Does anyone know about LPRD, same symptoms as GERD

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california lady
New Member


Date Joined Apr 2007
Total Posts : 8
   Posted 4/23/2007 2:27 PM (GMT -6)   
I had a scarey experince yesterday and spent some time on the computer looking up my symptom. I started having a spasm in my larynx like I couldn't get any air. When I tried to talk I started gulping air. I found out that there is a disease just like GERD, but higher up in the larynx called larynogopharyngeal reflux or LPRD and here's the important part---it developes with no heartburn and has many of the same symptoms. I never had heartburn, and all the symptoms of GERD. The treatment is pretty much the same but the acid reflex can cause  more serious damage because the larynx is more sensitive to the stomach acid. Also, I read that you should try not to clear your throat, the damage happens during the day, as opposed to night time with GERD and it can take 3 to 6 months for the larynx to heal. I'll know more when I have my ENT, GI appointments next week but I really am starting to think that is my problem. And I broke down and took a Xanax last night, what a relief to get a good nights sleep. My weight loss is worrying me, does anyone have any suggestions when it's hard to swallow solid food on how to maintain a healthy weight. Jan

Lonibel
Regular Member


Date Joined Jun 2006
Total Posts : 145
   Posted 4/23/2007 7:18 PM (GMT -6)   
I don't have any real answers - just a list of foods that I can tolerate.  I am also thin and have trouble sleeping because of the GERD (or whatever it is):  It seems you must make a choice between sleeping and eating - you can't do both because of the amount of time it takes to digest your food.   Anyway - I can eat almond butter spread on brown rice cakes, Jahrlsberg Swiss cheese (semi-skim, I think they call it.)  Grapes, hard-boiled eggs, sauteed asparagus, cucumbers; oddly - I can occasionally eat non-greasy pizza with not a lot of tomato sauce on it.  Chicken breast sometimes gives me problems.  I drink only water and hot water.  Yoghurt is okay....  Then there are the days I eat widely because it doesn't seem to make much difference! - still get the burn.

ecvorst
New Member


Date Joined Apr 2007
Total Posts : 1
   Posted Today 10:53 PM (GMT -6)   
I was diagnosed with LPRD about a week ago and have been experiencing much of the same difficulty with swallowing. Needless to say, before I knew what was causing this I was a little terrified! I've been taking Acifex for about a week and it seems the swallowing difficulty is better some days and worse others. Today for example has been a rough one .. even with softer foods.

My only guess is that the body just takes time to heal, especially with the more sensitive areas in the back of the throat. I'm trying to be patient and bear with this but I definitely agree ... it's not fun.

Tylenol seems to help ease the discomfort and I'm still searching for alternative food suggestions.

raspyboy
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/4/2007 6:08 AM (GMT -6)   
I feel bad for many of the people in the chat room. I don't experience many of the symptoms as others do- ie. difficulty swallowing, spasms, etc. However, I do have a problem with the phlegmy feeling in the back of my throat. Does any one else experience this and if so, do you take anything to alleviate the symptoms?

dmb
New Member


Date Joined May 2007
Total Posts : 4
   Posted 5/13/2007 1:44 PM (GMT -6)   
Hi. I'm a newbie to the forum but not to GERD and LPR. I've been treated for GERD by GI docs for 10 years. I have rarely had heartburn but have frequent reflux and other symptoms. My worst and most consistent symptoms have been diffiuclty swallowing, sore throat, aspiration and choking with food, liquids, pills, even my own saliva. When I got pneumonia a few months ago I thought I'd better seek assistance one more time. GI doc has told me for years I'm on max medication and have tried them all. I wouldn't use Reglan because it looked too risky esp. with other meds I was on. Tests showed "severe spontaneous reflux," damage to larynx from aspiration and a small hiatal hernia among other things. My doc still didn't think surgery was worth considering.

