Gastroparesis and reflux

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friendlygal
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   Posted 2/12/2007 11:41 PM (GMT -6)   
Today my doctor told me that I may have gastroparesis (slowness in eliminating contents from the stomach due to a nerve problem).
 
This may explain whey I have reflux!  Has anyone else been diagnosed with this?
 
It causes constipation...

friendlygal
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   Posted 2/13/2007 3:16 AM (GMT -6)   
indersonu, thanks for your post.  But I don't know what you mean that I should take a PPI that will constipate me.  please explain.

DANIE
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   Posted 2/13/2007 7:25 AM (GMT -6)   

Indersonu obviously has this problem - gastroparesis - and is following a diet to aid it. 

Here is an good site to explain it....and it mentions that the condition can also give one GERD symtoms. 

Gastroparesis - MayoClinic.com


friendlygal
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   Posted 2/13/2007 7:30 AM (GMT -6)   

Thanks, Danie.  I did already find and look at that site before your post. But it is a good site. :))

I think I might have it.  I will get testing to find out.  But I don't see how taking PPI's "to constipate you" would help it.  That's the part of what indersonu said that I don't get.  I think that if PPIs are constipating me then it is making my condition even worse.


Post Edited (friendlygal) : 2/13/2007 10:03:06 AM (GMT-7)


RandyDandy
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   Posted 2/13/2007 11:34 AM (GMT -6)   
indersonu said...
 
 
  If you decide to take a ppi, please make sure that it will constipate you, you could counteract the ppi by eating watermelon or plums. 
Yes, I would also like an explanation of this. Indersonu, you have mentioned the need to be constipated at least 3 other times and it never makes sense to me. Is this just some type of spelling error that you are unaware of or do you really mean this. Why would constipation be a good thing?

friendlygal
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   Posted 2/13/2007 7:09 PM (GMT -6)   
indersonu, why don't you ever explain when people ask you what you mean when you say to try ppi's that constipate?  we want to understand...

DANIE
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   Posted 2/13/2007 10:48 PM (GMT -6)   
Indersonu, you should start a message board for gastroparesis (which you obviously know alot about and what to eat for this disorder).

Alot of the food choices you post are not good for GERD, they are not very alkaline. For example, lentils and beans are very acidic along with all wheat products even whole wheat.

If someone wants to get off the drugs they should be careful with at least the most acidic foods.

friendlygal
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   Posted 2/14/2007 4:09 AM (GMT -6)   

I know that green beans are bad for people with gastroparesis.  gastroparesis causes GERD due to not being able to eliminate (stuff gets refluxed up to the esophagus because it has no where to go).

indersonu, thanks for the suggestion to keep moving.  i think a big problem i'm having is that i'm not exercising.  i cannot sleep at all due to my elimination problem adn i get so tired.  i'm wondering if i need an enema pronto!

many people on this board might have an elimination problem that causes their gerd (you can have an elimination problem without having gastroparesis).


debaser
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   Posted 2/15/2007 1:15 AM (GMT -6)   
They thought I had gastroparesis. They gave me this test (gastric emptying study) where I had to eat an egg sandwich, and the bread was soggy plus if tasted all hospitally. It had an isotope in it, but I don't think that's what made it gross. They just didn't know how to cook...haha.

Anyway, I basically just sat in this room and every now and then would have to get up and stand in front of what I think was a CT scanner or something similar. It allowed them to watch the food as it passed through my stomach.

Even though I did feel ill during the test, it still came back normal. I was actually disappointed because to me it seemed like that was my problem (can't explain why but I always "felt" like my stomach wasn't letting go of my food even before I knew that was a disorder you could have). I was hoping that was the problem so I could have some sort of resolution...I was tired of not knowing why I was getting sick all the time and the doctor hadn't yet decided I have an anxiety problem.

