Posted 5/5/2018 9:58 PM (GMT -7)
Hello all! I first discovered this site when preparing for my lap Nissen in 2009, and am glad to find it still here now that I have more questions! Thanks in advance for reading.
I had a Nissen 8 years ago at age 17 after suffering from GERD (with constant regurgitation of food) for my entire childhood. The recovery was challenging, but I was eventually symptom free, albeit completely unable to burp or vomit. The following year, I was diagnosed with POTS. My cardiologist said this may have been due to Vagus nerve damage during the surgery. I have also had other digestive troubles (primarily diarrhea) which have intensified over time, particularly during the last year. I just tested negative for celiac, but am going in for a colonoscopy soon to look for evidence of Crohn's. I have a feeling that this is going to turn out to be IBS, and that it has some kind of reciprocal relationship with the GERD and Nissen.
about two years ago, I started being able to burp, and it has gotten progressively worse to the point that I belch very frequently, sometimes dozens of times per hour. Over the last six months, I have also started to have some acid reflux and increasing indigestion. I have not had a gastroenterologist since I had the surgery, but just got a new one last month. He sent me for a barium esophagram yesterday, and the radiologist told me everything looked normal- ie, he hadn't read my doctor's notes, and thought my esophagus looked like the average person's! Once I asked him specifically about the wrap and he realized what he was supposed to be looking for, he told me he couldn't see any evidence I'd had the surgery- the wrap is completely gone.
I know I'm jumping the gun worrying about this since I haven't even spoken to my doctor yet, but he did tell me that he was going to refer me for a surgical revision if the wrap was found to be damaged (much less completely undone). I am extremely hesitant to pursue that route, partly because my symptoms aren't terribly troublesome right now, partly because of the possible link to my POTS, and partly because I worry if having the surgery could have very negative effects on the digestive problems on my lower half. But I also don't love the idea of my symptoms continuing to worsen and being on medication for life, particularly because I already take medication for other chronic health conditions.
I suppose I need to have a point to this post other than just venting, so here it is. Can anyone speak to the process, recovery, and side effect risks that come with having a redo? Has anyone had to have a redo this young (age 25), and would it make you worry about additional redos down the line? Does anyone else have potential links to POTS and/or lower digestive problems?
Thank you so much for any thoughts or speculations!