Weaning of Nexium

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rosey 63
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Date Joined Nov 2007
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   Posted 11/23/2007 10:54 AM (GMT -6)   
Anyone recently (11/07) trying to wean of Nexium?
I just completed my weaning after being on the
medication for a year and would like to share my
experience . . . as I was successful.

Rosey 63 yeah

HappilyWrapped
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Date Joined Oct 2007
Total Posts : 183
   Posted 11/23/2007 4:52 PM (GMT -6)   
I didn't wean - I went cold turkey. Had my last dose of Nexium on 11/21. Had the Nissen procedure on 11/22. Haven't touched Nexium since 11/21 and haven't had heartburn or anything acid related. I had no problems that could be considered related to stopping a drug. I realize the Nissen took care of the GERD problems, but in case you were looking for something like a headache, stomachache, or anything like that, I thought I'd respond.

rosey 63
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   Posted 11/24/2007 10:55 AM (GMT -6)   
Happily Wrapped . . . glad to hear the Nissen procedure was a success for you. Not an option for me right now. Had to get off Nexium due to very blurred vision (shouldn't have been driving!) and a low white platelet count . . . very unusual (only 2% get this) but . . . For anyone else interested ; I was on 40 mg Nexium (@ ayear) and it completely healed my esophagitis . . . so I'm not down on the medication. However, taking 40 mg/day I could NOT go cold turkey (tried!) as the REBOUND acid relux was terrible. I did some research on the net and the best way to get off is to go very SLOWLY. It took me about 7-8 weeks to do this. I bought some clear caplets from a health food store (pennies a piece) and poured in the amt from the 40 mg tabs I had. I started with 35 mg for ONE week, then 30 . .25 . . 20 . . .15 . . .10 and 5mg . . . each for ONE week. If I ran into any GERD problems I took 75mg Zantac or Maalox along the way. Use whatever works for you. The first week Nexium free I took Zantac twice a day, but probably didn't need it. Now I watch my diet and feel better . . . and my vision has returned!

I have also read that some people can stop the PPI's cold turkey by taking 150 mg zantac twice a day. Perhaps this would work
starting from 20 mg . . . but starting from 40 mg . . . I'm skeptical, so I did it the slow way. The MD's never tell you about the REBOUND acid reflux you get . . . coming off the PPI's . . . but it's REAL.

Hope this is helpful for anyone attempting to get off PPI's. My MD did not think I'd be able to do this but I did!

Another Day
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   Posted 11/25/2007 12:00 AM (GMT -6)   
Rosey,
 
I am very glad you posted that information.  I am wanting to wean myself off the purple pill.  I would have never known where to find the caplets or how to go about doing it.  I'm going to try your plan and see if it works for me.
 
Thanks!
 
Carla

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Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus


outtllaw
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Date Joined Aug 2007
Total Posts : 69
   Posted 11/25/2007 5:32 PM (GMT -6)   
Rosey 63 how long did it take for your vision to come back to normal. I was having the same side effects while on nexium 40 twice a day. I stop taking it about 6 days ago but my vision is still not what it used to be, and I have had my vision checked by an optometrist and he found nothing wrong.

Bronc
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Date Joined Nov 2007
Total Posts : 1
   Posted 11/28/2007 10:40 PM (GMT -6)   
This post gives me some hope. I am currently trying to come off of Protonix, and I am trying it cold turkey. It has been 4 days now. Yesterday was pretty horrible. Today was actually not too bad, though. I am hoping for the best.

HappilyWrapped
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Date Joined Oct 2007
Total Posts : 183
   Posted 1/2/2008 6:17 PM (GMT -6)   
Bump

Thought I remembered reading this and it seems that the topic has come up again.

TammyGrl0528
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Date Joined Jun 2007
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   Posted 1/3/2008 12:34 PM (GMT -6)   
I just want to put my 2 cents in here on this...

I would not recommend going cold turkey off ANY drug unless your doctor instructs you to do it.

I wouldn't wean either, UNLESS you are under the supervision of a doctor. They put you on the drug, and they should take you off.

