having severe acid reflux for 5 months now. But it's mostly burning in my throat and difficulty swallowing. I think the Linx would help with the burning, but I'm scared it would make my swallowing much more difficult. My Doctor mentioned he was worried about that also. Not sure what to do at this point. I still have some tests to do before I talk to him.

Kimsmithie
New Member


Date Joined Jul 2017
Total Posts : 1
   Posted 7/21/2017 12:25 PM (GMT -7)   
Thank you for posting your experience with the Linx surgery. I'm sorry for your issues that you have suffered but I'm excited for the relief you are experiencing. I hope things continue to get better and better for you!

My name is Kim and I just turned 50 years old and I have been dealing with heartburn officially since the late 90s. 1998 I had my first scope and it showed a slight hiatal hernia, some pre-cancerous polyps and an ulcer. I was also suffering with symptoms of IBS. At that time I found out I had a liver tumor called focal nodular hyperplasia and eventually had tumor dissected and my gallbladder removed. I had such burning pain and pressure at my sternum, I thought for sure I had a ton of erosion. But sure enough after the scope ('s) I was told there was not much erosion and that was very confusing. I've been on about every medicine for heartburn and nothing really fully works. I have had multiple Scopes and different tests with much of the same results.

Recently I went to an ear nose and throat doctor and a sleep doctor for issues I am experiencing and found out I have a really bad case of LPR ( who'da thunk it makes so much sense now). I'm to the point where I am always congested with sinusitis, a burning from my nose straight into my throat, my tongue actually Burns, cobblestoning, pain, bloating, chronic cough and clearing of my throat with the feeling of phlegm all the time... and nausea. I found out at this time I do not have sleep apnea (yet, o2 levels still good but eventually ok will most likely get it due to the structure of my mouth). However, I do have a sleep disorder called paradoxal insomnia. I tend to have many arousals and Awakenings and horrible quality of sleep due to lack of REM sleep. A lot of this could be from the constant refluxing while I sleep and I prayed taking care of the LPR, GERD, and heartburn will also help with the Sleep issues. I am done suffering and I am ready to get this fixed.

I have an appointment on August 17th to talk about the Linx procedure with one surgeon. I will speak with my regular GI doctor about a Nissen fundoplication as well and will decide what is best for my LPR, GERD, and heartburn. I'm definitely nervous but I'm excited, life is for the living and my quality of living has been really sucky lately. It affects me when I am awake and asleep and I'm ready to stop complaining about feeling sick all the time (sinusitis, bronchitis, sore throat, along with nausea, heartburn, and stomach aches). I'm hoping they can work on strengthening the inner sphincter as well to give me extra protection when sleeping. I'm not sure which route to go, I will see what the doctor say. The fundoplication seems like the gold standard and the best option for LPR and GERD, but I have to admit it makes me nervous. I have seen some success with the linxs as well. I'm bummed my initial appointment is so far away LOL, I'm ready to get this show on the road and hopefully start feeling like a brand new person. smile

I'm looking forward to watching this thread and seeing other people's experiences. Good luck everyone!

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 8/4/2017 2:54 PM (GMT -7)   
I had the Linx surgery on July 24th, just 12 days ago. The constant hiccups are unbelievable. 10 hours a day, 3 seconds a part. Nothing stops them. Help!!!

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 8/9/2017 4:10 AM (GMT -7)   
It's now my 17th day and this sucks!!! I still cannot eat a normal meal, the Dysphagia hurts like hell and I've lost nearly 14 lbs. Everything I read about this procedure has not been close to what I am experiencing. The non stop hiccups can drive you mad. The burping seems to always be there. As of today, I would say that if I had to do it again. NO WAY!

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 8/29/2017 12:35 PM (GMT -7)   
Ocama, I just now saw your post. I wanted to see if the hiccups have away.

I'm now 7 months out. I still experience mild dysphagia and tons of bloating with lots of passing gas. Also I was told after a hida scan my galbladde was operating at 18% and needed to come out. Its probably been causing the nausea.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 9/6/2017 7:07 AM (GMT -7)   
Chad, things are terrific. I do have those dreaded stuck moments every now and then but overall, I am so glad I did this procedure. No more heartburn and I'm learning to eat my food differently. No pain, gas, bloating, heartburn, dysphagia, etc. I'm only at week 6, so I have some time to heal. However, I would recommend this to anyone suffering from heartburn. I am normal again after 10 years of heartburn and antacids. Feeling great!

