Posted 12/13/2017 10:52 AM (GMT -6)
Getting discouraged. Wondering if anyone has had similar situation in recovery. Had surgery 6 weeks ago at Cleveland Clinic with very good surgeon(good surgeon, but he did not tell me much about recovery). Had hiatial hernia repair, a partial wrap and also needed lengthening of esophgagus. (Do most people need the lengthening, or is this a rare thing?
Reason for surgery was 1/2 of stomach trapped in chest. Main problem was shortness of breath; no heartburn but had constant mucous in throat and hoarseness.
In many ways, I am doing well. Energy returning, able to swallow well, incision looks good. It is still very sore when turning over in bed, but with open surgery, I guess that it to be expected.
My discouragement is because I still have the shortness of breath and hoarseness. Shortness of breath can even be just sitting down and is really bad climbing stairs. Not too bad with walking on level. My heart and lungs were ruled out as a problem before surgery, so it must have been caused by the large hernia. It feels just the same as it did before surgery and now there is the additional tight feeling in the place near top -center of breasts where vertical incision starts.
I don't mind if this goes on for months just as long as at the end of the recovery period, I would find that it was worth all I went through and that I could breath more easily. I am beginning to get very discouraged thinking that we traveled a long way for surgery, put my mom in assisted living so I could go do this and recover, and that I have gone through a lot and it starts to look like it was all for nothing. I would surely appreciate any encouragement anyone can give. I feel sort of alone because it seems not many people had the surgery because of breathing problems and not many had the open surgery. I don't know anyone who ever had this done, so on-line is my only hope of connecting with anyone who has been in this situation. Sorry for the long post. Sending good wishes to all. Hope you are having a sunny day as we are here (although we have a light snow --beautiful, actually). Prayers for good recovery for each of you and thanks in advance if you have any hope/insight to offer me.