Linx procedure for GERD (7/24)17).

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rweintra
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Date Joined Nov 2005
Total Posts : 42
   Posted 10/19/2017 6:41 AM (GMT -7)   
Love that he's calm and reassuring. Bedside manner means so much.
So, can you clarify something for me, with the understanding that you're not a Dr and everyone is different:
Are small bites not forever? You eluded to going back to the way I'm eating now eventually. I didn't think that was even an option. I have no problem working on it for months. I'm 41; I don't want to be working on it for 50 years, if you know what I mean.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 10/19/2017 6:59 AM (GMT -7)   
No. For starters, it's not small bites as much as it is chewing your food well. The idea is to allow the food to go down with your saliva. I'm 48 and 3 months in. I only get into trouble when I forget to chew well. The Linx has to be exercised so to speak..remember anything new has to be worked out. In time it will open and close easily and the food stuck episodes will be gone. I am probably another 3 months or so away from that point. This is why I give myself a 90% out of a 100%. I expect to be 100% within that time frame.

I am very excited. I stopped taking medication the day of the surgery and haven't looked back. No more heartburn. Amazing!

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 42
   Posted 10/19/2017 7:40 AM (GMT -7)   
Thats amazing. I'm super jealous. Will keep you apprised. Want to get manometry and PH impedance over with but not having those until the 9th of Nov.

SAI_17
New Member


Date Joined Oct 2017
Total Posts : 14
   Posted 10/19/2017 9:09 AM (GMT -7)   
Mike,

Did you get dilated after post surgery for swallowing issues? if so how many times?Thanks

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 10/19/2017 10:17 AM (GMT -7)   
No. I never did. I just started off with yogurt, pudding, jello and lots of liquids. After a week or so I moved up to cereal with milk and so on. Keep in mind, you might not experience any of what I did. For some people, they were eating normally after a week or so. However, everyone does experience the stuck episodes.

For all of my experiences good or bad. Still no heartburn.

SAI_17
New Member


Date Joined Oct 2017
Total Posts : 14
   Posted 10/20/2017 6:14 AM (GMT -7)   
Thanks Mike for your reply.

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 42
   Posted 10/27/2017 11:24 AM (GMT -7)   
Had my manometry and 24hr PH yesterday. Results showed that I have very weak swallowing muscles. The Dr who performed the manometry believes surgery now could cause worse swallowing issues. He believes my swallowing is weak because of all of the years of acid build up in my esophagus. He said it can negatively affect the muscles and nerves surrounding the area.
His recommendation is to move to 40mg Protonix, twice daily, and then re-assess over a certain period of time to see if I regain the swallowing strength. Can even think of doing manometry again. It was so brutal.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted 10/27/2017 12:29 PM (GMT -7)   
I'm sorry to hear this news. So unfortunate. However, all is not lost. Do exactly what they say and when the time is right, do the manometry again. I will be hoping for better news. Don't be discouraged.

Best,

Mike

Xilos
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/28/2017 3:16 PM (GMT -7)   
Thank you for posting this. I ended up going for the fundo wrap with toupet because my hiatal hernia may have been a bit too big to have the linx successfully work. I wanted to get the linx initially and my surgeon was willing to try it even with the risks, but I have a slight metal allergy and decided against it. Kind of wish I did but I am still on only day 11 of my recovery so who knows. But so glad you are feeling so much better!!!

SAI_17
New Member


Date Joined Oct 2017
Total Posts : 14
   Posted 10/30/2017 9:23 AM (GMT -7)   
rweintra,

Don't loose hope, I know many people who fails in the manometry and had the Linx surgery successfully.
Surgeons really don't see the Manometry results because they are not accurate all the time. Surgeons here in Dallas are asking to do a Bagel Marshmallow swallow test to see your swallowing ability. In which part of US you are?

This is the facebook page you can get whole lot of information about Linx.

LINX Surgery for GERD/Acid Reflux/Silent Reflux/LPR

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 42
   Posted 11/1/2017 9:26 AM (GMT -7)   
So Linx is out. I had a horrific swallowing exam, I don't swallow at all, I guess. Also, my DeMeester was 236. The second highest my surgeon has ever seen. So, looks like I can only have a toupe done. Oh well.

SAI_17
New Member


Date Joined Oct 2017
Total Posts : 14
   Posted 11/1/2017 6:00 PM (GMT -7)   
Do yu have any swallowing issues now because of the motility issues?

bonnie 1
New Member


Date Joined Nov 2017
Total Posts : 4
   Posted 11/3/2017 8:07 AM (GMT -7)   
Hi Mike,

Thank you for you sharing your experience of the LINX procedure.
Apparently I am a candidate for that procedure but I have put it off because of the side effects you described and worried that I could have dysphagia permanently afterwards when it did not exist before.

I tried to get into a clinical trial for the EndoStim procedure but my Barretts in my esophagus prevented me from being in this trial. It has been very successful in Europe and many people are going over there to have this done. No side effects like the LINX or Nissan. They are in the fourth phase of this study and eventually it will be approved by the FDA as the results are amazing. Having it done in Europe is very expensive so I have had to focus on the LINX. I have been told that the Nissan procedure can prevent you from vomiting and there are still some swallowing side effects.

What are your thoughts everyone?

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 42
   Posted 11/10/2017 10:55 PM (GMT -7)   
SAI_17 said...
Do yu have any swallowing issues now because of the motility issues?


Yes. It takes me a few swallows to get down bread, pasta or the like. I’ve never thought it was horrible but i failed 100% of my manometry swallows.
Drs say swallowing will be tough at first post surgery but that it’ll get better over time.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted Yesterday 9:08 AM (GMT -7)   
Update. As of today, 11/16/17 - I just completed an upper endoscopy. My Gastro (who did not perform the surgery) told me that he saw no acid and that my esophagus looked great. He also pointed out that he actually viewed the linx open and close perfectly. He was very happy with the outcome.

Overall, I am very very happy!

rweintra
Regular Member


Date Joined Nov 2005
Total Posts : 42
   Posted Yesterday 1:02 PM (GMT -7)   
That’s awesome! Can’t wait to be done with my partial wrap and hopefully feel like you do at this point. Congrats!

bonnie 1
New Member


Date Joined Nov 2017
Total Posts : 4
   Posted Yesterday 6:57 PM (GMT -7)   
Great news.

ocamo
Regular Member


Date Joined Jul 2017
Total Posts : 24
   Posted Today 7:29 AM (GMT -7)   
Thanks. Much appreciated!
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