Uticarial Vasculitis

christianbcmom

Regular Member

Joined : Apr 2009

Posts : 69

Posted 4/30/2009 1:46 PM (GMT -7)

Well good news, they now know what type of hives I have. They're not just normal hives. They are what is called uticarial vasculitis. This is what they got from doing a biopsy. Today she took 11 tubes of blood and is testing for every autoimmune disease known to mankind, and I also now get to go see an optimologist as well as a rheumatologist to find out more about the autoimmune system and why my body is doing this. Does anyone else have this type of hives? It would be great if you could tell me more about them. Since my immunologist changed my meds around they have been doing better, more livable, but I still have some. What does anyone know about this problem?? Thank you all for your support!!! God Bless.

Alaina

Alaina - age 26

Vitiligo

Hyperthyroidism

Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)

Chronic Hives (my newest endeavor) :)

Current Meds:

Prednisone (30 mg and tapering was on 80 mg --for hives, not UC (but my UC is great right now because of the prednisone)), Xyzal (every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!

How did I go from being on no meds 3-4 weeks ago, to being on all of this now??? Just crazy!! :)

Red_34

Forum Moderator

Joined : Apr 2004

Posts : 23569

Posted 5/2/2009 4:34 AM (GMT -7)

I don't have this but I just wanted to say that even though you were diagnosed with this, I bet you are sort of relieved to have a NAME for what is ailing you huh? Sounds awful though!

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christianbcmom

Regular Member

Joined : Apr 2009

Posts : 69

Posted 5/2/2009 10:16 PM (GMT -7)

Thank you Red 34, yest it is nice to have a name. And although I was starting to do better with the meds, today I have welts again. I really believe this has to do with an allergic reaction to my husbands Humira. I was doing some research on urticarial vasculitis and it can be caused from an allergic reaction. Thank you though, and yes, it's not great. Not something I would wish on my worst enemy. :) God Bless.

Alaina - age 26

Vitiligo

Hyperthyroidism

Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)

Uticarial Vasculitis (my newest endeavor)

Current Meds:

Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!

spiritgirl

Regular Member

Joined : Mar 2009

Posts : 31

Posted 5/5/2009 7:43 AM (GMT -7)

I'm so pleased for you that you now have a name for your particular hives.

I hope you find the answer (cure) and please let us know how you are.

PS What is different about the hives you have? Do they leave bruises?

Mine last 24-48 hours but don't leave a bruise. They leave a red flaring mark for about the last 12 hours after the swelling goes down.

christianbcmom

Regular Member

Joined : Apr 2009

Posts : 69

Posted 5/5/2009 2:39 PM (GMT -7)

Yes, mine leave bruises. They're red, raised, itch, painful, and they leave bruises. They last for like 24-48 hours too, sometimes longer. And I went to the doctor today because I'm covered in them. I was doing really well and didn't have any for like 5 days, and then I slept with my husband (who is on a new drug called Humira), and now I'm covered. So they believe I'm having an allergic reaction to his medication. I would actually be the first person to ever have this happen, but this all started for me when he started the new drug. So we'll see..had more tests done today, and I see the rheumatologist (spelling?) at the end of this month. They put me back on steroids again, did more lab work and a chest xray today so we'll see...I'll keep you posted! :)

Alaina - age 26

Vitiligo

Hyperthyroidism

Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)

Urticarial Vasculitis (my newest endeavor)

Current Meds:

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