Wishing everyone the best!
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Lucy007
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Date Joined Oct 2007
Total Posts : 62
   Posted 1/5/2008 2:54 PM (GMT -6)   
Rosey 63...I have a question for you.  Do you think that the burning experienced when off PPIs for a few days is a result of rebound acid that will subside or that it is more a sign that you have really bad gerd that won't be manageable without drugs?  I ask bc I had to stop the drugs after long term use due to severe and worsening gi side affects.  They disappeared within 2 days, but the acid...you call rebound...is quite painful at times.  Just looking for a little hope here.  How did you know that you were taking 35? 30? etc...did you measure somehow?  I should add that I just had a recent scope that was good and the long term use of nexium has apparently healed my esophagus.  Just looking for light at the end of the tunnel.  thanks for your original post as well.  I found it very hopeful!!!

TammyGrl0528
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   Posted 1/5/2008 6:39 PM (GMT -6)   
Again, just putting my 2 cents in...if you go cold turkey off a med for acid...you will get rebound acid. That is very common. Even when weaning off, it is common. Again, I suggest everyone be careful when coming off GERD meds, along wtih ANY meds.

Just my 2 cents.
 GERD Forum Moderator
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Lucy007
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Date Joined Oct 2007
Total Posts : 62
   Posted 1/6/2008 11:21 AM (GMT -6)   

Thanks for your input tammy.  I am happy to hear that rebound acid is indeed a real thing that happens after long term PPI use.  I have been on the meds for years and everytime I try to stop cold turkeyI fail bc the burning is so bad.  Im happy to learn this information. 

Question though...Does anyone know how long the rebound acid will last?  Is it in correlation to how long you have been on the meds? 

Thanks again!


TammyGrl0528
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   Posted 1/9/2008 9:18 AM (GMT -6)   
Hi there Lucy. I can't say for certain how long the rebound acid will go on for. You might want to talk to your doctor, because it has to do with the severity of your individual case, along with what you were taking, and for how long.

YOu can call your doc and see what he thinks based on you, not just statistics!

Wishing you the best!
 GERD Forum Moderator
    Please share, only if you can spare! 
 Diagnosed with Generalized Anxiety Disorder (GAD) and Panic Attacks.
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ringing ears
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Date Joined Aug 2008
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   Posted 8/30/2008 9:34 PM (GMT -6)   
I've had gastritis for almost two years, and it's finally getting better.  But I take 40 mg of Nexium twice a day, and it appears to have caused pretty bad tinnitus.  I need to get off this stuff but have had the stomach burning return every time I've tried.  I will try the empty capsules, as I've seen them at the health food store.  Thanks for the tip.  I keep reading that hydrochloric acid will help to get off the PPIs.  Anyone have experience with that?

Canyonbabe711
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   Posted 8/31/2008 2:03 PM (GMT -6)   
Hydrocholoric acid is what the PPI's are designed to get rid of, isn't it? Only the stomach can handle HCL which is why it can destroy the esophagous. You do have to go slow to get off Nexium or any PPI.

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 8/31/2008 3:50 PM (GMT -6)   

ringing ears,

Before starting to wean off the med I would talk with your physician and see if perhaps a lower dose of the medication would stop the ringing of the ears or perhaps one of the other PPIs.

Just my 2 cents today wink

Take care and keep postins.

Kitt


 

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ringing ears
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Date Joined Aug 2008
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   Posted 9/1/2008 1:01 PM (GMT -6)   
Thanks for the replies.  I too thought the hydrochloric acid would cause problems, hence I never tried it -- and won't at this point.  I did try a 20 mg omeprazole last night, and 15 minutes after swallowing it, my ears started ringing again.  At 1:00 the next day, they are still ringing.  Today, I took 20mg pepcid and stomach is doing okay so far.  We'll see how it goes.  I feel like I have to do something for fear that my hearing may be permanently damaged.  I've spoken to many doctors over the past two years, and they don't seem to know/care about anything I'm going through like side effects or the fact that I don't think it's safe to be on perscription drugs forever.  No one has answered the questions of 1) why did I suddenly get gastritis, and 2) why isn't it going away.  I've done a lot of reading on my own and am very careful about what I eat.  In the U.S., we seem to be very far behind the U.K. in these issues.

