I have been off of the PPI's for 5 days and I am feeling beter!!! The last two days I have had more energy and I have been able to eat with out feeling like hell afterwards.
Was it the PPI's that were casuing most of my pain???
I have tried to stop them before, but after a week I had an episode with a lot of pain and reflux, so I just gave up and went back on the meds. I've now learned (from this forum and then asked my doctor) that when you stop taking the PPI's you get acid rebound. Your stomach produces too much acid for a while so you can feel like you getting worse at first. I plan to stick it out this time and see if I get back to normal.
When I say normal I mean back to the way I was before I started taking the PPI's. When my heartburn first started it was pretty mild. I had a slight pain in my chest, but nothing to serious. I still wanted to know if I had a problem, so I went to the DR. The determined after some testes (chest x-ray and EKG) that I had GERD. They put me on acipex. It worked for a bit, but then I had more pain so they put me on a double does of previcid and sent me to the GI for an endoscopy. The endoscopy showed that I had refluxing and that my espohagus was a little red, but it didn't look to bad. They put me on a double does of Prilosec and sent me on my way. After that is when I really started to feel sick. I started having pain every day and that was the first time I tried to quit the PPI's. I felt pretty good for a few days but after a week I gave up and went back on the meds. The next time I quit the meds was to have a PH bravo study done. I had to quit the meds 7 days before the test. By the time the test rolled around I felt almost normal, so of course my esophagus looked fine to when they were down there. Then about 4 days after the endoscopy/bravo I started having pain again so I went right back on the meds. I just went back to the GI last week and he said that something else besides GERD is going on and that what is causing my pain. He said that if it was GERD, the PPI's would have helped. He tried to put me on anti-depresant and that is when I new it was time to fire him as my doctor.
My plan is to try stopping the meds and getting past the acid rebound. Maybe I will go back to being normal with only a little heartburn that I can probably fix with diet??? I can only hope and pray!!!
I'm going to try it for at least a month. The only way I'll go back on the PPI's is if I'm dieing. If that doesn't work I think I am going to take some time off of work and go to the Mayo clinic in Rochester, MN.
I will let you all know how it goes!