Just kill me and get it over with!

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Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 11/4/2006 6:11 PM (GMT -6)   
I'm not suicidal per se, but if the gods decided to strike me down at any moment, you wouldn't get any complaints from me. I just can't stop the pain, I can't care about anything else and nothing else matters anymore. I've been in the ER 5 times in the past 3 weeks, my doc has put me on so many meds that I can't keep track anymore and some of em are messing with my head, and the pain is so bad that it burns right through the Lidocane GI cocktail and they had to give me Morphine (which I subsequently had a terrible reaction to). I can't afford any expensive tests as I'm uninsured and unemployed. It doesn't matter what I eat, Graham crackers, grilled chicken... I don't have stomach pain so the doc says it can't be H. Pylori...

God I just want the pain to stop.

poobear
Veteran Member


Date Joined Jan 2006
Total Posts : 629
   Posted 11/4/2006 7:58 PM (GMT -6)   
I am so sorry you are having such an awful time.. I can relate with the pain as I have Crohns disease and have had thoughts like you many times.. I will keep you in my thought.. I hope you get to feeling better soon..
TCCIC
29 y/o Female Diagnosed with Crohn's October 2005 (symptoms for as long as I can remember) & Gerd 1996 Currently taking - 6mp 50mg per day, Pentasa 1000mg 2x per day, Remicade every 8 weeks (but need it sooner), Tramadol prn, Phenergan prn, Nexium, Prozac, Nordette, Multi-Vit, and Digestive Advantage for IBD.

"What doesn't kill us - sometimes drop kicks us into a new and better place - a place we mightn't have gotten to any other way." - Unknown
http://www.myspace.com/chroniechick


sadams
New Member


Date Joined Nov 2006
Total Posts : 8
   Posted 11/5/2006 3:31 PM (GMT -6)   
I too can relate to the extreme pain you are feeling. Never in my life was I suicidal until my reflux was at its worst. Have you check to see if perhpas there are any research studies going on in your area. If so you can often get free medication and medical care as long as you are willing to be a test study.

I often use a heating pad to help with the pain, does not help that much but it is better than nothing. I also learned to meditate and do Yoga There is a way to separate yourself from the pain. Even though it hurts you can realize a few moment of peace if you can learn this technique. I picked up tapes at the local video store. Good luck to you.

Sylvia

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 11/5/2006 7:15 PM (GMT -6)   
Finbally got someone in the ER to recomend me for a barium scan, j ust need to set the apointment, until then they have me on some med called vicodin. It helps some, not so much with the the pain , more that I have the pain and just don't care all that much... I call tomorrow to set up my appointment... looking like there may be a hernia involved tho i cant say for sure...

imalukatic
Regular Member


Date Joined Nov 2006
Total Posts : 62
   Posted 11/6/2006 1:00 PM (GMT -6)   
I know what you mean. Some days it's so bad I just wish I wouldn't wake up in the morning. I hate that I have to be so afraid of what I put into my mouth because I never know what's going to flare things up. I've lost alot of weight, too, and I'm not that big to begin with. So that's a concern for me. Good luck with your barium scan.

whiskeygirl
Regular Member


Date Joined Oct 2006
Total Posts : 66
   Posted 11/6/2006 3:15 PM (GMT -6)   
Closetfire:
 
I know exactly how you feel. I had the same thoughts a few days ago. My symptoms are different. I suffer an acid taste in the back of my mouth. And when I lay down to relax it just gets worse.  It's with me all day long. The only time I feel good is when I'm sound asleep.  Have you tried going to a therapist. It might help with all this frustration. My symptoms were  so bad last week, it started to attack my throat. I just want to be healthy. I did have heartburn, just not as bad as you do.  I really do wish you well and please think positive thoughts.
 
Whiskey Girl

imalukatic
Regular Member


Date Joined Nov 2006
Total Posts : 62
   Posted 11/6/2006 3:55 PM (GMT -6)   
Whiskeygirl, I didn't think to mention this before, but I'm wondering if digestive enzymes might help with your problem. My Chinese Doc has me using them and without them I can't eat. It seems to have cut my throaty acid problem down quite a bit. Some days my neck has been so sensitive from the tight throat I can't even touch my neck without gagging. Has this ever happened to you? But now it's lessened quite a bit since I started using the enzymes.

whiskeygirl
Regular Member


Date Joined Oct 2006
Total Posts : 66
   Posted 11/6/2006 4:08 PM (GMT -6)   
I don't know anything about digestive enzymes. Can you inform me a little bit?

imalukatic
Regular Member


Date Joined Nov 2006
Total Posts : 62
   Posted 11/6/2006 4:35 PM (GMT -6)   
Digestive enzymes assist the body in the breakdown of food. There's various types of enzymes that are responsible for the chemical breakdown of foods. So I'd look for a good multi-formula digestive enzyme. The one I'm using that works like a charm, is from a company called Selekta, but it's a professional product that I got from my TCM. But you should be able to buy an equally quality product at a health food store. Have you tried probiotics as well? That helps to restore the good floral bacteria in our guts, which can also wreak havoc with our digestive systems if the bacterial balance is out of whack. Again, these are things that I was doing initially, but stupidly stopped when I started feeling alot better. So I'm bascially starting over again, but this time I'm sticking with it long term. My TCM says that it'll take about 6 months to restore my system, but I'll be feeling alot better long before that. She recommends that I continue using the digestive enzymes and probiotics for the rest of my life, to prevent any future problems...and to watch my diet. I don't ever want to go through this again, so I'll be heeding her words.

