Please help me, I'm miserable! I need some advice!

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Jason K
Regular Member


Date Joined Mar 2006
Total Posts : 22
   Posted 3/25/2006 10:09 PM (GMT -6)   

Current Symptoms

 

-Chest Pain (center of chest from throat down to sternum)

-Sour Taste in Mouth (starts ½ hour after meals, may last all day)

-Slight Wheeze (room has to be silent for me to hear the whistle)

-Hoarse Voice (more so after meals)

-Need to clear my throat (after meals)

-Nasty Breath

-Smelly Belching

-Gas and Pressure

-Blood in spit, not when I cough, but just seems to be in the back of my throat like it wells up from my stomach (this has happened 6 times in the last 2 months and usually happens when I have pain in my chest)

-Lost 40 pounds in last year. (My diet has changed significantly, I used to eat a lot of fatty foods and now I eat much healthier and a lot smaller portions)

 

I am a 27 year old male.  about 2 years ago I stated feeling a pain in my chest.  I didn’t really think much of it at first, but it seemed to show up often enough, so I finally went to the doctor.  The doctor did an EKG and a chest x-ray.  Both were negative, so they diagnosed me with GERD and put me on Aciphex.  The medicine never completely got rid of the pain, so I went back to the doctor.  They scheduled me for an Endoscopy at the Gastro clinic.  The Endoscopy came back inconclusive.  They saw refluxing and some mild redness, but they couldn’t say for sure if that’s where the pain was coming from.  They put me on a heavier dose of PPI’s and sent me away.  The pills still didn’t completely get rid of the pain, but it was bearable so I just kind of ignored it for a while.  Then about 6 months ago my symptoms got a lot worse.

 

The morning it started I had a banana and a glass of orange juice on my way to work.  I kind of felt some pain after that, but still decided to have pizza for lunch.  After that the pain started and I have never been the same.  I started having a lot more pain in my chest; I started having a lot of gas and bloating.  After a big belch the pain would subside and then slowly build back up.  I started noticing a slight wheeze or whistle when I exhale.  It’s not very load, but I can hear it sometimes when the room is completely quiet.  At that time I completely changed my diet.  I stopped eating all of the foods they say are bad for people with GERD.  Then I started losing weight.  I went back to my doctor and they sent me back to the Gastro clinic.  They wan a couple of blood tests (pylori, girardi) which both came back negative and then put me on Protronix (2X per day).  They told me to come back if the meds didn’t work.  The meds didn’t work so I went back to the Gastro once again.  This time they told me that there not sure I have GERD because the medicine is not helping.  The doctor ordered a stress test (to check out my heart), a chest CT, and a 48 hour bravo PH test.  I did the stress test and the chest CT right away, both came back negative.  I waited on the bravo ph test because I was feeling a little better and didn’t want to spend the money.  My symptoms ended coming back again so I scheduled the bravo PH test.  about a week and half before the test I was feeling pretty bad and noticed a new symptom.  I had a sour taste in my mouth so I spit in the sink and noticed a little streak of blood.  I didn’t cough or anything, it was just there, like it welled up from my stomach with the acid or something.  I figured I had some esophageal bleeding and that they could take a look at when they did the bravo PH.  They made me stop taking my meds 1 week before the bravo PH.  By the time I had the Bravo PH, I was feeling almost symptom free.  Of course when they did the endoscopy before installing the bravo chip, they didn’t see any thing that could be causing the blood and said my esophagus looked normal.  The PH study did conclude that I have Acid Reflux.  They said that after eating the PH in my esophagus could go as low as 3 and would stay like that way to long.  They said that when I was having gas and pain it was because there was acid sitting in my esophagus.  So hurray they finally concluded that I have GERD, but where is the blood coming from.  It has been over a month since the bravo test and I have noticed the blood on at least 5 more occasions.  It usually happens when I am having a bad bout of pain in my chest, usually when my chest is sore for a couple days.  I called my doctor and told her about the blood and that they endoscopy didn’t reveal the blood source.  They recommended I go to the ENT to have scope done.  I had that appointment last week.  They put the scope through my nose all the way down to my vocal cords.  The only thing the ENT saw was that there were some predominant blood vessels in my sinuses and that they were pretty sure that this is where the blood is coming from.  I’m not convinced.  Yesterday I had some seriously bad pain in my chest along with the sour taste in my mouth and really bad smelly burps.  It started right after eating two pieces of red licorice.  It bothered me a little overnight and started up again after I eat breakfast this morning.  Then this afternoon again I had the blood in my spit.  I suck the spit from the back of my mouth and then spit in to the sink and I have streaks of bright red blood.  I’ don’t think it’s coming from my sinuses, but I am not sure where it is coming from. 

 

Does anybody have any ideas as to what is going on with me?  Is this all from GERD or do I have something else going on?  Do I have some sort of food allergy? This blood has been freaking me out and any advice or reassurance would be greatly appreciated.