So are you having a gastric-emptying study, friendly? If so, it's an easy test. I did get ill, but in those days I was constantly getting sick so I have no reason to believe the test triggered it.

friendlygal
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   Posted 2/15/2007 6:00 AM (GMT -6)   

debaser, my appointment is on the 22nd to see a GI doctor.  I had a CT scan a while ago because I had pelvic pain.  they saw bowel and a pill in my stomach area.  I have no idea why nothing was done about it back then.  It was obvious back then that I have an emptying problem.

I think you should be glad that you don't have gastroparesis.  I know that it is good sometimes to feel that you have something so that you can target the problem.  But, I read that gastroparesis has no cure (is that true?)...I hope that my stomach emptying problem is not gastroparesis.  I hadn't gone bowel in a long time, then i went twice and now i'm back to not going again.  i'm not happy about this!

I can't make the appointment for the stomach emptying test until I speak to a GI about this (only my primary doctor knows about my problem now).  I think I should call the GI place that I have an appointment with and tell them about my huge problem in not producing bowel.  that way, perhaps they can schedule the appointment without having to see me first!  If I don't make a bowel soon, I fear that I could die.  It's jsut been too long!

 

 


DANIE
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Date Joined Aug 2006
Total Posts : 321
   Posted 2/15/2007 7:30 AM (GMT -6)   
FG,
I think you should see a doctor today, and if you can't, go to a hospital emergency.  You should not be in this condition.
 

friendlygal
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   Posted 2/15/2007 11:50 AM (GMT -6)   

Thanks DANIE! :))

I just called the GI place (I am new to the place and just had one visit a month ago.  I see the nurse practioner because the GIs there are booked.  But she is very good and if she sees that I need to see a GI then she will make sure that I do).  I told the operator that I would like at least for my next appointment to be a procedure done (such as a stomach emptying test or an enema!)...Because I can't go to the doctor on the 22nd just to talk and then wait!

I will be called back and who knows, maybe I'll be going in today for an enema.  I will see what they say!

A couple of people on the IBS board said that enemas hurt them.  But my stepdad said he had it done before and it didn't hurt.  So I hope that it won't hurt me if I get it done!  I think it might depend on what's going on inside (whether or not it hurts).


DANIE
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Date Joined Aug 2006
Total Posts : 321
   Posted 2/15/2007 11:59 AM (GMT -6)   
FG,
Don't take no for an answer, see someone today! You will find alot of relief when you are finally cleaned out. I can't even imgine this, I have to go everyday or I would think I'm dying!!
You have to get "unconstipated" and then try to eat only pureed foods (just throw cooked vegetables -spinach etc. -and some steamed fish or chicken in a blender/processor - whatever you feel you can eat, soft foods) and drink water. Eat some pureed prunes (even though acidic, they may help you at this time or drink some prune juice with water),e eat kiwis, take the ACV like Randy suggested mixed in a glass of water. Try anything that will not constipate you again.
Good luck, you will start feeling much better you'll see.
After all this is taken care of, I want you to post EVERYTHING that you eat. I just want to see where the problem might be.

DANIE
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Date Joined Aug 2006
Total Posts : 321
   Posted 2/15/2007 12:00 PM (GMT -6)   
FG,
Applesauce might be good for you too. Keep everything pureed nothing for your intestines to have to PUSH hard, just slide thru!!! I can't think of any other way to put it :)

friendlygal
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Date Joined Dec 2006
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   Posted 2/15/2007 12:13 PM (GMT -6)   

DANIE, I don't think the problem is the fact that I ate something wrong.  It's that I didn't eat enough.  I was skipping meals and no longer feeling hungry.  In my case, malnourishment problably caused this.  Maybe I am not eating right to remedy this situation, but the cause was not eating the wrong foods.

In the summer, my cat of 17 years died (not because he was old, but because of MY accident).  I am a HUGE animal lover!!!!!!!!!!  So I felt AWFUL!!!  I also had other hardships in the summer...I didn't eat for days!!!  The actual anxiety did not cause the problems.  For, if I was just sad and angry but ATE, I wouldn't be in this mess.  I just stopped feeling hunger.  And I LITERALLY didn't eat for days.

