B2 I am sorry about your son. The really sad part of this is, that the radiologists are not picking up things that they should be. And then when the doctors do know there is something to check into, they don't think it's as important. Did your son have any ultrasounds done of his gallbladder? The docs usually get those things checked. I can only imagine how angry you must have been. and maybe still are. With all this training the doctors and the radiologists are supposed to have, they seem to be very uneducated, at least here in our area. I can't believe how they leave things go. My sister was bleeding through her urinary tract pretty bad, she went to the ER and they said they checked her, but sent her home telling her she had an infection and gave antibiotics. This went on for quite a few months. They then finally did an ultrasound and found a tumor on her kidney. this was two years ago, but she died in Sept. I was told I have some kind of tissue sac midway on my esophagus, which the gastro doc said he didn't see anything when he went in. So I told the nurse practitioner that I spoke to today that I am assuming it's on the outside of the esophagus. She said well you can't assume that since he didn't see anything. Well it was on the report from the radiologist. so why not check it out. It's dangerous leaving things go these days. Why can't they get that through their heads.
I know there are people who say they have a good doctor and they care. But I am seeing more and more on these forums who do not have doctors who can help them. Months, years go by and peopel suffer, And they do not know why some one has a disease there are more and more odd things people are getting and try to mask the symptoms with meds that cause so many other things.
And even if you have an insurance who doesn't require a referal, some doctors now are requiring referals from a doctor. ya can't get in without one. Which we have to be our own advocates now days and do our own research. One person told me to not say anything to a doctor when I go about what I have read on the internet. Well if I don't say anything, I will go months and months or years without getting help which is what is happening.
I am sorry to go on and on, but They are playing with out lives, we miss out on years of our lives because they are too proud to admitt they are stumped and should refer us to another doctor who does have the knowledge. I went through that with an ENT just a couple of months ago. Because a report said my thyroid was normal, even though the one test was just about below normal, he wouldn't refer me to another doctor who specializes in thyroid problems.. I said if nothing is wrong with it then why is it enlarged on the one side and have a cyst on that side too. And why do I have all these symptoms. and feel so sick with it.
No wonder people go to herbal remedies and things.
I am very sorry, I guess it's because I am feeling very sick and have so much pain around my liver area and esophagus and all I am getting from the new gastro doctors office is a run around. They didn't see anything really on the scopes, but I have diahrrea since the scopes and am very sick, I can't eat a hole lot
So when you said about people thinking you didn't care about your son, I don't think that in the least, I know how these doctors are and how they leave things go and don't think symptoms are serious. My older friend from church said she was bleeding from her rectum, the gastro doctor told her to go home and if it gets worse to call him. So she changed to the other gastro practice too. It's like going to a grocery store and being pushed down the conveyor belt for a price check.
back to square #1- off meds for now-dx with fibro. Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections. Asthma/COPD.