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 9/6/2017 8:07 AM (GMT -7)   
Ocamo,

Glad to hear you are doing well. Get used to the weight lost. I've now lost a total of 20 lbs.. The swallowing gets easier but he's you have have to learn a different way to eat. I noticed dysphagia came and went over the first few months. I'm 7 months out and no swallowing issues. And yes, heartburn free is awesome. But it takes a fighter to make it out of the woods. This surgery recovery was tough

HyperZenNinja
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/11/2017 1:55 PM (GMT -7)   
Glad I ran across this forum, although it does make me a little nervous. I am less than a week out from linx surgery (9/7/17) and am admittedly in the honeymoon phase. I haven't even had my follow up with my surgeon yet. Aside from being tired and a little sore, I am happy so far. The near-constant nausea, burping and reflux are gone. I can feel the pressure of the device, but one of my gerd symptoms was "globus" so it doesn't feel much different than that. I'm anxious about the next few weeks/months with the dysphagia, but I guess I will cross that bridge when it arrives. I was hoping the bloating would improve as well but it sounds like many of you have that still or even more so.

I am wondering when folks recommend going back to work. I was planning to go back this Wednesday but now I fear I was being overly ambitious.

Thanks!

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 9/12/2017 4:56 AM (GMT -7)   
Ninja,

Glad to hear you are doing so well. The bloating will take a while so just be patient. Hopefully you will not get dysphagia like i had. I've read in some forums where it was mild in some patients. As far as going back to work. There really is no need to rush it. But you will know when you get up out of bed on your own and can move around all day and not feel like a bus ran you over. I found that my stomach muscles where so soar and hurt that 5 days out my wife still had to help me out of bed. Cutting through your abdominal wall is serious and takes a bit to heal back up. That was my mistake, i think i went back to work 6 to 7 days after and i told my boss i just wasnt ready. However ive read where some go back that soon. i did have a hiatal hernia removed and stitched up which at the same time which probably didn't help the cause. keep me updated, i love reading about this and hearing others stories. it was so hard to get information and feedback prior to getting the surgery. i hope this gives people a place to gather insight and information so they can make and educated and informed decision before getting this surgery. Some people are misunderstanding that this says laparoscopic and minimally evasive procedure, however, when you get your paperwork back from the hospital it is coded as a MAJOR SURGERY.

CHEERS

HyperZenNinja
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/12/2017 5:32 AM (GMT -7)   
Thanks Chad. I have been pretty surprised by my recovery so far. I have had orthopedic surgery before but never abdominal. Aside from some pressure and bruising, and of course fatigue, I am doing well. I also had a hiatal hernia, albeit a very small one.

All that said, I think I will probably postpone my return to the office until at least Friday. The thought of wearing anything with a waistband is not pleasant, and my commute is a bear on a good day (20-30 minutes in the car, 20ish minutes on the train and 10 minutes by foot) in the DC area, so I think I had better err on the side of caution. Plus, I can telecommute as needed.

I will keep my fingers crossed regarding the dysphagia. I had scar tissue issues with my knee replacement but I don't really think that is a good predictor here, since that was the result of long term trauma and wear.

Will keep you posted. Thanks for starting this thread!

LinxHHRepair
New Member


Date Joined Sep 2017
Total Posts : 1
   Posted 9/25/2017 1:30 AM (GMT -7)   
Hi,

I had a combination hiatal hernia repair and Linx procedure performed on me in Sept of 2017. It's been 4 days from my surgery. Dr. Lipham of USC performed the procedure. I got sent home the same day. I didn't feel a need for the pain meds they had given me. so I didn't take them. I've been eating every two hours roughly and things seem fine. I do feel the food piling up behind the Linx so I have to slow down my eating habits. I was a very fast eater. I had GERD since my 20's and was diagnosed with the hiatal hernia in my 20's as well. It wasn't until I was past 50 that I was told that there was a surgical solution to the GERD. I wish I would have known earlier. I guess the Linx procedure is new, so it wouldn't have been an option.

Dr. Lipham explained to me that with a Nissen fundoplication I would no longer be able to throw up or burp, whereas with the Linx I could still do both. So I opted for the Linx.

So far so good. Haven't had any major discomforts. I believe I was told to watch out for day 10 or so. Right now I'm in day 4.

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 9/25/2017 7:06 AM (GMT -7)   
Linxrepair,

Thanks for the post. I'm crossing my fingers for you regarding the smooth transition out of surgery. I noticed my big problem once the scar tissue started laying down around the linx. If that happens you will know it, but a good dilation fixed me up. If you have questions regarding food or swallowing or just anything please let me know.

