Diagnosed 3 days ago by my doctor with Acid Refex Disorder HELP!

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younglady94
Regular Member


Date Joined Oct 2006
Total Posts : 178
   Posted 2/5/2007 11:14 PM (GMT -6)   
Hello Everyone! new to this topic GERD/heartburn. I normally post in Allergies and Asthma
Syptoms for 3 weeks were after eating a meal feeling of vomiting, sour stomach, acid feeling in throat. Went to doctor he said it is Acid Reflex. Little help understanding more about the disease. Anyone with any suggestions would be great. Thanks Brandi.

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 2/6/2007 11:45 AM (GMT -6)   
Hi Brandi,
There is so much information for you on this board and self-help. Just read all the postings and go back and read others. You will learn alot.

Paula49
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/6/2007 12:57 PM (GMT -6)   
Hi, I'm a newbie this morning...I too have GERD ( Gastroesophageal Reflux Disease) sobadly that it has burned my larynx and my vocal cords to the point of my losing my voice. I have had the Endoscopy, plus a microchip put into my esopahgas with a tube connected to a small computer to check the PH in my esophagas. My doc put me on Nexium for a while, then took me off it. Now I have had to go to an EENT Doc for the voice loss and he said that I will have to be on Nexium 40mg twice a day, forever. I have a Hiatal Hernia, which causes the Acid Reflux. Also my EENT told me not to eat anything spicy, NO coffee, do not eat after 7pm and do not drink anything within an hour or so before going to bed. In other words....go to bed with a "Totally EMPTY stomach". Also raise your head on a couple of pillows...don't lie flat.
Good Luck to you. If I can help any more please feel free to ask. I am a nurse also!
Paula49

younglady94
Regular Member


Date Joined Oct 2006
Total Posts : 178
   Posted 2/6/2007 2:43 PM (GMT -6)   
Thankyou, danie, Paula49 for your advice.
 I will go to bed tonight on an Empty stomach see what happens. Paula49, I have a medical question for you: I have heard from a few people that Acid reflex is linked to Adult-onset Asthma which I have is that true? I was diagnose with Asthma when I was 26 yrs old. I did have many syptoms of Asthma growing up, but the doctor told my mom it was just bronchitis all  the time... I got a book at the library about Acid Reflex Disease. I like learning all I can about conditions that I have. Thankyou, both have a great day! Brandi.
 
Asthma
Chronic Rhinitis
Chronic Sinusitis
 
Advair 500/50
Nasonex spray
Albuterol-neb-inhaler
 
And now Acid Reflex.

possitive
Regular Member


Date Joined Mar 2005
Total Posts : 239
   Posted 2/6/2007 10:40 PM (GMT -6)   
Paula49.I am having the PH study test on friday and im hoping they put the capsule in my asophigas instead of the wire in my nose.I have Barretts and a large Hiatus Hernia,my spincter muscle is gone.You said you are a nurse,Have you heard of the PH study done with the capsule placed in the asophigas?  Tammy

 


friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 2/7/2007 7:13 PM (GMT -6)   
Paula49 said...
Hi, I'm a newbie this morning...I too have GERD ( Gastroesophageal Reflux Disease) sobadly that it has burned my larynx and my vocal cords to the point of my losing my voice. I have had the Endoscopy, plus a microchip put into my esopahgas with a tube connected to a small computer to check the PH in my esophagas. My doc put me on Nexium for a while, then took me off it. Now I have had to go to an EENT Doc for the voice loss and he said that I will have to be on Nexium 40mg twice a day, forever. I have a Hiatal Hernia, which causes the Acid Reflux. Also my EENT told me not to eat anything spicy, NO coffee, do not eat after 7pm and do not drink anything within an hour or so before going to bed. In other words....go to bed with a "Totally EMPTY stomach". Also raise your head on a couple of pillows...don't lie flat.
Good Luck to you. If I can help any more please feel free to ask. I am a nurse also!
Paula49
Paula49, I'm surprised that your doctor said not to eat anything within an HOUR before going to bed.  I heard to not eat anything for 3 to 4 hours before sleeping.  Also, I was also told that putting more pillows under the head does not work as well.  I was told to prop the head/torso part of my bed 45 degrees...