Anyway, GI doc said I had "atypical GERD". I get the impression GI docs call it that and ENT docs call it LPR or LPRD. I went to an ENT doc (Ear, Nose and Throat specialist) in September of 06 for other reasons (maybe consequences of acid) and asked her about the problems swallowing. She referred me to speech patholgist in same practice. She told me about LPR and that my issues are so severe and complicated I should consider the surgery. The ENT doc concurred with little discussion. She said GI docs are more skeptical about Nissen Fundoplication than ENT docs. Plus the thoat issues are more risky to go untreated. So I'm scheuled to see a surgeon on May 31 and have beeb reading all kinds of stuff.

One thing that was helpful. Many articles said GERD sufferers reflux at night and LPR sufferes reflux during the daytime. I reflux around the clock confirming I have both. The reflux at night mostly consists of intense congestion of phlegmy something in throat. Feels like I'm drowning and can preclude all sleep. that's the main reason I'm actually eager to do the surgery, even though scared. I get the feeling no doc in this area is doing the procedures that are newer than Nissen Fundoplication but this surgeon is excellent with that.

I also read LPR can be a complication of classic GERD that becomes a disease with it's own course, symptoms, and risks. But speech therapist says most people who have LPR do not have GERD. She is helping me swallow more safely. She also said surgery would not be recommended for those who just have LPR but for me treatment of the GERD will reduce intensity of LPR.

I hope this helps others here. I'd be interested to hear of others with LPR diagnosis re. their experience with symptoms as well as surgery or any other treatment.

Blessings to all, dmb

Brownfield
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/13/2007 2:51 PM (GMT -6)   
I'm new here, and have read only a few posts on GERD & LPR. I have practiced Pharmacy for 40+ years, so have filled lots of prescriptions & sold lots of antacids to people with heartburn, as well as having the problem myself. So far nobody has mentioned whether their gastrointerologist have checked their gastric acid levels. I've been to more than one GI & have never had this checked. Everyone just assumes that if you have "heartburn", there is too much acid, when I have reached the conclusion, from treating myself, that the opposite is true. There is not enough acid to digest the food, and the reflux is undigested food and other digestive juices, that causes the irritation in the esophagus and/or larnyx.
The REAL problem has nothing to do with excess acid, but is the fact that the Lower Esophageal Spincter at the junction of the esophagus/stomach does not close (and stay closed) properly, thus allowing the stomach contents to re-enter the esophagus, thus the irritation. The GI who 'treated' me would treat only by prescribing Nexium. This is a substance that I believe should not be injested by humans, because of its adverse effects on the body.
This has gotten too long, so for anyone who is interested, here are a few suggestions. A natural substance named d-limonene, marketed as Natural Esophaguard, available at most health food stores.
To encourage the Lower Esophageal Spincture to stay closed, I use the Homeopathic Preparation Nux Vomica in a 6X or 12X strength.
I eat an apple every night before bedtime. As long as I do this I have no nightime reflux. I missed 2 nights in a row a few months ago and started having the nighttime reflux again. With daytime reflux, I'd try a slice of apple whenever needed. (Much better than taking a pill).
This is information I've been wanting to share with people that need it for a long time, so am glad to find this forum.
If anyone has questions they would like to ask me, feel free to contact me by e-mail. Thanks for listening
Brownfield

dmb
New Member


Date Joined May 2007
Total Posts : 4
   Posted 5/13/2007 5:55 PM (GMT -6)   
Thanks Brownfield for that information. I've often wondered about the effect of suppressing acid when we need it to digest food. When I went on Nexium, doctors said it had no side effects and was one of the safest drugs available. I don't know how they could even know that when it's new on the market. I was on it for 3-4 years and just went off about 8 months ago. Wasn't aware of side effects but I have many other health issues and medications, I would certianly blame any of the other problems before Nexium. Could you say more about danger of Nexium? I didin't know you could measure gastric acid.

I'm wondering why the apple helps you. Whenever I eat apples or applesauce I get all the issues of LPR- increased phlegm and throat clearing, coughing, often aspiration. Do you have any thoughts about LPR? They say with that or at least with me the upper esaphageal sphincter also fails to close properly and is out of sync with lower ES.

Isn't it amazing how far the doctors's meesages can vary so much from the messages found here?

Blessings, dmb
"Imperfection is perfection unfolding itself."


