Results of Bravo today. talk of Linx and Tif procedures

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rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 378
   Posted 10/18/2017 7:48 AM (GMT -7)   
I haven't posted on healingwell in a very long time, but am looking for some support. I had my BRAVO study done a month ago and my demeester score was 33. My doctor of course first discussed weight loss and I am in a program for that currently. He also changed my nexium to a new medication called Dexilant. If anyone's had experience with this medication, please let me know.

...Then he brought up surgery. I had read a lot about the Nisson and was very afraid based on what I read, but then he spoke about these other procedures, the Linx and Tif. I have autism so I perseverate on things and even though we agreed to put surgery on the back burner for the time being, I am still looking to get some facts and opinions on the procedures.

Thanks!

SharonZ
Veteran Member


Date Joined Mar 2014
Total Posts : 977
   Posted 10/18/2017 8:44 AM (GMT -7)   
rpgdancer:

I think it makes sense for you to check all your options before considering surgery. There are a lot of different medications for GERD, and some work better than others for certain people. I don't have experience with Dexilant, but others have had great success with it. I was on Protonix for a number of years, and it gave me lots of relief. Give Dexilant a chance, but if you have any side effects or if you don't think it's helping your symptoms, check back with your doctor. You might surprise yourself with the benefit of weight loss, even it's just a few pounds. I can't help you with the other surgical procedures, as I had the Nissen. You might want to first check and see if they are covered fully by your insurance carrier, before you consider them.

Good Luck, Sharon

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 378
   Posted 10/18/2017 8:58 AM (GMT -7)   
did you have a good experience with the Nissen? I've only read horror stories about it. they terrified me.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

Post Edited (rpgdancer) : 10/18/2017 10:12:28 AM (GMT-6)


SharonZ
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Date Joined Mar 2014
Total Posts : 977
   Posted 10/18/2017 9:09 AM (GMT -7)   
I did have a good experience with the Nissen and have had no major issues since I had the surgery over 3 years ago. It's major surgery and the recovery is slow. I didn't take any PPIs after my surgery and have not taken any since. I had a full wrap at 53 years old, and can no longer belch or vomit. These two issues were something that I was made aware of before surgery and it really didn't bother me. I still have occasional nausea for no reason, but I keep a prescription of Zofran with me at all times. I was fortunate that I was healthy and was not on any type of prescription medication before the surgery. It's a good idea to have any medication in liquid form to make swallowing easier during recovery.

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 378
   Posted 10/18/2017 9:21 AM (GMT -7)   
the signature saying 24 years old, etc. is wrong and old. I have updated but it is not posting. all meds have changed. I am 27. :D
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

SharonZ
Veteran Member


Date Joined Mar 2014
Total Posts : 977
   Posted 10/18/2017 9:48 AM (GMT -7)   
It shouldn't matter what meds, if any, you are on - just that it's easier having them in liquid form - even things like Tylenol. You are much younger than I was for surgery, and I think that works in your favor. It took me roughly 6 months before I started feeling better, and one year before I started feeling like the "new" me. My biggest complaint during recovery was that I was exhausted. I was off from work for 2 months and went back the first week as 1/2 days. That was just me, personally, and a lot of people recover quicker than others.

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 378
   Posted 11/3/2017 10:11 PM (GMT -7)   
I've been reading lots of other posts on this forum and now I'm just more confused. it seems like the surgeries are a lot more intense than the doctor made it sound. It sounds like the results for the most part are good but start out making life worse. It's just all really confusing.
27 year old female
diagnosed: Ulcerative Colitis or Crohns, GERD, Gastroparesis, PKD, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

SharonZ
Veteran Member


Date Joined Mar 2014
Total Posts : 977
   Posted 11/6/2017 5:48 AM (GMT -7)   
It is a major surgery, and unfortunately most doctors don't go into great detail about recovery. Have you made an appointment with a surgeon yet? You can just make an appointment, it doesn't mean you have to agree to surgery. It might make sense for an appointment so the surgeon can explain to you in detail about the different surgery options and what they involve. I agree that too much conflicting information can make it difficult for decision making.

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 378
   Posted 11/13/2017 9:27 PM (GMT -7)   
I haven't made an appointment with a surgeon yet. They switched me onto Dexilant from the nexium and i have a follow up appointment in a few weeks.

the doctor said that right now, my weight may make me ineligible for surgery anyhow. then in his appointment notes, he talked about weight loss surgery even though he never said anything directly to me, which confused me... especially since I've been working hard at a weight loss program.

I live in a very small town and told my parents that if I was having the surgery, I wanted to go home to Boston and have it done by someone who does it all the time as opposed to someone locally.

It's just all so much and I get so scared so easily.
27 year old female
diagnosed: Ulcerative Colitis or Crohns, GERD, Gastroparesis, PKD, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Yellow1955
Regular Member


Date Joined Aug 2017
Total Posts : 39
   Posted 11/14/2017 12:09 PM (GMT -7)   
Take look at my thread called “robatic-assisted gastroesophageal valvuloplasty ...” You can search on those terms and my post will come up. I considered THE TIF Procedure, but my hernia was too large. My surgeon performed another option to the Nissen wrap. He puts a valve between the esophagus and stomach and closes the hiatal hernia with a patch which eventually dissolves.

I wish you luck, I know what a terrible condition it is and very painful and choosing the right procedure takes lots of thought.
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