younglady94
Regular Member


Date Joined Oct 2006
Total Posts : 178
   Posted 2/9/2007 1:30 PM (GMT -6)   
:-)  Hello All! thanks, all for your entries. I have started a new medication for Acid Reflex. PRILOSEC I can't remeber exactly how the spelling goes. How good does that medication work does anyone know???? I had a terrible day 2 days ago. After I ate a small meal about an 1 hour later I had terrible burning in my throat worse that I have ever experience. It wouldn't go away for anything. Then shortly after that I thought for sure that I was going to vomit, but never did Vomit. I need some suggestions on how to improve this feeling in my throat?? .. Thanks, best wishes! and take care everyone. Brandi.
 
 
Asthma
Chronic Rhinitis
Chronic Sinusitis
Acid Reflex Disorder
Restless Leg SYndrome
 
Advair Diskus
Albuterol
Nasonex
Prilosec
 

sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 2/9/2007 7:45 PM (GMT -6)   
Education is the key to helping ourselves with this disease and then it's trial and error to see what works for each of us. I have found that the doctors don't give near enough information. I've found out almost everything I know on my own, from this site and the internet. The doctors are so busy....some food stays in your stomach 6 hours, especially protein, so please don't eat for 3 to 4 hours before bed depending on what you ate for dinner.

Prilosec is the mildest of all the PPI's I feel...one tablet doesn't even begin to stop my acid reflux...check with your doctor about dosage and then look at back postings and you'll find lots of info on natural rememdies for reflux and LPR.

Hope you get some relief soon.

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 2/10/2007 9:11 PM (GMT -6)   
Sillylilly,
There has to be something that you can try that will help you? Are you doing absolutely everything you can to heal?
You mentioned that DGL gave you headaches? Are you maybe allergic to licorice? Do you have alot of food allergies?
Are you sleeping exclusively on the left side???
We have to get to the bottom of this for your sake.

sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 2/11/2007 12:05 AM (GMT -6)   

Danie,

If your "will" could heal us, we would all be cured...and that's a compliment to your determination to help us. 

Believe me I have tried everything you and the others have suggested.  I am not overweight (117 lbs); I'm a very fit 60 year old who ate very healthy and worked out and did everything right I thought.  My problems really started when my doctor put me on hormone replacement therapy and it gave me hypertension and damaged my sensory nerves, especially in my gut.  I was never constipated until this happened.  My acid reflux started about 4 months ago after drinking some wine which I hadn't had for years. So, my problem is caused by nerves not working right in my gut and now my sphincter.    

Please try to understand that it would be very dangerous for me to go off the meds.  The longest I went without the meds is 5 days and then I had to start all over again to heal my esophagus.  I've done the alkaline diet for 4 months and very strict like you say.  The problem is my spinchter is very loose and it doesn't heal by just eating the right thing. There is a real anatomical structural defect in my sphincter which allows acid to come up...even up to my tongue.  If I wasn't taking the meds and ate a strict alkaline diet, I would still have acid coming up because of the defect. I have finally accepted this fact, because I was in denial and thought that all the suggestions here would heal me but they didn't.  And it's not because I haven't tried long enough. I'm used to eating very healthy, exercising and being disciplined with my life. I even thought the Sarno technique might work for me but it didn't.  Boy, did I bring up some horrible memories that were suppressed...

This site is great because it's a place where hurting and frustrated people can talk to other hurting people and get some encouragement and some tips for what might work.  JUst being able to look forward to talking to people who understand our condition is all some of us can hope for...some have been cured and that's great, but some of us have real serious GERD that cannot be cured by natural means.  Sorry to tell you this but it's true.  The GERD you had was not the GERD I have and that's the crux of the matter. 

But, you know what, it doesn't mean I won't keep trying some of the suggestions from this site because it gives me hope and someday, just maybe I might get healed. 