2Hawaii
Regular Member


Date Joined May 2007
Total Posts : 82
   Posted 5/28/2007 7:35 AM (GMT -6)   

 

Thanks very much for your advise. I was diagnosed with GERD last month and had read about apples and have had success with them in the past as I did after reading your post this am. I am not familiar with LPR, but from the posts I've read, I'm beginning to think I may have this problem also. I will do further reading. I would like to email you, but I can't find an email address for you on this site. Would you please email me as I would like more info on natural and alternative methods to deal with GERD and more info on LPR. Thanks Topics4_2 San Diego, CA

 

Brownfield said...
I'm new here, and have read only a few posts on GERD & LPR. I have practiced Pharmacy for 40+ years, so have filled lots of prescriptions & sold lots of antacids to people with heartburn, as well as having the problem myself. So far nobody has mentioned whether their gastrointerologist have checked their gastric acid levels. I've been to more than one GI & have never had this checked. Everyone just assumes that if you have "heartburn", there is too much acid, when I have reached the conclusion, from treating myself, that the opposite is true. There is not enough acid to digest the food, and the reflux is undigested food and other digestive juices, that causes the irritation in the esophagus and/or larnyx.
The REAL problem has nothing to do with excess acid, but is the fact that the Lower Esophageal Spincter at the junction of the esophagus/stomach does not close (and stay closed) properly, thus allowing the stomach contents to re-enter the esophagus, thus the irritation. The GI who 'treated' me would treat only by prescribing Nexium. This is a substance that I believe should not be injested by humans, because of its adverse effects on the body.
This has gotten too long, so for anyone who is interested, here are a few suggestions. A natural substance named d-limonene, marketed as Natural Esophaguard, available at most health food stores.
To encourage the Lower Esophageal Spincture to stay closed, I use the Homeopathic Preparation Nux Vomica in a 6X or 12X strength.
I eat an apple every night before bedtime. As long as I do this I have no nightime reflux. I missed 2 nights in a row a few months ago and started having the nighttime reflux again. With daytime reflux, I'd try a slice of apple whenever needed. (Much better than taking a pill).
This is information I've been wanting to share with people that need it for a long time, so am glad to find this forum.
If anyone has questions they would like to ask me, feel free to contact me by e-mail. Thanks for listening
Brownfield

kevinla
Regular Member


Date Joined Dec 2005
Total Posts : 151
   Posted 6/1/2007 12:58 PM (GMT -6)   
Brownfield said...
I'm new here, and have read only a few posts on GERD & LPR. I have practiced Pharmacy for 40+ years, so have filled lots of prescriptions & sold lots of antacids to people with heartburn, as well as having the problem myself. So far nobody has mentioned whether their gastrointerologist have checked their gastric acid levels. I've been to more than one GI & have never had this checked. Everyone just assumes that if you have "heartburn", there is too much acid, when I have reached the conclusion, from treating myself, that the opposite is true. There is not enough acid to digest the food, and the reflux is undigested food and other digestive juices, that causes the irritation in the esophagus and/or larnyx.
The REAL problem has nothing to do with excess acid, but is the fact that the Lower Esophageal Spincter at the junction of the esophagus/stomach does not close (and stay closed) properly, thus allowing the stomach contents to re-enter the esophagus, thus the irritation. The GI who 'treated' me would treat only by prescribing Nexium. This is a substance that I believe should not be injested by humans, because of its adverse effects on the body.
This has gotten too long, so for anyone who is interested, here are a few suggestions. A natural substance named d-limonene, marketed as Natural Esophaguard, available at most health food stores.
To encourage the Lower Esophageal Spincture to stay closed, I use the Homeopathic Preparation Nux Vomica in a 6X or 12X strength.
I eat an apple every night before bedtime. As long as I do this I have no nightime reflux. I missed 2 nights in a row a few months ago and started having the nighttime reflux again. With daytime reflux, I'd try a slice of apple whenever needed. (Much better than taking a pill).
This is information I've been wanting to share with people that need it for a long time, so am glad to find this forum.
If anyone has questions they would like to ask me, feel free to contact me by e-mail. Thanks for listening
Brownfield


