Linx procedure for GERD (7/24)17).

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rweintra
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Date Joined Nov 2005
Total Posts : 48
   Posted 10/19/2017 8:41 AM (GMT -6)   
Love that he's calm and reassuring. Bedside manner means so much.
So, can you clarify something for me, with the understanding that you're not a Dr and everyone is different:
Are small bites not forever? You eluded to going back to the way I'm eating now eventually. I didn't think that was even an option. I have no problem working on it for months. I'm 41; I don't want to be working on it for 50 years, if you know what I mean.

ocamo
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Date Joined Jul 2017
Total Posts : 29
   Posted 10/19/2017 8:59 AM (GMT -6)   
No. For starters, it's not small bites as much as it is chewing your food well. The idea is to allow the food to go down with your saliva. I'm 48 and 3 months in. I only get into trouble when I forget to chew well. The Linx has to be exercised so to speak..remember anything new has to be worked out. In time it will open and close easily and the food stuck episodes will be gone. I am probably another 3 months or so away from that point. This is why I give myself a 90% out of a 100%. I expect to be 100% within that time frame.

I am very excited. I stopped taking medication the day of the surgery and haven't looked back. No more heartburn. Amazing!

rweintra
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Date Joined Nov 2005
Total Posts : 48
   Posted 10/19/2017 9:40 AM (GMT -6)   
Thats amazing. I'm super jealous. Will keep you apprised. Want to get manometry and PH impedance over with but not having those until the 9th of Nov.

SAI_17
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Date Joined Oct 2017
Total Posts : 14
   Posted 10/19/2017 11:09 AM (GMT -6)   
Mike,

Did you get dilated after post surgery for swallowing issues? if so how many times?Thanks

ocamo
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Date Joined Jul 2017
Total Posts : 29
   Posted 10/19/2017 12:17 PM (GMT -6)   
No. I never did. I just started off with yogurt, pudding, jello and lots of liquids. After a week or so I moved up to cereal with milk and so on. Keep in mind, you might not experience any of what I did. For some people, they were eating normally after a week or so. However, everyone does experience the stuck episodes.

For all of my experiences good or bad. Still no heartburn.

SAI_17
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Date Joined Oct 2017
Total Posts : 14
   Posted 10/20/2017 8:14 AM (GMT -6)   
Thanks Mike for your reply.

rweintra
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Date Joined Nov 2005
Total Posts : 48
   Posted 10/27/2017 1:24 PM (GMT -6)   
Had my manometry and 24hr PH yesterday. Results showed that I have very weak swallowing muscles. The Dr who performed the manometry believes surgery now could cause worse swallowing issues. He believes my swallowing is weak because of all of the years of acid build up in my esophagus. He said it can negatively affect the muscles and nerves surrounding the area.
His recommendation is to move to 40mg Protonix, twice daily, and then re-assess over a certain period of time to see if I regain the swallowing strength. Can even think of doing manometry again. It was so brutal.

ocamo
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Date Joined Jul 2017
Total Posts : 29
   Posted 10/27/2017 2:29 PM (GMT -6)   
I'm sorry to hear this news. So unfortunate. However, all is not lost. Do exactly what they say and when the time is right, do the manometry again. I will be hoping for better news. Don't be discouraged.

Best,

Mike

Xilos
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Date Joined Oct 2017
Total Posts : 4
   Posted 10/28/2017 5:16 PM (GMT -6)   
Thank you for posting this. I ended up going for the fundo wrap with toupet because my hiatal hernia may have been a bit too big to have the linx successfully work. I wanted to get the linx initially and my surgeon was willing to try it even with the risks, but I have a slight metal allergy and decided against it. Kind of wish I did but I am still on only day 11 of my recovery so who knows. But so glad you are feeling so much better!!!

SAI_17
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Date Joined Oct 2017
Total Posts : 14
   Posted 10/30/2017 11:23 AM (GMT -6)   
rweintra,

Don't loose hope, I know many people who fails in the manometry and had the Linx surgery successfully.
Surgeons really don't see the Manometry results because they are not accurate all the time. Surgeons here in Dallas are asking to do a Bagel Marshmallow swallow test to see your swallowing ability. In which part of US you are?

This is the facebook page you can get whole lot of information about Linx.

LINX Surgery for GERD/Acid Reflux/Silent Reflux/LPR

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 48
   Posted 11/1/2017 11:26 AM (GMT -6)   
So Linx is out. I had a horrific swallowing exam, I don't swallow at all, I guess. Also, my DeMeester was 236. The second highest my surgeon has ever seen. So, looks like I can only have a toupe done. Oh well.

SAI_17
New Member


Date Joined Oct 2017
Total Posts : 14
   Posted 11/1/2017 8:00 PM (GMT -6)   
Do yu have any swallowing issues now because of the motility issues?

bonnie 1
New Member


Date Joined Nov 2017
Total Posts : 4
   Posted 11/3/2017 10:07 AM (GMT -6)   
Hi Mike,

Thank you for you sharing your experience of the LINX procedure.
Apparently I am a candidate for that procedure but I have put it off because of the side effects you described and worried that I could have dysphagia permanently afterwards when it did not exist before.

I tried to get into a clinical trial for the EndoStim procedure but my Barretts in my esophagus prevented me from being in this trial. It has been very successful in Europe and many people are going over there to have this done. No side effects like the LINX or Nissan. They are in the fourth phase of this study and eventually it will be approved by the FDA as the results are amazing. Having it done in Europe is very expensive so I have had to focus on the LINX. I have been told that the Nissan procedure can prevent you from vomiting and there are still some swallowing side effects.

