Posted 2/9/2010 4:33 PM (GMT -6)
Hello, I'm a new member, too, from Akron, Ohio. I've been a severe asthmatic since 1997 (even though I've never smoked), and am on Prednisone maintenance along with the usual bunch of drugs. I've tried IVI immunoglobulin infusions (I took three, but between making me very sick from the treatment and now my insurance won't pay for the last infusion), I've discontinued those. My pulmonologist throws up his hands and says he doesn't know what to do with me except up my prednisone when I have exacerbations which are more and more frequent. My biggest problem is breathlessness and lack of energy, I find it hard to do anything, from shopping (I now use a riding cart if I can) to cooking. I'm at my wits ends, and I'm only 58 years old (I did work 34 years and my company .... where I worked in a sick building for 7 years), retired me early four years ago. I couldn't work, anyway. I have no energy.
Anyone experiencing this and have any suggestions? I have had my heart checked out with an echo cardiogram as well as a catherization (50 percent blocked, nothing they do for this percentage).
It's like I feel I'm circling the drain here. I'd like to have some sort of a life if I could round up some energy.