Hi! sorry it took me a while to respond- it wasn't because I was feeling better
Actually March was probably the worst I've ever felt in my life.)
The strange bile reflux symptoms now happen more often (at least twice a week) in fact as I'm typing this I'm having an episode. They last for hours on end, and leave me completely burned on the inside (all the way up to my throat), and exhausted from the pain. I spend a lot of time trying to research some solution for this, but everything is so vague.
To answer your question- no, I still have my gallbladder, and as far as I know, it's ok- no issues with it. I also feel like there is something on my right side of the stomach that is starting the agitation- then it's like a rumbling through my entire stomach and then it all shoots up.
From my reading it may also be a matter of stomach emptying. I had a stomach emptying study a few years ago but that came back ok. Things may have changed though.
My GI is completely unconcerned and just shrugged it off- she said another endoscopy in 3 years!! Not sure how I'm supposed to live like this until then...
What bile medication are you on? She refused to give me any, said she worried about
food absorption issues. There has to be SOMETHING I could take when this horrible attack hits.
My conclusion is that I probably have motility problems (that's why food is getting stuck) and delayed stomach emptying, which caused bile to linger in the stomach much longer than it should. I read that another reason for bile reflux could be a peptic ulcer that hinders the functioning of the pyloric sphincter- but that would have been noticed during the endoscopy, I would imagine? And the most common is gallbladder removal, of course, and stomach surgery that damaged the pyloric sphincter in some way. I'm amazed at how little information there is about
the Roux en Y procedure for this- from what I read side effects are quite horrific.
I am going to another GI in a month or so. There has to be something out there for us.
Hang in there. I'll share any tips I may be getting.