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 11/14/2006 6:20 AM (GMT -6)   
I cured myself of GERD with a STRICT ALKALINE DIET (SEE MY DETAILED POSTINGS) and taking DGL licorice before ANYTHING I ate, elevating my head and sleeping ONLY ON MY LEFT SIDE. Along with that I did esophogeal exercises to strenghten the esophagus (which I describe in detail on another posting).
If I can do it, you can also. I was on Prilosec only for 1 month and had a rebound effect. My doctor put me on Zantac and when that didn't work, I realized it would just be an unbroken circle of drugs and more drugs. I decided to do it on my own. If pain doesn't motivate you, I don't know what will!
I had severe dizziness and nausea all the time.

sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 11/14/2006 11:45 AM (GMT -6)   

Danie,

What exactly are you eating?  Where did you find info on the alkaline diet?  Do you really think the exercises helped?  Everytime I try the exercise, I get an acid reflux...did you? 


DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 11/16/2006 9:59 AM (GMT -6)   
Just scroll back and see my postings on Alkaline diet.  I gave alot of sites to give you information on different foods you can eat that are more alkaline and less acid.
I really think this is the answer to GERD!
For all of you out there that have been on drugs for years - please try this.  You do have to give up everything you normally eat however!  I did not eat out even once during the time I was trying to recover.  If you have a problem giving up coffee, alcohol, sugar, all wheat - well, then it might not work for you.
I gave up EVERYTHING, and I can tell you that it worked for me.  I did use the DGL licorice 20 minutes before I ate anything and I did eat very small portions of food at a time.
 

whiskeygirl
Regular Member


Date Joined Oct 2006
Total Posts : 66
   Posted 11/16/2006 11:21 AM (GMT -6)   

Danie:

I agree with you. I have also said that diet has alot to do with your gerd symptoms.  I also believe that stress plays a big part in it as well. I am working on both, eating more akaline foods and therapy sessions.
Thank you for your advice.

Whiskey Girl


debimum
Veteran Member


Date Joined Feb 2006
Total Posts : 712
   Posted 11/21/2006 6:23 PM (GMT -6)   
Danie, I heard the licorace can give high blood pressure? 
 
 I was told to bring the acid down pretty quick is to eat asparagus. I have already put it in the blender with a bit of water and drank it down.  I have never liked that veggie too much, but it did help me feel better.  I do keep cans of it on hand. 
back to square #1- off meds for now-dx with fibro.  Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections.  Asthma/COPD.
 
 


DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 11/21/2006 8:24 PM (GMT -6)   
DEB,
I have posted this so many times, it's ridiculous - the DGL form of licorice has had the bad part that causes high blood pressure taken out. It's very safe to use.

I don't know if asparagus is really that alkaline. Try to get your vegetables in frozen form, more vitamins. You can try string beans, broccoli, sweet potatoes, tofu, avocados, etc.
Look at the alkaline vs. acidic vegetable charts to find more information.

imalukatic
Regular Member


Date Joined Nov 2006
Total Posts : 62
   Posted 11/24/2006 1:10 PM (GMT -6)   
Early on I was eating alot of asparagus, but was experiencing alot of reflux. Then one day I saw asparagus on an acid list, so I stopped eating it. Personally I'd avoid it till your symptoms were much improved. But that's just my opinion. If you can eat it and get away with it...why not.

whiskeygirl
Regular Member


Date Joined Oct 2006
Total Posts : 66
   Posted 11/24/2006 3:03 PM (GMT -6)   
Has anyone on this board been feeling better with all this advice. I for one, have some good days and some bad. The acid taste in my mouth is still my primary problem. Has anyone had any relief with this symptom?

imalukatic
Regular Member


Date Joined Nov 2006
Total Posts : 62
   Posted 11/25/2006 9:33 PM (GMT -6)   
Yes I am definitely feeling better because of alot of the advice given here. I've noticed I only get that awful acid taste in the morning now if I've over eaten the evening before, or if I've eaten something my stomach's not ready to have reintroduced to it yet.  For example, yesterday evening I added a small beet to my juicer mix. I haven't had beets since August, but since I'd been feeling so much better I thought I'd give it a try. But no go. At one point when I woke up in the middle of the night I felt a bit of nausea. When I woke up in the morning I had a little of that nasty taste in my mouth, but not as bad as in past weeks. So even my worst days now are not as bad as they were recently. I mentioned this to my TCM when I saw her today, and she said it's normal for that to happen until your condition has completely healed. So I'm not going to sweat over those small blips anymore. I'm just going to focus on the positive, which now outweighs the negative. I'm devoting all my energy to feeling better and getting my life back.
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