Outlaw
Regular Member


Date Joined Mar 2006
Total Posts : 130
   Posted 3/25/2006 11:12 PM (GMT -6)   
Ok first off we now you have Gerd ok,second of your going through all the tests.
You had stress ct,do you have a echo stress or regural stress test?
Now that being said I belive its coming from your nose man im not saying not to worrry,but youve been scoped,and your doing all the right things bro keep that up..
Im 26 and have gerd for four long years im now looking into surgery..
 
 
Aciphex was a miracle drug for 18 months for me than bam,nothing else worked the last years ive lost weight as well im skinny bro..How much you weigh?
You just gotta stay fighting searching for clues,and stick to your diet..any other stuff i would like to help im pretty much in the same boat..
Outlaw

Jason K
Regular Member


Date Joined Mar 2006
Total Posts : 22
   Posted 3/25/2006 11:30 PM (GMT -6)   
Outlaw, thanks for your reply.  I had the type of stress test where you run on a tread mill and have an EKG done at the same time.  Not sure what that is called!  I used to weigh about 220 and now am down to 180.  It's hard to eat a lot when it makes you feel like crap afterword.  I do except the fact that I have GERD, but what's with the blood?  I have seached all over the internet and I can't find anyone that has GERD and blood in their spit.  It's freaking me out.  I guess it could be from my sinuses, but I am not getting any blood when blowing my nose and I can't see any running down the back of my throat.

Outlaw
Regular Member


Date Joined Mar 2006
Total Posts : 130
   Posted 3/26/2006 5:11 AM (GMT -6)   
Im no doctor but I have bad panic disorder,im a health nut and im your age bro Gerd sucks man.I think this though with all your tests coming back good,I think its from your sinuses man.Like sometimes if i like try to spit up some stuff u know what i mean like try to im going to see blood,most likely from your nose.Now if you was coughing up blood etc,or if you had dark stool,or blood in your stool?Than thats a another matter hopefully someone else can chime in on this homie.Your symptoms is like mine,but im real skinny whatever i eat i usualy get sick.Thats why I think I might go the surgery route i cant drink notta but water,I eat foods like Turkey,and eggs..I want my life back..Well stick with it,and good to be considred but try not to get worked up..
Outlaw

Monkeybean
Regular Member


Date Joined Dec 2005
Total Posts : 281
   Posted 3/26/2006 12:43 PM (GMT -6)   
Hi Jason,

So, what are they treating you with now? Blood is not something to dismiss. If you don't feel that you are being adequately treated, seek out second and third opinions. This is your body and you're not overreacting when you are concerned about spitting up blood.
25 yr.-old woman.  Crohn's, Irritable Bowel Syndrome, and GERD. 
 
Currently taking:  Pentasa, 6MP, Nexium, Zantac, Lexapro.
 
This is all so glamorous.


hearty
Regular Member


Date Joined May 2005
Total Posts : 303
   Posted 3/26/2006 9:42 PM (GMT -6)   
Isn't the chest pain just the worst? I actually had a so-called specialist tell me gerd and chest pain don't go together. Makes you wonder why he gets paid the big bucks.

Hope you feel better and find some answers.

Jason K
Regular Member


Date Joined Mar 2006
Total Posts : 22
   Posted 3/28/2006 10:54 PM (GMT -6)   
I haven't been back to the GI since the bravo. I had an appointment for 2 weeks after the bravo, but they called and cancelled on me. Then they rescheduled me for the next available, which happens to be this thursday. I'm pretty sure that the blood is comming from my esophagus becasue when the pain from the reflux is really bad, that's when I get the blood. I'm just hoping that the GI agrees and gets me on some medicine that will actually work. Again, I'm not caughing up or spitting up blood. I actually have to suck the spit from the back of my throat and then when I spit it in to the sink, it has blood in it. Pretty scary. I guess here's my deal; I have had a chest x-ray, a contrast chest CT, an endoscopy and an ENT check out my sinuses, throat, and vocal cords. The blood has to be comming from somewhere, so who's not finding it?

Jason K
Regular Member


Date Joined Mar 2006
Total Posts : 22
   Posted 3/30/2006 7:07 PM (GMT -6)   
Went back to the GI today. He said the blood in my spit is probably a combination of acid reflux and me trying to suck spit from the back of my throat tramatizing my esophagus. He wants to put me on anti-depressants. He doesn't think that my problem IS GERD. He thinks something else is going on, but he doesn't know what else to test for. I left the GI very upset. I'm not sure what to do anymore.

gamhead
New Member


Date Joined Oct 2006
Total Posts : 1
   Posted 10/24/2006 8:44 AM (GMT -6)   
Dude that is unbelievable..

THIS is why people die unnecessarily because they are made to feel like GODdarnED hypochondriacs by doctors who don't give a crap.

I've got the same problems and have had the same dismissive responses, leaving me to feel stupid and paranoid. It's almost like I want to get the cancer or whatever just to prove to them that I did have symptoms all along. These people probably go on to get pay rises as well. ARGHH!

Dude let me know what happened.. don't give up looking for answers!

..Another 28yr old bloodspitter..