Was the Nux Vomica effective? Did you notice a difference?

brownfield...I can not find your e-mail address in your profile. Can you e-mail me. My e-mail address is in my profile along with my MSN messenger addreess.
KLA

OUTOFHOPE
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 6/9/2007 9:36 PM (GMT -6)   
 
Hi, of course...I am new here, but thought I'd try here, to look for some answers.  My story is long, but very puzzling.  Starting the first week of Jan, I became short of breath.  My breathing became very shallow and felt almost impossible to take a deep breath. Then, one week later I began having pain in my sternum, that radiated into my ribs and my back and neck. I had just started a new job, and refused to give in and risk losing it.  I made it 7 days before it was just so unbearable I could not handle it.  I visited the ER where I was told I had "Bronchitis and Pluerisy" What???  I had not been sick, AT ALL.  But desperate, I took the meds given to me, which were steriods and anti-biotic.  (the only test given were, ekg, blood,chest x-ray.)  2 weeks later I followed up with my "new primary care dr" still in excruciating pain, still breathing shallow, in tears and begging for help.  Upon his exam, I found out, that I was sooo tender in my chest wall and ribs, that I could not stand to be touched.  Dr. advised me I had "costochondritis"  I had never heard of it and was convinced he was making it up.  But I did my research and found some similarities.  He prescribed Celebrex for inflammation.  Another week goes by and while the chest wall pain has become tolerable (or maybe I am numb to it now) I was still having alot of trouble.  I called his office, he wanted to call me in Xanax, as he blamed the breathing problems on anxiety, (caused by the pain).  And also sent me to pulmonary doc for lung function test.  I though I was never going to survive this.  Results....normal. Long story a little shorter 5 1/2 months later, I am still miserable.  I rarely have a day that this does not affect me.  They have now determined that I have Fibromyalgia.  A diagnosis I refuse to accept.  So, I found a new doc, a female this time and she has ordered test such as "upper gi, echocardiogram, gall bladder ultra-sound, and spine and thoracic x-ray.  I go back to her on the 15th and I pray that she has some answers.  So far the ultra-sound showed no gall-stones, and the upper gi...well that was just miserable.  But I do not have the results yet.  I also have a "hanging" in my throught that comes and goes, but comes, more than it goes.  I have GERD, IBS, VOCAL CHORD NODULES.  I have has a hysterectomy.  Does this sound familiar to anyone?  I fear my esophagus may have some serious damage.  This is consuming my life.  HELP!!

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 6/17/2007 3:11 PM (GMT -6)   
Brownfield, apples actually make me burp so they are not helping my situation...

Scoman
New Member


Date Joined Jul 2007
Total Posts : 3
   Posted 7/7/2007 8:01 AM (GMT -6)   
I'm in Japan where there is an unfortunate communication problem.... I've been gradually loosing my voice over the last 6 months and not had known why. My job basicaly involves speaking so it's been difficult and it was thought it was overuse but I don't really talk quite that much I think. One of the many ENTs I've been to figures its GERD but after reading Dr. Hazenfields article, I seem to have a combo of it and LPR. I don't have heartburn although I did have some years ago. I have what feels to be a lump in the back of my throat, definite hoarseness and loss of voice, asthma, and slight problems swallowing. I went on Asthma meds too and they killed my voice really quickly.

Anyhow, after being diagnosed with GErd, got given Pariet and Transamin which didn't do much for me but once I added in elevating my bed, stopped lying down and watching TV after eating, my symptoms (voice) improved greatly. However, I have a big setback, and this probably kicked off my problem. One of my favorite things to do was to go downtown Osaka and did a HUGE thai lunch and walk around for a while. Big time acid reflux. And, I had a little setback, (its only been a week and a half since I elevated my bed etc. I had a little Thai at home and although it wasn't a huge meal, I had the same walking reflux issues.... and sure enough, my voice got a little worse for the last couple of days.

Any suggestions? I know I have to avoid Thai and large meals etc.... Should I get checked out for a hiatial hernia? I also have noticed that i beltch quite a bit....



Any suggestions are appreciated! It's essential I get my voice back 100%.
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