Canyonbabe711
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   Posted 9/1/2008 6:43 PM (GMT -6)   
Why do you say we are behind in gastro issues. Could it be our food and lifestyle. Have you been tested for H. pylori? Since the Omeprazole is the same as Nexium basically obviously that is going to be something you need to change. As for why you get the gastritis I wish I knew. I have esophagitis, gastritis and duodenitis and they say it is all from acid. I never knew I had acid reflux but I did have bloating and that was when I had the endo and it showed really bad errosive esophagous. You probably didn't get it suddenly but rather slowly till it got to the point where you were aware of it.There are some Doctors that switch the PPI's around, use one for 6 months and then switch to another. Sounds like a good idea to me. Something you might consider.

stkitt
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Date Joined Apr 2007
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   Posted 9/1/2008 7:05 PM (GMT -6)   

ringing ears,

The problem in assessing adults who have GERD is that many have elected to self-medicate with antacids for a significant period, somtimes for years, before reporting the condition to a helath care provider. By the time it becomes severe enough to cause symptoms that are uncomfortable enough to cease to be "normal" in the patient's perception, the disease has advanced to its latter stages.

Canyonbabe gave you good advice in switching out the meds every 6 months.............please discuss this with your physician.

I wish you the best and keep posting.

Kitt


 

Kitt, Moderator: Anxiety/Panic & Depression
& GERD  Forums
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
Clickable Link: Anxiety-Panic Resources


kandc88
Regular Member


Date Joined Sep 2008
Total Posts : 65
   Posted 9/13/2008 4:14 PM (GMT -6)   
I would also be interested in knowing what you used to measure the decreasing mg's?  Pharmaceutical scale?  I have been on prilosec, prevacid, nexium for 8+ years now and would like to come off of them if possible.  I started on them for decreasing aggravation of esophageal ulcers due to crohn's disease.  Also there is some decreasing of intestinal transit time that is also useful for my and my disease due to my intestinal resections.  I've been doing OK for awhile now and think that if possible it'd be healthier to have stomach acid available to digest my food better. 
 
Thanks!

ringing ears
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Date Joined Aug 2008
Total Posts : 3
   Posted 9/15/2008 8:05 PM (GMT -6)   
Bronc, I was on Protonix too, and it seemed to have solved the problem - and with no side effects. Then, my GI doc said I had to get off it because there were no clinical trials on humans beyond six months. In lab rats, 80 mg/day caused stomach cancer after six months. Rats are much smaller than humans, so the problem for them may be overdose. But the doc said he's not willing to take the chance with humans because it may be that 80mg/day will cause stomach cancer in humans if taken long enough. Sigh!!

The Nexium and Prilosec OTC (and it's generic) are working, except for the ears ringing. I use the otc stuff to cut down on the dose. Most days, I'm doing fine on 20 mg in the morning and 20 in the evening. That's half the dose of Nexium that I was on. I do still have to be careful about what I eat - fat, chocolate, citrus fruits and grains seems to be the big culprits.

When I was young, I was around a lot of older people in my family and church, and I remember them often talking and laughing about not being able to eat many of these same foods. I'm starting to think that for some people, middle age (which I'm in) is just a time when your body starts telling you to take care. You know that old saying, "I wish I could be twenty again but know what I know now." I find myself thinking that a lot these days... The good news is, I'm improving little by little as time goes by and menopause runs its long course. I'm also learning to laugh about some of these things since I'm feeling better and able to eat more in quantity as well as variety.

Some of the best things I've done in trying to get well have included extensive reading with a very open but cautious mind and talking to other people who are going through the same thing. Don't give up!

petunia22
Regular Member


Date Joined Sep 2008
Total Posts : 48
   Posted 9/29/2008 7:44 AM (GMT -6)   
Hi everyone,

I'm on day 15 of being off Nexium.. I am using a very low carb diet. I"ve had days with some heartburn, starting on the tenth day.. However, I am using slippery elm bark and DGL licorice, as well as chewing gum after meals and when I feel the heartburn. It seems to help. I feel optimisitic, because it hasn't been too bad and I think I"m gonna beat this thing!

Petunia

Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 9/29/2008 11:52 AM (GMT -6)   
I was on 2-40 mg. Nexium twice daily and, over a 4-year period, backed-off to the point where it's rare for me to use the medication. I still keep it on-hand, just in case of a special need. My doctor urged me to get off the stuff, calling it the "Purple Cocaine." I've learned some of the food/drink that elevates the acid in me and try to stay away from those things.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (17 days post-op)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Will return to work 9-29-08, 18-19 days post-op

 

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