Oh my gosh!!! Thank you!!!! I have not met ANYONE who has any idea what is going on with me!!! This is SUCH A RELIEF! This literally made my day. I have about
nine million questions for you, lol, but I will try not bombard you. I am covered from head to toe as well. I had long beautiful hair that I ended up cutting off and donating because the weight and tangles were adding to my hair loss. I have, (in my own self diagnosis) Pustular Psoriasis on my hands and feet, then I have raised red and itchy scales and patches all over everywhere but my face, and huge scales on my head. I NEVER had psoriasis before the remicade. My gastro is hoping it will just 'go away' for me too. BUT he has NO experience with this what so ever, and I was (finally) diagnosed by a derm doctor. I currently on pred, what were your problems with it? How exactly did the byopsy you? Like your skin? Do your docs have any experience with this whatsoever? Do you have any advice on how to talk to my docs to get anywhere? My last infusion was Dec 31 of last year if that helps. Also, did your doctors submit this information to humira? My doctors keep wanting to take pictures of me. I have been advised by SEVERAL people to seek legal consultation, including legal professionals. I am LOST. Thank you SO MUCH for responding to me. I literally thought that I was ALONE.
Everything in moderation, be thankful everyday, and be the most honest I can be. If I can look in the mirror at the end of the day and say I have done these things, I am happy.
Drugs I have tried: Pentasa, Entocort/Imuran, Prednisone, Remicade
Drugs I am on: None for Crohn's, Predisone for drug induced Psorasis
What I need: A bowel resection