Ps linx is relativelyely new, I think they have 4 years or 5 years worth of research out.

Wade Ray
New Member


Date Joined Sep 2017
Total Posts : 5
   Posted 9/25/2017 4:50 PM (GMT -7)   
I have had heartburn and Gerd for appx 5 years now. Prior to that, I had never had any real symptoms of heartburn or Gerd worth noting. My first experience with Gerd was slight pain my lower esophagus (when I dipped or drank red wine only) and extreme unexplained non-stop ravishing hunger even when I was full. I finally went to a general doctor to find out why I was experiencing such extreme hunger and she told me probably an ulcer and prescribed me Dexilant. After quitting dip and wine and taking the Dexilant for the two weeks I noticed the burning, gnawing and slight pain in in my lower esophagus (Xiphoid Process area) started to be more consistent and the hunger pains were not subsiding. I then went back to the doctor and she recommended me to a gastroenterologist for an endoscopy which ended up revealing that I had a huge ulcer at the base of my lower esophagus, 1 cm hiatal hernia and Barrett's esophagus.

The gastroenterologist ended up taking me off of the Dexilant and put me on 20 mg omeprazole and sucralfate. The pain and tenderness in my lower esophagus (Xiphoid Process area) continued to worsen during that time, however, the hunger pains slowly subsided. So the gastroenterologist upped the omeprazole to 20 mg twice daily, Then over a 3 month period ended up at the max dosage of 40 mg twice daily but the slight burning, gnawing, pain still remained in my lower esophagus (felt almost like someone was pushing their finger into my xiphoid process area with slight burning and pain accompanying it).

Slowly over time (appx 6 months) I got used to the slight / burning pressure and pain and was relieved to find out the ulcer was healed and the Barrett's esophagus had slowly regressed to like 1 mm. At that time, I decided to ween off of the omeprazole (Which I did by opening the capsules and removing 5 granules every 2-3 days until all was removed) and totally quit taking the sucralfate. The funny thing is that every time I lowered my omeprazole the pain pressure and burning would go away throughout the whole lowering process. Which led me to believe possibly the omeprazole was causing the problem. But then after a month of being completely off the meds the symptoms would start coming back and I would end up back on the omeprazole. Which would help with the strong symptoms in my lower esophagus, but would leave me with the same mild to medium gnawing, burning pain as before in my lower esophagus (Xiphoid Process area).

The last time I decided to quit was after extensively reading and viewing articles that were saying that Gerd is caused by too little stomach acid. The articles stated that taking apple cider vinegar would increase your stomach acid. In return, causing the LES to close and not let any acid into the esophagus. So, I weened off the omeprazole once again (with little issue). However, after about 2 weeks after being fully off of the omeprazole, I started the apple cider vinegar. The first couple of times that I took it, I could feel the warm burning in my stomach and my sphincter close to the point that I couldn't even burp. But, the Apple Cider vinegar would only last about an hour at a time, then the acid would regurgitate back into my lower esophagus with extreme burning pain, then my throat, mouth, and teeth. After a couple of days, it got so bad that I felt the ACV was doing more harm than good, so I stopped taking it. But, the regurgitation throughout the day all day, everyday, and nothing helped (Tums, Gaviscon, Baking soda water, Slippery elm, marshmallow root, ect...). So, I went back on the omeprazole. Which helped with the strong burning and pain from acidity in my lower esophagus but did not the regurgitation into my throat, mouth, and teeth. The regurgitation is accompanied by an extreme sour taste (like a mixture of spoiled milk and vinegar) in my throat, mouth, and teeth was/ is painful and unrelenting.

After dealing with this issue for 2 months and the omeprazole not helping, I decided to go with the Linx surgery. I had all of the tests done 3 years earlier and was a prime candidate for the Linx procedure and the GI Surgeon said all he needed was the test results.

After the Linx procedure / Hiatal hernia repair, I was in a lot of manageable pain. But, not bad enough to continue pain meds for more than 1st day. Just Aleve for 1 day after surgery. As for swallowing. No problem for the first week. Second / third week, I had a hand full of times where the food was slow moving and I could feel it wanting to get stuck so I would slow down my eating and food would work its way down. Then, I also I had a hand full of times that food would get stuck, saliva would build up in my mouth, and I would have massive esophageal pain and spasming for sometimes up to 20-30 minutes. I am on my fourth week now and I still have food getting stuck and some spasms, but I am learning how to work around it so its not so bad.