It has taken a long time for my body to get cured from this.  But gastroparesis can be caused by malnourishment.  At least I'm getting closer and closer to realizing why I'm refluxing!! :))

 


friendlygal
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   Posted 2/15/2007 1:14 PM (GMT -6)   

DANIE, I finally went a little!!  And I just had two yogurts in a row!!  so I think that you and indersonu are right, I need to eat foods that are smooth like that for now (pureed, etc.). I probably can't eat much of anything else for now.

I still am pretty backed up from days of not going and might still need an enema (last time I was excited that I went, I then didn't go again for days).  But maybe this is a start.  We shall see if it continues this time...


debaser
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   Posted 2/15/2007 1:17 PM (GMT -6)   
Wow. I have to agree with Danie. At some point you will get some sort of blood poisoning if you don't go. Get to an ER, preferably at a teaching hospital. Fast track everything, seriously. Even if you don't get blood poisoning (there's a name for it but I can't remember it), you still run long-term risks of diverticulitis and other nasty things.

It's not right for you to see a nurse practitioner when you're trying to see a specialist, either. Nothing against them and I'm sure the one you have is a great care giver, but you're not getting what you or your insurance company is paying for. You need to see somebody that's at the top of his or her field and is familiar with the latest research. That's why I recommend the teaching hospital. There's a different kind of peer pressure at work in an institution like that, and it works on your behalf. Those guys read their journals AND contribute to them. When I went I could tell immediately that they were taking a whole new approach to getting a diagnosis. And it's not as if my GI prior to going to Scott and White was a slouch....she did her undergrad at Harvard and her MD was from Stanford. The doctors at Scott and White didn't have the same Ivy League pedigree, but there were several of them working in close concert to get me straightened out. No expense was spared and scheduling was VERY crisp until they determined I wasn't an emergency case.

When they thought I had gastroparesis, it was mentioned that there was no real cure but that it does respond to treatment. It is usually caused by nerve damage which will heal if given enough time (he said it may take a couple years). He still thinks my GI problems are related to anxiety and it's the anxiety that's causing sort of an intermittent GP-like reaction. I was put on a drug called Nortryptaline to take as needed. Due to side effects I don't take it much, but the point is there ARE things they can do for motility problems.

Good Luck. And, again, don't allow yourself to get caught up in a system. I suggest being more aggressive.

friendlygal
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   Posted 2/15/2007 1:30 PM (GMT -6)   

Thanks, debaser.

I called the GI place and will get called back soon.  The nurse practioner there is like a doctor.  It is hard to believe but if you met her, you'd feel that way too.  I really think so!  There are GIs at this place who went to Harvard, too.  She will direct me to a GI there pronto if there is a big problem.

I finally went a bit of bowel today.  this should mean something.

What's the longest you went without going bowel, If I may ask?


Tummytuck
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Date Joined Jan 2007
Total Posts : 99
   Posted 2/15/2007 1:38 PM (GMT -6)   
The name for the blood poisoning is sepsis and it is very serious. I'm glad you've had some relief, friendly gal. Enemas don't hurt at all and you will feel MUCH relief when it is done. As debaser says, there are prescriptions that help with motility. I hope they work for you.

BTW . . . applesauce tends to constipate. I learned that as a mother. Apples and applejuice will loosen things up but applesauce has the opposite effect.

Good luck to you and keep us informed.

Tummytuck

debaser
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   Posted 2/15/2007 2:11 PM (GMT -6)   
Yeah, my primary care doctor is actually a nurse practitioner and she's great. I also saw one when I was in college and she was just as good. I have all the faith in the world in them when it comes to practicing medicine in general, but they're not trained like doctors are. It sounds to me like you do have a serious problem and I'd go ahead and skip her in favor of the specialist.

