trying to understand my urticaria and find a magic cure

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New Member

Date Joined Feb 2009
Total Posts : 7
   Posted 9/29/2010 1:03 PM (GMT -6)   
Hi there this is my first post , i have suffered from what has been described to me by immnologists as Chronic idiopathic Urticaria for the last 2 years . I began itching rather embarrisingly around my testicles and then in my hands , i eventually went to see a gp and was given fexofenadine which cured it . However many antihistamines later i am yet to find one that doesnt turn me into a zombie Loratadine being the worse for this . If i dont take the antiH then i suffer terribly my body feels as if its been poisoned though i personally dont get much of a rash just redness . My Urticaria is also delay pressure related and can be set off from manual work for eg pushing the lawnmower or cutting a hedge . Try getting the DWP to believe this LOL.

I have never been entirely convinced of my diagnosis because nobody has ever done any tests just prescribed antihistamines as the be all and end all , always with the promise of no side effects , which as you may know is bullcrap , indeed most people realise that 2tabs of ceterizine will knock you out sure as any sleeping tablet ever could how they get away with a non drowsy label is beyond me i was particuarly sensitive to clarityn . I have suffered with dizziness since May last year , funny the ent guy is convinced its the antihistamines causing this and my immunologist dismisses all claims of side effects from them . I have read a lot on the net about the connection between allergy and vestibular problems but the ent guy has rubbished this theory .

Anyway i have recently stopped the antihistamines just to see if it was causing the dizziness , and boy did i suffer eventually sitting watching the tv with my itching hands in 2 bags of frozen peas and bag of frozen brussells down my boxer shorts aswell i managed 14 days of hell and then gave in to a double dose of piriton 5mg . I have to say that yes the nature of my dizziness did change but didnt go away so perhaps antihistamines are a contributing factor .
I decided to experiment with vitamin E capsules as have read they can help and i am surprised to report some truth in this . I am now 7 days off antihistamines and am taking 800ui of vitamin e a day plus rubbing the gel contents on my hands and have had only slight itching and some days none at all , though i can feel theusual build up of histamne in my body but not in the aggressive way as before , i seem to be less allergic to things . In my case this was chocolate and alcohol and caffiene .

I was wondering if anyone else has tried vitamin E in this way , the bottle says i can take upto the 800ui mark safely for a limited time i will then reduce this to 400ui .

I mentioned this to the GP who of course looked at me as if i was mad and offered more antihistamines . This really does seem to be the limit of the NHS expertise on the subject .

Post Edited (ITCHYNSCRATCHY) : 9/29/2010 12:36:04 PM (GMT-6)

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 9/29/2010 5:01 PM (GMT -6)   
Welcome to Healingwell :) I have never suffered from CU but I seen my MIL go thru it and how much she suffered. Hers was mainly due to nerves. Once the stress of a certain situation left, her hives went away. But like you, she went thru many many anti-histamines, not to mention having to change her blood pressure meds as well numerous times.

I'm glad you found something to sort of help you.
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
current status: flaring! Ugh!
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(25mgs), Allopurinol (100mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA-Tylonel Arthritis/Celebrex~Scoliosis~Sacroilitis~Dry eye-Restasis/GAD - Klonopin (.25mgs)

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/29/2010 5:34 PM (GMT -6)   
You can buy vitamin E liquid at health food stores.
Does zyertec make you groggy? I take it for my allergies.
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