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 10/24/2006 7:08 PM (GMT -6)   
Were stomach ulcers ruled out? Did you have an H.Pylori test? It's a simple test, you breathe into a balloon, drink some special effervescent liquid wait 15 minutes and then breathe into another balloon. It's then sent to a lab.
Make sure you all have this test done to rule out ulcers. If you have this, it can be treated with antibiotics.

sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 10/24/2006 11:04 PM (GMT -6)   
I really feel for you because you are so young. I agree that spitting up blood is not normal and really needs attention....get a second opinion and switch doctors if yours is not concerned enough. After having this disease, I have lost all respect for doctors because they just don't seem to care. I pray they can find out what's wrong soon...hang in there kiddo but take charge of your health, no one else cares like you do.

Are you taking aspirin at all because this can also cause your stomach to bleed even if you don't feel it...good luck.

RoseV
New Member


Date Joined Oct 2006
Total Posts : 9
   Posted 10/25/2006 1:17 AM (GMT -6)   
Hi Jason,

My name is Rose, I ran across your message and had to take the time to write to you.

I have Barretts Esophagas and I also have GERD. Its awful.

I have had 2 stomach surgeries and I am still not any better. I take a prilisec everyday, sometimes 2. I was told with the surgery I wouldnt have to take meds anymore. But they were wrong.

I have woke up in the middle of the night with chest pains and vomited up black blood. I have also passed blood through my stool. When all of this first started about 15 years ago, I didnt know what to look for. By the time I gave in and went to the emergency room, I had lost over half my blood. They really scared me to death.

I know the bad taste you are talking about. The blood I always passed was black.

Sometimes I feel like doctors do not know anymore what they are doing.

Ive had to have the same surgery twice and the last time, they got it so tight, that my weight has gone from 153 down to 104. I am just now getting back to 110 thank God within 3 years. My family thought I was dieing.

No matter what, think twice before you ever let anyone operate on you.

The chest pains feels like a heart attack. I do understand. If you ever need to talk, I will give you my instant messagener.

You can buy the Prelisec over the counter, and it works great. I think it would help you, I really do.

Good Luck
Rose

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 10/25/2006 10:26 AM (GMT -6)   
Sorry about all your troubles Rose but you have to take action yourself. After everything you've been thru, you should be ready to change everything about the way you eat.
Please check my postings for ALKALINE way of eating. No acids!!!!
It's helped me tremendously within only 1 1/2 months. Please try to change your food intake.

RoseV
New Member


Date Joined Oct 2006
Total Posts : 9
   Posted 10/26/2006 6:46 PM (GMT -6)   
Thank you Danie, I will go and read it right away.

Also, I am not suppose to eat anything with gluten in it. I havent taken it serious enough and I think I may try to keep that from my diet and see that helps.

I never thought as I was growing up I would have so many medical problems.

I found out today, that I need to have back surgery as I have a dried up disc, and its turning brown and the only option left is surgery. Just please anyone who reads this, speak my name in your prayers.

Thank you

BinyaminL
New Member


Date Joined Jul 2014
Total Posts : 1
   Posted 7/8/2014 10:45 AM (GMT -6)   
Hey Jason,

Thanks for posting this. I'm curious if you ever found a solution to your problem. I'm currently 28 years old and experiencing the same symptoms. I was diagnosed with GERD and put on 40mg Pantoprazole (PPI) and 40mg Famotidine (H blocker) for 2 months, which seemed to do the trick. However, my symptoms returned right after I got off the meds.

I asked my GI if I should get an endoscopy, and he said it wasn't necessary. I sought another provider for a second opinion, and he said the same thing. I'm getting a little worried because I'm spitting up blood and I had a case where my stool appeared reddish/maroon last week (haven't had a recurrence since then). I'm getting desperate for a solution, so please let me know if something worked for you.

Much thanks!

SusieDawn
Regular Member


Date Joined Jul 2014
Total Posts : 32
   Posted 7/9/2014 5:12 PM (GMT -6)   
Jason, I get blood from my esophagus too, only mine comes up and out my nose, not a lot of blood but enough to scare me. I started taking aloe vera juice (100% with NOTHING added), and that seems to help heal after the burning. I have noticed a definite pattern of bloody nose the day after massive burning happens. You might try the aloe and let me know if it helps, it might take a day before you notice any improvement.

SusieDawn
Regular Member


Date Joined Jul 2014
Total Posts : 32
   Posted 7/9/2014 5:14 PM (GMT -6)   
oh and Jason, ditch the orange juice, citrus is a killer for us with LPR, in fact look at the labels on most juices, citric acid is added to nearly every juice, ditch anything like that. If you can find pear or apple without any added acid, those might be ok...

SusieDawn
Regular Member


Date Joined Jul 2014
Total Posts : 32
   Posted 7/9/2014 5:18 PM (GMT -6)   
Sorry, one last post, as I've said on other forums, this is the very best advice I can give you, please buy this book by my doctor "Killing me Softly from Inside" by Dr. Jonathan Aviv, it explains LPR (throatburn) which it sounds like you have and how to treat it, and the treatment is almost 100% what we eat, and don't eat, hope that helps!

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 7/9/2014 8:08 PM (GMT -6)   
BinyaminL

Welcome to Healing Well.

Unfortunately you have responded to a very old thread . Jason hasn't posted since '06.

Please start a new thread and ask any questions you have.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11
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