 Thanks again and keep posting, you have helped alot of people and it would be a shame to not hear from Danie. 

Sillylilly 

 

 

 

 

 


sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 2/11/2007 1:31 PM (GMT -6)   
I still don't understand why you keep saying to take PPI's that constipate...what good does being constipated do for anyone. Could you explain this to me.

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 2/11/2007 7:57 PM (GMT -6)   
Sillylilly,

I'm sorry for all your problems. Are you sleeping only on your left side? Really TRAIN yourself to do that. See if it helps you after about one month.

I also don't understand what the heck Indersonu is talking about with her postings. Please don't confuse people. Thank you.

sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 2/11/2007 10:30 PM (GMT -6)   
Yes, Danie, I've been sleeping only on my left side for 4 months.  Thanks for your concern.

HeartBurner
Regular Member


Date Joined Jan 2007
Total Posts : 38
   Posted 2/12/2007 11:57 AM (GMT -6)   
YoungLady, Check out some great reviews on Prilosec:

http://www.epinions.com/Prilosec_OTC_Acid_Reducer_Delayed-Release_Tablets/display_~reviews

Tummytuck
Regular Member


Date Joined Jan 2007
Total Posts : 99
   Posted 2/13/2007 8:58 AM (GMT -6)   

sillylilly,

I am sorry to hear about all the trials you are having with this.  I was diagnosed only recently as well and find this whole thing to be a huge pain in the rear.  I currently take 20mgs of Nexium twice a day; if I don't, I am in extreme pain and have GERD the entire time I am up and awake.  It doesn't seem to bother me at night so I think I might actually have LPR, the symptoms of which fit my case better.  I have also taken the advice of others and have tried the DGL and slippery elm.  I must say that both have helped but I dare not use them exclusively.  The slippery elm does coat and soothe my throat which is where I tend to feel the burn rather than my esophagus.  The nexium helps alot though not completely.  I am 53 and have taken good care of myself as well and really dread the idea of two pills a day for the rest of my life.  But, what can I do?  I've not had the endoscopy and don't really see the point.  I figure it will tell me that I have a loose LES and acid reflux and that I need to go on meds.  Don't I already know that? 

Has anyone actually learned anything from their endoscopy?

 

Tummytuck


DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 2/13/2007 6:54 PM (GMT -6)   
Tummytuck,

You probably really have to restrict your way of eating. Please check out all the alkaline postings on this board. It will help you to eat differently.
Make sure you take enough of the DGL, 20 MINUTES BEFORE YOU EAT ANYTHING (dissolved slowly in your mouth). I did not find relief with 1 or 2 tablets, I used 3 and that was the breakthru for me.

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 2/13/2007 7:06 PM (GMT -6)   
I've never posted this before since I didn't want to scare anyone but when I had my endoscopy I had a complication. They say it happens in 1 in 1000 cases.
I had what is called LARYNGOSPASM, my airway shut down as if I had a massive asthmatic attack.

As it turned out I was very lucky (my insurance wouldn't pay for the endoscopy to be performed in my doctor's gastro center but paid for it at NYU Medical Center here in NYC) I was in a hospital.

When I woke up from the sedation I couldn't breathe well at all and they kept giving me inhalers and medication in my IV to open my airway. There were anesthesiologists and nurses all around me and I was told I was the "episode" of the day! They kept asking me if I had asthma and I told them, never and I never had any kind of allergies either.

I was in the hospital for 6 hours and still can't believe it happened to me since I've had multiple intubations for surgeries and never had a problem. The anesthesiologists told me that when one is intubed for surgery, the patient is also administered antispasmodic medication.

From what I've learned about laryngospasm, if one has asthma they should always ask for antispasmodic medication when intubated for any reason.
It's apparently a risk - look what happened to me!

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 2/13/2007 7:12 PM (GMT -6)   
Wow, Danie that does not sound like fun. Most times this doesn't happen. I didn't have any pain or even any recollection of the endoscopy.
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