However, the real problem started on day 3 after the surgery. The whole reason I had the surgery was because of the reflux burning in my lower esophagus and the regurgitation accompanied by an extreme sour taste (like a mixture of spoiled milk and vinegar) in my throat, mouth, and teeth. Well, they all came back. Three days after the surgery I noticed the sour taste in my mouth again and it slowly got more strong and frequent. Now it is back to the same as before the surgery. I followed Dr's orders to a T. ***!! I now live on bland food, omeprazole, sucralfate, and Gaviscon. Its getting ridiculous. The funny part is this sour, stinging, vinegary nasty fluid gets into my mouth and I don't even feel it coming up. Its like every hour and it doesn't even matter what I have eaten or if I have eaten. Anybody have this happen of any ideas. I am 3.5 weeks after Linx procedure. Anything is appreciated.

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 9/26/2017 2:01 PM (GMT -7)   
Hey wade,

Thanks for sharing. First off, you are still very early out of surgery. 4 weeks is just about a month. It took me 3 months just to feel 40 percent normal.. So give it time try and relax. My first thought was maybe the linx waant fitted correctly and it's not tight enough. On the other hand your throat is still swollen and trying to adjust to a metal device that is no wrapped around it. My advise, like I did. Get a barium swallow test done, this is what showed my doctor that the linx was a bit to tight do to the scar tissue. Secondly, if you read most of my post, one of them shows where I still felt acid reflux and burning just like you described. I went to my gi doctor and he tools me off of everything.. Zantac nexium gavidcon etc. I thought he was crazy but to my surprise the burning went away. Also. I believe I read someone that the vagus nerve can cause this feeling after surgery. I can say that since surgery I no longer feel the burning at the espophogical bass and no reflux. Not to flood your brain with what ifs but... How many linx has your surgeon implanted? Is there a chance it was placed to loose and to high on the esophagus. I think mine was fitted perfect as it lets nothing up. Please email updates and questions

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 9/28/2017 10:15 AM (GMT -7)   
Chad, I have a question. Do you think the linx actually gets stronger in time? I ask because while I am doing well. I still wake up at night with dry mouth. Will the linx strengthen in time or does this mean acid is still making it's way in my esophagus? I'm in my 9th week. What are you thoughts/experiences?
Thanks.

Wade Ray
New Member


Date Joined Sep 2017
Total Posts : 5
   Posted 9/28/2017 12:25 PM (GMT -7)   
Iwent to my GI surgeon today. He wants me to do an endoscopy and the 24 hr Bravo PH test. As for going off the ppi meds. I am afraid to do that because this liquid coming into my mouth on an hourly+ basis feels, tastes, and burns like acid reflux. Gaviscon and Tums barely help for short periods. It feels like its doing so much damage and I don't want to make it worse. My GI is saying he thinks its Candida / thrush in my esophagus and has had me on meds for 3 weeks now, but its getting worse on a daily basis.

My surgeon has placed 9 linx before me. However, hundreds of fundoplications. He said the linx is child's play compared to the fundoplication.

Chad2322
New Member


Date Joined Mar 2017
Total Posts : 16
   Posted 9/28/2017 5:22 PM (GMT -7)   
Hey guys that's for the questions,

Ocoma- I don't think my linx got stronger. My swallow and esophogus got stronger. I swore for the first month I was having reflux and burning but please keep in mind the more time that passed the better I felt. U are fresh from surgery. But if it's unbearable keep pressing your doctor's. Dry mouth was normal at times. Of your having dry mouth and no burning that should be winning!!

Wade-- I suggest a barium swallow. It will show if the linx closes and stays closed after a swallow. Even though it sucks I agree with another endo I believe the bravo test is accurate to try because it definitively show if it's reflux acid or just your mind playing tricks.

Guys be strong, this is a tough process. I almost had mine removed but I'm so glad I didn't. Please keep me updated and keep asking questions

pam8888
New Member


Date Joined Sep 2017
Total Posts : 1
   Posted 9/29/2017 5:49 PM (GMT -7)   
I am so thankful for all these posts. I am 56 and am scheduled for Linx and a small hernia repair Monday morning Oct. 2 and am quite anxious. It is new to my area and I will be the 8th one the surgeon has done. He is a great surgeon who actually removed a malignant stomach tumor on me 21 years ago which is when my Gerd, Lpr, problems started. I have total faith in his abilities and am mostly only anxious about the swallowing issues and the way I will have to eat forever it sounds like. I notice a few on this thread are very early in recovery also so it will be nice to keep each other posted on progress, tips to combat swallowing issues, etc.
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