Anyway, to answer your question, the longest I ever went was five days. That was following a surgery and was no doubt a by product of the anesthesia. But, the thing is, I haven't been the same since. Before the surgery I had maybe been constipated five times in my entire life. I was 29 years old at that point! So since then I've been having problems but not to the degree that I was directly following the surgery. These days I may go three days. Sometimes it's two days, but very little will actually happen when I do go and it may skip another day after that. My problems with constipation seem to pale in comparison to yours...I can only imagine what that must be like.

I'm having more and more "normal" periods of late, nearly two years post-op. These normal periods are still punctuated by minor :(in comparison) spells of constipation every now and then.

Another similarity between you and me is also the eating thing. Prior to having that surgery, I also went through a several month period during which I ate very little. During one 30 or 40 day span I dropped 35 pounds, as a matter of fact. Finally it was actually the nurse practitioner that suspected it could be a gall bladder problem. I went through that slate of tests and eventually found out that I had a small, benign tumor in my gall bladder, situated right at the bile duct.

I think that whole ordeal really got in my head. I had real physical problems, too, probably caused by the undernourishment. After the surgery I think I still didn't feel right as a result of that, which eventually led to a cycle of second guessing and eventually a mild (major?) anxiety disorder. These days I'm feeling better a little at a time and finally hold out hope that I'll eventually get over it. I realize that it's a process...I no longer expect to wake up feeling permanently great. That outlook actually helps me gain perspective.

Even though there are some similarities between you and me, I'm sure the actual problems are different. I'm not trying to suggest that you should do exactly what I did. My real point is that I was miserable and even though it's taken a long time, I finally feel like I can and will beat it. You'll get better, too. It may take some time but you'll get there.

friendlygal
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   Posted 2/15/2007 2:42 PM (GMT -6)   
thanks, debaser.  I want to feel that even though I couldn't go for so many days, I will be fine again.  I think that there is a possibility that I will be fine.  I have to feel that way.  And maybe it will be sooner, rather than later.

sillylilly
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Date Joined Oct 2006
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   Posted 2/15/2007 5:54 PM (GMT -6)   
Friendly,

My prayers are with you...

friendlygal
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   Posted 2/15/2007 6:00 PM (GMT -6)   

sillylilly (and all others) thank you so much for all your kind words and support.  Not being able to go for days is no fun!!

I am happy to report that I finally had a BM today.  It might not mean much, but it is something.

I have been perscribed miralax so I will try that.  has anyone else here tried it?


friendlygal
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   Posted 2/15/2007 10:06 PM (GMT -6)   

thanks, indersonu.  I was given a perscription for miralax.  zelnorm is for IBS with constipation.  That's why my doctor perscribed miralax and not zelnorm.

I also have just bought metamucil.  so I'll try the miralax and metamucil and hopefully i'll have positive results.

FG


jacquidube
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Date Joined Feb 2007
Total Posts : 13
   Posted 2/18/2007 12:58 PM (GMT -6)   

Hello, I am new here. I am so glad I found this site. I was looking all over for someone that may be suffering with the same problem I have.

I cant seem to keep my food down. I have noticed this in the last couple of months now. I can eat oatmeal for breakfast, no problem with honey but when it comes to a meal in the afternoon I eat (like a kids portion) and i feel full all the time and 4 hours later when my body is or should be due another meal it still feels full from the afternoon meal. The food feels like it is sitting on top of my stomach, like I am full and bloated and when I try to burp, food comes up, like a liquid.

I have been throwing up for 30 years, maybe 1 or 2 meals a day but only 1 meal the last 2 years. I am bulimic I think but I dont binge and never have done. I feel bloated right now and all I had for dinner at 2pm (its now 6pm) was some slices of pork, some carrots mashed with butter and one roast potato and some quite rich gravy. They were very small amounts. but it still feels like it is lying there and I am dying to be sick but Im forcing myself not to.

Can anyone tell me what it is please before I make a trip to the doctors for support. I think about it constantly and this may be the reason why I cant just let it go and my nerves allow the feeling of bloatedness to be there.

Thanks everyone for any information you can give me.

Love Jacqui. x x x x

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