What are your thoughts everyone?

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 48
   Posted 11/11/2017 12:55 AM (GMT -6)   
SAI_17 said...
Do yu have any swallowing issues now because of the motility issues?


Yes. It takes me a few swallows to get down bread, pasta or the like. I’ve never thought it was horrible but i failed 100% of my manometry swallows.
Drs say swallowing will be tough at first post surgery but that it’ll get better over time.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 29
   Posted 11/16/2017 11:08 AM (GMT -6)   
Update. As of today, 11/16/17 - I just completed an upper endoscopy. My Gastro (who did not perform the surgery) told me that he saw no acid and that my esophagus looked great. He also pointed out that he actually viewed the linx open and close perfectly. He was very happy with the outcome.

Overall, I am very very happy!

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 48
   Posted 11/16/2017 3:02 PM (GMT -6)   
That’s awesome! Can’t wait to be done with my partial wrap and hopefully feel like you do at this point. Congrats!

bonnie 1
New Member


Date Joined Nov 2017
Total Posts : 4
   Posted 11/16/2017 8:57 PM (GMT -6)   
Great news.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 29
   Posted 11/17/2017 9:29 AM (GMT -6)   
Thanks. Much appreciated!

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 29
   Posted 11/20/2017 8:39 AM (GMT -6)   
11/20/17, nearly 4 months in and I have a few updates. First of all, due to a herniated disk, I had to have an MRI. It went smoothly. No effects whatsoever. I also had a follow up upper endoscopy and my Gastro informed me that I am acid free. My esophagus looked great. He told me that the linx opened and closed as it should. It was great to hear that everything is going smoothly as I hoped.

Happy holidays to everyone!

GammaMom
New Member


Date Joined Jan 2018
Total Posts : 2
   Posted 1/23/2018 10:39 PM (GMT -6)   
I am considering the Linx procedure. My insurance is approved & I have had several prior surgeries over the years. My concern is that my doctor says that I will only be able to lift 30 pounds or less after surgery- forever. I'm 62 years old, active & raising a active grandchild and helping with the care of a elderly parent. According to this information I would have give up many activities. Even taking the groceries in would be forbidden. Putting up Christmas decorations, transferring my parent from sitting to standing, volunteer work exercising, and the list goes on. Anyone having had the surgery can give me some of your experiences.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 29
   Posted 1/24/2018 7:32 AM (GMT -6)   
GammaMom, I am 6 months removed from the Linx procedure today, 1/24/18. I am 49 and working out 4/5 times a week and this includes benching 175lbs (hoping to get back to 250lbs). I am acid free, I can eat anything I want and no more stuck episodes or spasms. Life is great. After the surgery, give yourself some time to heal. I waited 3 months. The procedure is so new that many doctors are choosing to be cautious. This is probably why your Dr. made that suggestion. Smile - life without acid reflux is going to improve your overall quality of life. It's an amazing feeling. Good luck!

Mike

Rsdasm
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/5/2018 1:27 PM (GMT -6)   
Hello ocamo,
Thanks for posting your post LINX procedure progress. I’m going to have the procedure done in 19 days and was feeling uneasy about the choice I had made. I had all the tests done and I am considered a prime candidate for LINX. I was wondering how you’re doing, it’s been a month and half since your last post. I was initially concerned due to the difficulty you were having at the beginning but was really relieved as you seemed to really turn the corner at about 3 weeks in.
Thanks again for sharing,
Bob

Post Edited (Rsdasm) : 3/5/2018 11:30:08 AM (GMT-7)


ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 29
   Posted 3/5/2018 1:35 PM (GMT -6)   
Bob, I have never been happier. You may (or may not) run into any issues. Everyone is different. I was a bit miserable for the first 17 days and on the evening of the 17th day, everything simply stopped. So far, almost 8 months in. I am simply normal again. No heartburn, no dysphagia and no more stuck episodes. My quality of life has improved tremendously. Good luck and no matter what happens post op - stay the course and fight through it. It will pay off in the end. I'm excited for you. You are making one of the best decisions of your life. The linx is amazing!!! No more heartburn = no more medication and you can eat anything you want. Keep me posted.

Mike

Rsdasm
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/5/2018 5:53 PM (GMT -6)   
Hi Ocamo/Mike,
I’m feeling more confident about doing this, I tolerate pain pretty well, annoyance not so good. By annoyance I mean long term issues, and it sounds like the main problems clear in the first couple months. I’ll cross that bridge when I get to it. Another thing I am interested in is you mentioned you’re working out again, are you having any adverse effects for this? I like to workout, my doctor told me it shouldn’t be a problem. How long did you wait before lifting weights?
Thanks again,
Bob

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 29
   Posted 3/6/2018 7:47 AM (GMT -6)   
I waited about 2 months and then began with light running and weights. After another month or so - I was back doing whatever I wanted. Also, I should point out that I had a herniated disk in Oct, 3 months after surgery, so this slowed me down a bit. I had an MRI and the Linx was fine (just an FYI).

Since January I've been working out without any issues. You should expect to loose about 8-10 lbs. I lost about 15 and then slowly began gaining it back over the course of a month.

Be excited about this procedure. No more heartburn.
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